All Blog Posts (5,825)

Rhode Islanders?

anyone live in this state? Im in coventry RI and have never really connected with anyone with Alopecia.....

Added by jeannine on May 7, 2013 at 1:30pm — 1 Comment

Alopecia areata & celiac's disease?

So fairly recently while reading a passage from a gastroenterology textbook, I came across mention of an association between alopecia areata and Celiac's disease. I have had undiagnosed gastrointestinal issues (primarily chronic abdominal pain episodes) and found this interesting. Does anyone here have GI issues as well? Anyone with confirmed diagnosis of Celiac's disease? I just wondered what the actual prevalence of patients with both conditions was.



In my other readings there…

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Added by Sofia on May 7, 2013 at 12:30pm — No Comments

Dating and alopecia

I have had Alopecia for over 20 years, since I was a little girl. So I consider myself a "seasoned veteran" of this disease. For the most part I'm pretty use to it. The unpredictable nature, wearing wigs, the occasional explanation to someone, etc. However, one thing that had always given me anxiety was dating with my alopecia.

I thought that would never be an issue again once I got married, however I find myself back in the dating world and the anxiety is right there with it. Not…

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Added by Dame on May 6, 2013 at 11:30am — 42 Comments

Upper cervical chiropractic treatment

Hi! My 14 year old daughter has had alopecia for 12 years- alopecia universalis for 10. Recently we were told about upper cervical chiropractic treatment. The belief is that the "body has the natural in born ability to maintain health at its optimal level while the body is balanced and there is no interruption in the transmission of brain messages to the body". Yes, that is a direct quote! Anyway, we have started this therapy. I was wondering if anyone else has had heard of it and more…

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Added by Tannt on May 5, 2013 at 10:30pm — 2 Comments

Question

Question for all to answer yay or nay and please answer honestly with all answers and comments...is it a good idea to shave my head to help my teen daughter with her transition with losing all her hair..should I be bald right beside her?

Added by Krystal on May 5, 2013 at 3:30pm — 3 Comments

Middle school and alopecia

How was middle for you dealing with Alopecia? And if children picked on you what would you like to say to them today?

Added by denise anthony on May 4, 2013 at 8:30pm — No Comments

A little about me :)

Well I was born with alopecia totalis. I've been made fun of, called a guy, called names, a lot just because I have no hair. Everyone here actually knows how I feel which makes me feel good. My name is Sam and I'm a girl and I'm 14 years old. It's been hard to go through everything but the one this that we all love...not shaving. :) anyway, just curious to see if there's anyone close to my age that kinda knows what I'm going through. I'm not on the site a lot, but wanted to make a friend or two… Continue

Added by Sam on May 4, 2013 at 5:49pm — 1 Comment

Tonight Show w/Jay Leno makes insulting remarks towards alopecia

Last night on Jay Leno he did a bit about why products at the 99 cent store might be 99 cents. In this segment he shows a "fashion doll", somewhat like a Barbie, and after he opened it, showed why it was only 99 cents. The doll only had long hair around its head and none in the center.

He joked perhaps one could do a comb over ala Donald Trump; the usual yuks.…

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Added by Lili Añel (aka Eulalia) on May 4, 2013 at 2:00pm — 1 Comment

Outrageous alopecia "joke" by Jay Leno on Tonight Show. Anybody else want to write to NBC?

Last night on Jay Leno he did a bit about why products at the 99 cent store might be 99 cents. He showed a "fashion doll", somewhat like a Barbie, and after he opened it, showed why it was only 99 cents.

The doll only had long hair around the outline of its scalp, and was otherwise bald. He joked perhaps one could do a Donald Trump comb over...the usual yuks.

Then he stated "Maybe its an Alopecia doll I don't know".

I found this incredibly insensitive and insulting. I…

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Added by Mary on May 4, 2013 at 2:00pm — 7 Comments

Eyebrows and eyelashes

Hi!
I've had AA since I was six but recently I've started losing hair all over my body, including my eyelashes and eyebrows. You can't really notice that my eyelashes are falling yet, I think, and I use eyeshadow to fill in my eyebrows but I'm scared it's going to get worse and won't know what to do... What do those of you who have no eyebrows or eyelashes do to conceal this hair loss? I would love to get some advice :) Thank you!

Added by CMF on May 2, 2013 at 12:22pm — 14 Comments

The Bald Bride: My Alopecia Story - Part 2

I went to work that fateful morning in a daze. My mind just repeated itself over and over again. “What is going on?” I had no idea where my hair had gone or why it fell out so quickly.

I didn’t see any excessive clumps of hair on my pillow. Didn’t notice any unusual large amounts in the drain after my shower. Although I did note that I had noticed more hair than usual in the drain for the last few months. But with as much hair as I had, I didn’t think anything of it until…

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Added by Rosanna on May 2, 2013 at 2:01am — No Comments

Gripper

ordered my gripper today,,,,,,so excited!going from tape and glue is going to be wonderful.....hope it works

Added by jeannine on May 1, 2013 at 9:30pm — 3 Comments

Calcification

Does anyone else on there have calcification? I just realisedI was diagnosed with this and it is playing up at the same time my AA is x

Added by Jo-Anne on May 1, 2013 at 7:00pm — No Comments

Hair we go again!

Had a really bad day, forgot mobile,sav nav stopped working on way to hospital appointment and after it I couldn't move my right arm, due a procudure of calcification. I stupidly said, God what else is going to go wrong today.....

In the shower washing my hair I got my answer, (after over a year of a full head of hair and was even considering getting another shorter hair cut) I felt that smooth skin feeling you can not mistake!

AA started again!!!! So go out the ice-cream and went…

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Added by Jo-Anne on May 1, 2013 at 6:30pm — No Comments

Alopecian GirlTalk | Weekend w/No Makeup...Milestone

Hi Couture Beauties! I am so excited to share with you what I did over the weekend that is like a major milestone in my Alopecia journey. I faced the world with NO MAKEUP...not one bit except my Vaseline Cocoa Butter Jelly for my lips. I was standing in my bathroom mirror staring at myself wondering & pondering if I wanted to put makeup on or not. I've been real excited about the growth of my eyebrows and being able to shape them...thanks to Simplicity Hair Oil. I've been applying this…

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Added by Nicole on April 29, 2013 at 7:25pm — No Comments

My struggle with alopecia

I'm 17 years old and have had Crohn's Disease since I was 7. 3 years ago I began Remicade infusions and it really turned my life around. This past August, I went for a haircut and then a few weeks after noticed my one sideburn looked like it was cut in half. I thought maybe it was a bad haircut and figured it was nothing, until the rest of the sideburn went away and the hair loss started moving up the one side and then the other side. My doctor sent me for blood tests to check if there was a… Continue

Added by Adam L on April 27, 2013 at 10:00pm — 3 Comments

My story at 19

Well. I'm not sure where to start. Basically I had AA on and off since I was 4 years old. At 12 I finally decided that the PUVA treatments and the high dosage of steroids were breaking me down so I just lost all of my scalp hair and have been bald ever since! Middle and high school were definitely the worst, the kids were beyond horrible. Which had lead to my major self esteem issues, which I'm sure all of us have battled with.



During my junior year in HS I started having major…

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Added by Rita on April 26, 2013 at 3:00pm — 1 Comment

My alopecia story - Part 1

I moved to LA with big dreams and a lot of what I felt at the time was confidence. I was going to be a big screenwriter in Hollywood. I had everything it took to make it. I’m smart. Creative. A hard worker. And it didn’t hurt that I was attractive. I thought I knew that true beauty is found within; however, I really believed that the hotter you look on the outside, the easier it is to get what you want. Especially from men and Hollywood is filled with men. So I moved to LA feeling like the…

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Added by Rosanna on April 26, 2013 at 12:00pm — 2 Comments

Scared...job interview

Hi all, Been awhile since I posted, but finally accepted having no hair only took a year....yeah go me, but now I am looking for a new Job as my Job is being made redundant and I have an interview on Monday but don't know how to address the Alopecia thing my current work place was accepting but the idea of having to make new employers understand is hard, Just wondering does anyone have a booklet or a letter they have attached to there resume's or given out that explains it, something that…

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Added by Cassandra on April 26, 2013 at 6:00am — 13 Comments

Tomorrow I am going to start a new routine

Tomorrow I am going to start a new routine of natural vitamin supplements A-E, a shampoo with zinc, daily scalp massages, rogaine twice a day and yoga and meditation classes because i believe that stress plays a major role in this disease. I so tired of my doctor dismissing every alternative as inconsequencial. It's my hair thats falling out not his. I'm not going to take this lying down anymore! I'm not going down without a fight. I'm naturally high strung and vociferous, so that will be a…

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Added by michael on April 25, 2013 at 11:00pm — 4 Comments

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