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Day 1 - May 8th, 2013 - Discovery...not exactly a "eureka!" moment

Day 1 -  May 8th, 2013 - Discovery...not exactly a "eureka!" moment

 

It was 6:45am, somewhere on Main Rd. in Chance Cove, NL. I was on my way home from work after a long 13hr night, full of formen and craft that are grown men but have no trouble acting like babies! haha!

[Sidetrack]They're a funny bunch though, and always bring me treats. I just wish they would treat me like an Engineer and not their personal secretary,…

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Added by User306 on May 12, 2013 at 9:08pm — No Comments

They say good things happen all at once

For the last two weeks I had seen very small hair growing in my left eyebrow, I didn't believe myself and I didn't even wanted to talk about it to anyone, and now I am seeing hair growing in my right eyebrow also my eyelashes, but so far still there's no progress in my head hair, hopefully it will grow back... And the other thing is that I am scoring high marks in my school, I feel so energetic and very overwhelmed these days... I really hope that we are will have some good news in the very…

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Added by Yuri Kim on May 12, 2013 at 5:30pm — 6 Comments

Self-image

I hate the way I look sometimes. I look in the mirror and think ugly. I do wear a wig, and I can't decide if it is the alopecia that is indirectly making me feel bad, or just a natural female thing to do. I sometimes see myself in my wig and think I look like someone in drag, I don't know if I see the wig for what it is, fake, but I see beyond the wig and look at my face and hate it... 

I look at my body and this is something I can control yet I seem out of control and just see myself…

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Added by KFlame on May 11, 2013 at 6:00pm — 11 Comments

Hard times

Well i have not been on here for a while. Nor have i made one of these for a long time. So lets just start by saying if you do not want to be depressed or feel bad then you might not want to read this. There are many things in one's life that people cant change and Alopecia is one of them. Many people on this site find happiness. Many people on other sites find happiness. What happened to me wasn't because of this site. Ever since i was a kid i had Alopecia. Doctors told my parents that my…

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Added by T on May 11, 2013 at 3:30pm — 10 Comments

What to say to others

Granddaughter is having a hard time when other people come to her and tell her they are sorry that she is going though cancer.  She also had a lady come up to her and say to her "isn't that a wig?" And then she pulled it off her head.  It was in a mall!  This devastated my 11 yr old gd and she left the mall.

 

What would you do?

Added by grandma concerns on May 11, 2013 at 12:22pm — 14 Comments

Other medical issues

I find that over the last few years I am suffering oddish medical issues. It seems after I push myself a bit, the next day I'm tired. That is pretty normal.,,, but, I find that my blood feels like it's boiling. I can't pin point to what is going on, but find it's an all over malaise. I've had alopecia for 43 yrs, mostly universalis, and do know my average body temperature is 95. and I have seen it 94. Because I"m still menopausal, the hot flashes begin to come, and it appears it's fed by the…

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Added by willow on May 11, 2013 at 10:33am — 3 Comments

I don't know why my mother thinks I am making her suffer

Everytime I talk to mom about my state, she goes like "why are doing this to me? Why are you making me suffer so bad?" But I am not making her suffer, I just don't know why is she thinking like this, ever since my father had died two years ago, she started acting so nervous and putting blame on me having this disease... She has this weird thought that I am making my hair fall on purpose to get her attention and to make her suffer. I just don't see the point in this, instead of feeling less…

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Added by Yuri Kim on May 8, 2013 at 5:00am — 19 Comments

I had these grand plans to get my hair to grow and I have failed at it

I had these grand plans to get my hair to grow and I have failed at it.I've watched as these spots have roamed around to different areas. Now \\I'm beginning to see patches on legs and on my arms. Iguess I just have to accept this. My depression in not complete and i have left work, not wanting to venture out of my home.people hear have been so cruel.What do we have left? what do i have left anymore? I am such pit of depression that i acnt get myself out of.

Added by michael on May 8, 2013 at 1:00am — 4 Comments

Going out bald

Today was the first day that I ventured out without a hat or wig. Enjoyed wandering through our local garden store and gift shop and then dining at a Mexican restaurant. I received the courage to do this after reading "Boldly Bald Women" by Pam Fitros. Although I have suffered with Alopecia Areata for many years, I only recently lost all my hair to AU. It has been a tough adjustment but have had wonderful encouragement from family and friends.

New to Alopecia World, but thankful for…

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Added by Janet on May 8, 2013 at 12:30am — 6 Comments

Rhode Islanders?

anyone live in this state? Im in coventry RI and have never really connected with anyone with Alopecia.....

Added by jeannine on May 7, 2013 at 1:30pm — 1 Comment

Alopecia areata & celiac's disease?

So fairly recently while reading a passage from a gastroenterology textbook, I came across mention of an association between alopecia areata and Celiac's disease. I have had undiagnosed gastrointestinal issues (primarily chronic abdominal pain episodes) and found this interesting. Does anyone here have GI issues as well? Anyone with confirmed diagnosis of Celiac's disease? I just wondered what the actual prevalence of patients with both conditions was.



In my other readings there…

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Added by Sofia on May 7, 2013 at 12:30pm — No Comments

Dating and alopecia

I have had Alopecia for over 20 years, since I was a little girl. So I consider myself a "seasoned veteran" of this disease. For the most part I'm pretty use to it. The unpredictable nature, wearing wigs, the occasional explanation to someone, etc. However, one thing that had always given me anxiety was dating with my alopecia.

I thought that would never be an issue again once I got married, however I find myself back in the dating world and the anxiety is right there with it. Not…

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Added by Dame on May 6, 2013 at 11:30am — 42 Comments

Upper cervical chiropractic treatment

Hi! My 14 year old daughter has had alopecia for 12 years- alopecia universalis for 10. Recently we were told about upper cervical chiropractic treatment. The belief is that the "body has the natural in born ability to maintain health at its optimal level while the body is balanced and there is no interruption in the transmission of brain messages to the body". Yes, that is a direct quote! Anyway, we have started this therapy. I was wondering if anyone else has had heard of it and more…

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Added by Tannt on May 5, 2013 at 10:30pm — 2 Comments

Question

Question for all to answer yay or nay and please answer honestly with all answers and comments...is it a good idea to shave my head to help my teen daughter with her transition with losing all her hair..should I be bald right beside her?

Added by Krystal on May 5, 2013 at 3:30pm — 3 Comments

Middle school and alopecia

How was middle for you dealing with Alopecia? And if children picked on you what would you like to say to them today?

Added by denise anthony on May 4, 2013 at 8:30pm — No Comments

A little about me :)

Well I was born with alopecia totalis. I've been made fun of, called a guy, called names, a lot just because I have no hair. Everyone here actually knows how I feel which makes me feel good. My name is Sam and I'm a girl and I'm 14 years old. It's been hard to go through everything but the one this that we all love...not shaving. :) anyway, just curious to see if there's anyone close to my age that kinda knows what I'm going through. I'm not on the site a lot, but wanted to make a friend or two… Continue

Added by Sam on May 4, 2013 at 5:49pm — 1 Comment

Tonight Show w/Jay Leno makes insulting remarks towards alopecia

Last night on Jay Leno he did a bit about why products at the 99 cent store might be 99 cents. In this segment he shows a "fashion doll", somewhat like a Barbie, and after he opened it, showed why it was only 99 cents. The doll only had long hair around its head and none in the center.

He joked perhaps one could do a comb over ala Donald Trump; the usual yuks.…

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Added by Lili Añel (aka Eulalia) on May 4, 2013 at 2:00pm — 1 Comment

Outrageous alopecia "joke" by Jay Leno on Tonight Show. Anybody else want to write to NBC?

Last night on Jay Leno he did a bit about why products at the 99 cent store might be 99 cents. He showed a "fashion doll", somewhat like a Barbie, and after he opened it, showed why it was only 99 cents.

The doll only had long hair around the outline of its scalp, and was otherwise bald. He joked perhaps one could do a Donald Trump comb over...the usual yuks.

Then he stated "Maybe its an Alopecia doll I don't know".

I found this incredibly insensitive and insulting. I…

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Added by Mary on May 4, 2013 at 2:00pm — 7 Comments

Eyebrows and eyelashes

Hi!
I've had AA since I was six but recently I've started losing hair all over my body, including my eyelashes and eyebrows. You can't really notice that my eyelashes are falling yet, I think, and I use eyeshadow to fill in my eyebrows but I'm scared it's going to get worse and won't know what to do... What do those of you who have no eyebrows or eyelashes do to conceal this hair loss? I would love to get some advice :) Thank you!

Added by CMF on May 2, 2013 at 12:22pm — 14 Comments

The Bald Bride: My Alopecia Story - Part 2

I went to work that fateful morning in a daze. My mind just repeated itself over and over again. “What is going on?” I had no idea where my hair had gone or why it fell out so quickly.

I didn’t see any excessive clumps of hair on my pillow. Didn’t notice any unusual large amounts in the drain after my shower. Although I did note that I had noticed more hair than usual in the drain for the last few months. But with as much hair as I had, I didn’t think anything of it until…

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Added by Rosanna on May 2, 2013 at 2:01am — No Comments

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