All Blog Posts (5,829)

Sick of wearing hats, they're hot...so I thought a wig would be better

Hi all you beautiful people , so as you know I was dx with alopecia areata over a month a ago. I was given liquid steroids that gave me such a headache that I thought my brain was going to explode, I was done with that. I will not not do the injections. You see I also have cerebral palsy and I have been getting botx for my CP for as long as I can remember, so injections in my head sorry no thanks..

my favorite from the dr is "it doesn't hurt, yes I dout that..so As you also know I…

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Added by Missellewoods on August 19, 2014 at 11:00am — 1 Comment

Mohican

This regrowth phase I am going through, I keep being a little obsessed with. But looking in the mirror I seeing patches of clear growth and lots of what I call ghost white baby hair.

I just been thinking how I seem to be growing a bit of mohican hair, all on top none on sides, I see often the fashion of woman shaving the sides of the hair, and think to myself my body is trying to copy that.

I remind myself daily not to get excited, that it can go as quick as…

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Added by KFlame on August 18, 2014 at 2:59pm — No Comments

Cure for alopecia?

I just read an article about a new approved FDA medication for people with alopecia. Pictures were included with this article. Studies were done in New York. The drug is called ruxolitinib. It is used with people who have bone marrow disease. Do you think this could possibly be the cure? Check out the article at…

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Added by Lady Tee on August 18, 2014 at 2:00pm — 2 Comments

Pill that can cure baldness in five months: Twice-a-day tablet that allows alopecia sufferers’ hair to grow back set to become standard treatment for condition

A twice-a-day pill that can cure baldness caused by alopecia has been developed by scientists.

It has enabled three patients to grow back a full head of hair within the space of just five months.

Researchers now plan to carry out further tests in the hope that it will eventually be rolled out as a standard treatment.





Read more: …

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Added by Angela Nx on August 18, 2014 at 7:00am — No Comments

Will this pain ever end?

I've had alopecia since I was 11 years old. It started as a tiny bald spot, the size of a nickle, my mom had taken me to my family doctor and he start injections in my scalp. At first it wasn't too bad but my head would start to hurt a lot later. The bald spots finally went away on their own and it wasn't until a two years later they started again. At the age of 13 my dad had past away and I noticed another spot. The doctor told me it was from stress, I kept thinking to myself, I'm 13, what…

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Added by Mandeep on August 16, 2014 at 2:03pm — 4 Comments

My struggle

I've been dealing with Alopecia for a little over a year now. Some days are better than others. I've lost a good bit of my hair on the left side of my head mostly and i'm starting to see new bald spots on the right side very small right now but afraid they are going to get like the left. The left side is growing back after i started using the fluocinonide cream the doctor gave me but i feel like my hair is just thinning out more and more and more. I'm not sure if i'm just being over paranoid…

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Added by xMandyx on August 16, 2014 at 6:30am — 2 Comments

The lesser of 2 evils

Mentally I'm not ready for either but its time to make a choice. Is it better to wake up and see new bald spots every morning, or do I just shave it off and just get use to the fact that I have no hair??? Honestly I'm torn. I have loss over a third of my hair in the past month. If it continues to fall out like this I wont be able to hide the bald spots much longer. So really what's the better option??? My heart hurts either way!! :(

Added by MamaDavis on August 12, 2014 at 9:50am — 11 Comments

Newly allergic to tape

If anyone has any ideas or has had the same problem, I need your help! I've been using tape on my wig for 20 years now and just in the last 6mon. have become very allergic to it now. When I take off my wig every evening, the skin is bright red, itchy, and sometimes even oozing! ): I've been ordering many different tapes online, with no luck so far. Anyone with ideas? ?

Added by Hope on August 11, 2014 at 8:45pm — 2 Comments

Heartbroken...just noticed I'm loosing my new baby hair

I have to allow myself to be this sad for just a day or two. I been so strong since I got diagnosed with AA 5,5 months ago. But i dont want to be strong right now. I want to cry and scream and be mad.

9 months ago, i was a Beautiful bride, marrying my best friend. As happy as could be. Unfortunately, my best friend happen to be American so 1,5 year ago I also left my family and my home country Sweden to live with him. It was so hard for me the first year, but Life was finally turining…

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Added by Malin on August 9, 2014 at 6:00am — 2 Comments

The job interview and the wig!

On Friday I have a job interview, you would think I would be nervous but I'm not well I am but not because its an interview that I'm going to get asked them dreaded interview questions and be worrying that I'm going to slip up and say the wrong things and not be successful. It's because on Friday I'm going to give this wig I've got a go.

I've had it for well over two years now and its been shoved under my bed.. Well after a while of thinking about it, I got it out and gave it some TLC…

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Added by Natasha on August 6, 2014 at 10:30am — 2 Comments

After shaving

Things have been great since I "came out," as it were. I've shaved my head, and retired my wig. I've felt better than I have the past four years. I thought I'd be self-conscious, but the only fear I've felt was in the moments before I hit "post" on the lengthy Facebook status that would tell everyone my secret. That itself was scary enough for a lifetime, and the only way I could do it at all was to blast Frozen's "Let It Go," loudly sing along, and in the perfect adrenaline-fueled moment,…

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Added by Double on August 6, 2014 at 1:19am — 4 Comments

Setback

I was with my family at an amusement park today and while on a roller coaster my wig came off.  I was lucky enough to be able to feel it happen and hold it against my head until the ride ended, but I was so frustrated!  

I don't want to change my life because of AA.  It seems like every time I feel like I have accepted and am ok and even moving ahead something happens that shakes it all up again!  But after going to the bathroom and crying a bit I put my chin up and decided that this…

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Added by Stephanie on August 5, 2014 at 10:00pm — 1 Comment

I just want answers!

Found yet another bald spot yesterday. This one happens to be right above my left ear. My spots are becoming larger and larger and harder to conceal. I hate being so emotional. I was diagnosed with AA but am worried it may be AT. :( My lashes and brows are starting to thin. They say don't stress, but how can I not stress!?! I've already cut my hair shorter than its ever been in my life hoping that the less strain would help it from falling out, but I'm still getting new spots. This is so…

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Added by MamaDavis on August 5, 2014 at 9:30am — 2 Comments

Tomorrow is the day

It has been a while since I have posted on here.  Been dealing with the hair loss in circular patches that sometimes group themselves or just singularly for 7 years.  The last couple of years rewarded me with a patch up front which prompted a severe part on the opposite side to cover it up.  That patch took a very long time to respond to injections and the hair has only grown in white.  Those white hairs accept nothing -- no hair color or henna -- ok, the henna slightly worked but the yellow…

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Added by Georgie on August 4, 2014 at 2:12pm — No Comments

I want my freaking hair back!

Living in with Alopecia has it's good and bad days. For me, it's mostly good thank God. Today and probably the last few days though, I have really been missing my hair. :( I always try to stay positive about it and normally it doesn't bother me idk what's going on.

I just feel like crying about it. I feel like complaining about it. Wigs have seemed extra itchy and hot lately. They can get expensive and I can't always afford them. I sweat in my head mainly and am outside fairly often…

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Added by Marieca on August 1, 2014 at 7:00pm — 7 Comments

How I knew about alopecia , how I knew I had it

when I noticed my first bald spot about 2-3cm behind my bangs was about 2 months ago. Two months after I had my ovaries removed do to severe endomitriosis. I knew I had it because I saw a special on it on 20/20 about a few months before. My hair cutter from when I was little said yup you have it. When I went to a new dermatologist I couldn't belive her when she said it. I was in denial until my head just starting burning all the time ..now i just wear hats to dull the pain,

lights…

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Added by Missellewoods on August 1, 2014 at 9:00am — 2 Comments

Control what you can

So...if control over your hair (are you God?) is your beef, and control is your thing, then find control another way: via the arts, weight loss, make-over, new wardrobe, rearranged furnishings, painted walls, mastery of a garden/career/family/trip/business/education, menu, spiritual path, etc. There are SOOOOOOOOOO many choices in the world and aspects of self possible. I decided to lose 55 pounds. 45 more to go...…

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Added by Tallgirl on August 1, 2014 at 12:00am — 4 Comments

Your presence may mean far more than you think

Recently, a mother whose beautiful young daughter has alopecia said to me, "I always tell my daughter that you are her twin. I tell her when she grows up, she's going to look like you."

The emotions that statement elicited in me were very strong: I was honored and extremely humbled.

Our reach as alopecians is far beyond us. We may be just living our lives and, at the same time, encouraging a neighbor, a person on our morning commute, or perhaps someone we least…

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Added by Cheryl, Co-founder on July 31, 2014 at 12:00pm — 10 Comments

Fluctuating between sinking & drowning

I'm battling a lot at the moment, things that are near and dear to my heart.

There is a lot to take in, but then add my hair falling out and it just all seems too much.

Yesterday I made the leap and returned to the dermatologist.

In 2009 I had my AA treated (with amazing success) with cortisone injections. In 2012, along with a host of natural remedies I returned to the dermatologist, the success was less than amazing…but I always knew that could be the case. I had…

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Added by Overwhelmed on July 30, 2014 at 5:30am — 3 Comments

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