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So miserable!

Hi guys, I have been trying to focus on school rather than on my hair seeing as finals are right around the corner...I am absolutely miserable about my hair, I think I have been in a state of denial for quite some time now...I am not sure I can find my way with this...I fly off the handle to friends and family without even wanting to and feel bad afterwards..I know there is nothing in this world they can do to help me, but I dont even know what I wanna hear anymore, I mean words that will even… Continue

Added by Trish on November 17, 2010 at 5:30pm — 15 Comments

Wish I knew what was wrong with my hair

Ever since I had my second child in 2001 I have told my family and doctors that my hair is thinner on the right side. It is a lot thinner around the hair line on that side. My family and doctor always told me that my hair was fine and I was imagining things. Well this summer I went through a little shedding period. Of course the shedding was mainly from the right side. How strange. Anyway I went to a derm who said that the hair was thinner on that side but it wasn' t bad. She said it was… Continue

Added by Kristi Kelly on November 16, 2010 at 10:51pm — 2 Comments

When do I know it's time to give up?

For the pas 2 years I have been getting the very painful kenalog steroid injections so that y hair can grow back. I have not lost all my hair just yet and I have been told by my doctor and his staff that I am one of the many lucky people who have this disease that still have this amount of hair. I have tried wearing wigs, at home treatments, taking vitamins, cutting my hair shorter to give it more volume and so on..... At time I wish that all my hair will finally fall out so I can finally… Continue

Added by ENEDID CASTILLO on November 16, 2010 at 7:37pm — 2 Comments

"I like that hair cut"

So I know a lot of you get the cancer question a lot, but I keep getting the "I love your hair cut" and "wow, I would NEVER be that bold to cut off all my hair!" Well my hair was down to the middle of my back not too long ago, and if it was up to me, I wouldnt have this hair cut! A delivery driver just came to my work, NEVER seen him in my life, and the first thing he says is, "Hey...I like the hair cut". I guess I should feel good that people actually like me looking like Sinead O'Conner with… Continue

Added by Tamara on November 15, 2010 at 2:16pm — 13 Comments

Faking it

In August I was admitted into the hospital because my blood pressure was through the roof, while in the hospital my head began to itch uncontrollably in the same spot and I noticed that my hair was shedding all over my pillow. I did not think anything of it and until I noticed that my hair had fallen out in that same spot it was itching in all the way down to the scalp. Since then the hair in the top of my head has started to fall out and it constantly itches. I have never in my life been so… Continue

Added by LaShonda Brown on November 15, 2010 at 12:00pm — 5 Comments

About to crawl outta my skin!

I am not doing well at all. I woke up an hour ago because of my RLS (Restless Leg Syndrome), my legs twitching and moving. I can't sleep, & I am so exhausted. My nerves have felt like they are crawling all over me! I have been on medications for depression, anxiety, & panic disorder for some 16 years. I can't remember the last time I felt good. Started out a month ago with allergies to a cat, & the anxiety of helping out a young lady that ended up living in my home with her… Continue

Added by Diana Carter on November 15, 2010 at 8:45am — 6 Comments

Exposure

Okay. I tried it. I went to poetry potluck/reading today with safe church people at a private home and, fortified with Bravery Juice, read my 10-stanza poem (which I wrote during the church service...shhh) about coming out with my bald head. I took the wig off at stanza #5. Applause came at the end, but, surprisingly, there were no questions from the uninformed few about what condition I even HAVE! I kept the wig off, and the rest of the readings just went on with no hoopla.… Continue

Added by Tallgirl on November 15, 2010 at 1:00am — 6 Comments

"Mom, can I get this hair brush for my birthday?"

So it's been about 3 months since I first noticed my daughter's hair coming out/thinning. Her pony tail is getting higher and higher. It now begins about 4" above the nape of her neck and about 2" above her ears on both sides. Dr. said it is probably good that she wears a pony tail and a hair band every day or she'd probably be pulling from the top of her head too. Right now if she wears her hair down you can't really tell that there's hair missing. I think trich is so interesting...the pulling… Continue

Added by Sandi Walmsley on November 14, 2010 at 2:16pm — 6 Comments

Hair regrowth

so since having my baby eric who is now 3 months old! my hair has been growing really well. i shaved it a few times to get it to grow in more evenly. i probably should have just left it.



i am now taking silica and some vitamins that were on that show today tonight just to see if that makes it grow better or helps it to grow.



i'm wanting it to all come back or not at all. i find it easy to wear a wig. i have never had so much hope before though. it has never grown back even… Continue

Added by Alison on November 14, 2010 at 6:38am — 7 Comments

I'm free!

I went out today since 630 am and wore my half wig all day long even slept in it for a few hrs ..The whole time I kept thinking is it moving? Can you tell? Why is she looking at my hair???? I hope no one see the big spot I have above my ear thats creeping up towards my face..It was sooooo uncomfortable!.When I finally got home at 1 am I took it off and said Uhhhhh Im free!!! This is the first time I ever said this to myself!!! It felt sooooo good to not have that thing pulling at my hair and… Continue

Added by Aliennation on November 14, 2010 at 3:18am — 3 Comments

My first alopecia meeting

WOW!! What a blessing! My first meeting was today, and it was amazing! I got to meet lots of new friends, and there were Alopecians there from children to adults. Our guest speaker was Tracey Casey-Arnold, an Alopecian for 36 years, since the age of 6, who has her own business called Whatever It Takes. She recommended a book to us called 3 seconds, and spoke of how it takes 3 seconds to fuel your passion. We need to all find what our great passion is, and to embrace it! We can all change… Continue

Added by Diana Carter on November 14, 2010 at 12:03am — 8 Comments

Encouragement to some special friends

To all my friends here on AW, but a special shout out to Kimberly & Trish...because we started this journey together, and we are in this together. I just wanted to send special encouragement.



So many others I could mention, I love you all! I hope that you can view the song here, cause I don't know how to post it to my music section :( Thanks to you ALL.



I am hoping you can open the link from here to hear the words.… Continue

Added by Diana Carter on November 12, 2010 at 2:41am — 8 Comments

First thing first

I am soooooooooooooooooooooooooooooo happy that this site is a part of my world now! What a blessing! What a beautiful, beautiful blessinng! To know that there are so many people I share a story with is DIVINE :) .



Before I came across this site I thought I was gonna have to battle this one out alone in my room. It is so crazy and sad to think that I didn't believe there was anyone who would be able to understand what I was going through-- CUH-RAZY! But this site has showed me the… Continue

Added by C. Nicole on November 11, 2010 at 8:55pm — 7 Comments

Thank you for accepting me with no questions asked

I have always been and always will be that person who has never fit in or found my place in life. I have always felt like a outsider no matter where I am. Never felt comfortable in my own skin. I had a BAD day today and have been crying off and on for several hours, for once I wasn't crying becasue I have AA. But I know I can come to Alopecia World and no one cares that I am a size 14 and most of all no one cares if I have bald spots. Thank you for being here when I need a shoulder to cry on.

Added by Kimberly Duncan on November 11, 2010 at 6:54pm — 9 Comments

Badge of accomplishment = priceless

I wanted to share with my AW family my day today.

Today I went swimming at the leisure center for the first in 10 years !! (ever since my alopecia made me very self conscience) As I was walking into the change rooms I could feel the anxiety rising up and as I was making my way thru the showers to the pool area the anxiety was cresting high. But as I entered the water I started to calm down. The pool was very quiet, mostly seniors, as it was the middle of the afternoon. I let the water wash… Continue

Added by Bald and Fabulous AKA Terri on November 10, 2010 at 8:35pm — 11 Comments

Hair!

I recently noticed that i actually have a lot of regrowth on my head and eyelashes. BUT. The hair is white or light blonde. I dont really know what this means. Any feedback?

Added by Rachel Rei on November 10, 2010 at 2:04pm — 8 Comments

I stood up for me!

I recently posted a photo of myself without a hairpiece on my FACEBOOK! The Caption read as follows:

"I am tired of hiding. Some of you know this, some don't... I have Alopecia Universalis. An autoimmune disease involving rapid loss of all hair, including eyebrows and eyelashes. It is the most severe form of alopecia areata, with an incidence of .001% (1 in 100,000). Alopecia Universalis may be acute and short-lived or remain permanently. There is no known cause or cure. I have had this… Continue

Added by lyndsey tolson on November 10, 2010 at 2:30am — 7 Comments

Pregnant ; )

Pregnant with AU! It was a surprise...we were planning on getting married first, but are happy regardless! Hope my baby has hair!!

Added by Lee on November 9, 2010 at 1:24am — 15 Comments

Why are you staring? You've never seen a pink elephant before?

Okay, on Laura's discussion "Is it time to shave?", Mary said this:



"I finally realized that I had a choice between suffering physically (being miserable and hot) or suffering emotionally/mentally (people staring, not able to be anonymous)."



I immediately keyed in on "suffering emotionally/mentally (people staring, not able to be anonymous)" because I was having this EXACT argument with myself last week. (Yes, I do argue with myself. I've been told that as… Continue

Added by Angie P on November 9, 2010 at 12:21am — 13 Comments

Grad cap

I forgot to mention this.. but at my high school graduation I didn't wear my grad cap. Everyone had to bobby-pin theirs to their hair and my principal told me to hold mine on my head. I laughed and walked across the stage without it on. I held it in my hand. First person in the history of Riverview High School to do it!

Added by Erika Vincent on November 8, 2010 at 7:32pm — 4 Comments

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