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BIG GIANT STEP

Well tonight I took the plunge and grab the clippers. After my mom and I went wig shopping and wearing it all day, I got home and took it off and looked in the mirror and decided enough is enough. I cant continue to see myself in a negative light. So when I went to the barn to do the night feed for the horses, I grabbed the clippers. I was shocked to see how much hair I actually have lost from the alopecia and it definitely brought to light how much I was hurting myself by trying desperately to… Continue

Added by Bald and Fabulous AKA Terri on September 3, 2010 at 11:56pm — 3 Comments

The old lady in Walgreens

Today I went into walgreens & was headed to the bathroom when I met this old lady . The bathroom door is locked where you have to have a code to get in . ( which I think is stupid , especially when you feel like you're going to pee your pants . lol ) But anyways , I met her & she didn't know how to get in , so I went and got the code . We got in ( this sounds like some kind of top- secret mission . ) & we were talking and when I was getting ready to leave , she asked me if I was… Continue

Added by Mackenzie on September 3, 2010 at 11:30pm — 5 Comments

Life in the bald lane

Well, it's been a while since I've shaved and I've been out about it for most of that time (can't wear wigs in this heat!!). Mostly I'm just bald (I only wear hats/bandannas when I'm in the sun or I'm cold). Friends and family have been supportive and wonderful, but I keep having dreams about my hair falling out, or my wig having no hair... stuff like that - I suppose I'm grieving subconsciously... for the loss of my hair, and the feeling that no matter how good I might look otherwise,… Continue

Added by Amy on September 3, 2010 at 8:57am — 8 Comments

Shaved my head!

So I was going to wait until saturday, but last night I was in the bathroom brushing my hair and a HUGE glob fell out. I just couldnt deal with it anymore. So I grabbed the clippers, and now Im bald!! My mom came and helped me with it, to make sure I didnt miss anything. When it was all gone, I couldnt help but smile! I havent cried once and I dont think I will. Im more than OK with the fact that Im bald! Jeremy (my boyfriend) shaved his head last night too, so I cant wait till he gets here… Continue

Added by Tamara on September 3, 2010 at 8:14am — 9 Comments

Afraid

So... I can admit to myself and will now admit to someone else, that my focus on the treatment, triggers, diet for my daughter is in part, just a way for me to push the emotion out of it. As I sit here by myself with the rest of the family in bed, I feel so stupid for crying but lately, I can't make the feeling go away. I don't want to mess it up. I really don't.



I'm just so afraid. Afraid that my unconditional love won't be enough. Afraid that I'm going to do the wrong thing or say… Continue

Added by Cari on September 2, 2010 at 12:07am — 3 Comments

Hair today - gone tomorrow!

Well, ALL of Troy's hair has grown back in! Next problem? Well everybody has to comment -reinforcing that hair is SO important. It is always nice to give a compliment-dont get me wrong. But some people just dont get it and go "over the top" gushing about his regrowth. You think they would learn after watching the cycle. They have seen it time and again but, still they treat him like he has done "something good, or amazing" by growing his hair back-somehting he has no control over- so when his… Continue

Added by Tanya Reid on September 1, 2010 at 10:53pm — 8 Comments

Comfort

Even if we each feel like the odd duck out sometimes, we must admit that there are places, people and situations we love that make us forget we even HAVE alopecia. Family cabin around the fire? Reunion at an old favorite hang-out with familiar childhood pals? Coming home to a cozy evening with music known-by-heart, and singing like on stage? Sleeping in and then yakking on the phone Saturday morning? Coffee shop with newspaper? Eating homemade pies with aunts? Fess up. Where, what, whom is HOME… Continue

Added by Tallgirl on September 1, 2010 at 9:58pm — 4 Comments

I want to get a new tattoo

I was thinking about getting a new tattoo, something about this new phase in my life. I have come up with, Bald and Beautiful Woman in Italian, Donna Calva e Bella. Now to decide where I want it placed.

Added by Julia S on September 1, 2010 at 5:23pm — 5 Comments

Alopecia Awareness Month

I did it... I posted a status on my Facebook telling every one of my friends on there that I have Alopecia. It said:



"In support of Alopecia Awareness Month, I am coming forward to say that I have a form of Alopecia. I want to spread awareness about this as much as I can. maybe one day when another young girl gets diagnosed, she will know she isn't alone. I'd like to say thank you to the people close to me who have given me support over the years! Thank you to the women that have… Continue

Added by Alliegator on September 1, 2010 at 2:23pm — 12 Comments

Big steps and baby steps

Well I feel like Im doing abit of a dance step lately. This week I have an appointment to buy a wig, but still hesitant about shaving what is left of my hair. I know I cant continue watching my hair fall out, and clean it up off the floor and toss it in the garbage. Next week I have my appointment for the tatt that Im getting on the back of my neck. Something that I have been thinking about for so long and excited about getting. Even tho I know there will be no hiding it and it will definitely… Continue

Added by Bald and Fabulous AKA Terri on August 31, 2010 at 12:15pm — 5 Comments

Clean shaven and loving it

So my husband shaved my head with clippers on Sunday afternoon. It was the best feeling ever. Showering is easier that is for sure. I even went out without a scarf or hat on in front of people I didnt know and actually held my head high. I wore my scarf to work yesterday but ended up taking it off and leaving it off most of the day. I decided that I didnt like the "velcro head" feeling anymore so I busted out the shaving cream and razor last night, this is the best feeling yet. I love the… Continue

Added by Julia S on August 31, 2010 at 11:38am — 7 Comments

Excited, nervous, happy, AHH!

The hairloss has gotten a lot worse since those pictures on my profile were taken, and Ive lost half my left eyebrow and a huge chunk on my right eyebrow. My hairloss on my head has been SO itchy. I've been thinking about shaving my head for almost a month now, and I have been talking about it with my mom, step dad Rick, and my boyfriend, Jeremy. Took a while for my mom and Rick, but they are finally understanding my feelings towards my hair. My boyfriend is the most amazing guy ever and has… Continue

Added by Tamara on August 31, 2010 at 9:53am — 6 Comments

Tranquility

Life seems to be moving in a good direction right now. Its weird i must admit, i am happy. I havent been truly happy in a looong time, and im scared. Scared that it will all just leave me, leave me empty like it has always done in the past.

In the last week i have told quite a few more people about my alopecia. i was at a party in the weekend and a guy asked me what was under the scarf wrapped around my head, and i told him nothing, im bald, and felt fine telling the truth.

I feel… Continue

Added by Mjay on August 31, 2010 at 2:35am — 4 Comments

Wow!

For the first time since my diagnosis three years ago, I actually met someone face to face with Alopecia. All I have ever known and spoken with are the great people on here. My friends on this site talked me off a ledge at the very beginning...but I digress.



I was busy running around coordinating an Entertainment event here in my city on the weekend and the member of a band getting ready to perform approached me and said, "So how long have you had Alopecia?" I stopped dead in my…

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Added by Mike on August 31, 2010 at 12:30am — 3 Comments

What more can Alopecia World do for you?

Alopecia World is pleased to serve your online support and networking needs.

However, we are always interested in learning how our beloved community might better serve you.

Therefore, please let us know the following as soon as possible:

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Added by Alopecia World on August 30, 2010 at 10:30pm — 1 Comment

First time I've lost it in response to the cancer question

I'm feeling guilty today because of something I did last night. I was at an outdoor concert, wearing one of my Turkish scarves because it was cool.



A pleasant woman about my age was introduced to me by mutual friends. The FIRST words out of her mouth were: "I was where you are." Instead of responding with my usual "Oh, I don't have cancer, I have alopecia areata, etc..." I calmly said: "And where do you think I am?"



She was a little taken aback, and said that she assumed I… Continue

Added by Mary on August 30, 2010 at 7:25pm — 18 Comments

All I want is acceptance

As I reported last week, my alopecia areata is very active right now and I am developing a new spot. I am finally reaching a place of acceptance and peace after a day or two of full-on freaking out and frantic doctor's visits. I realize that this is just something I will face for the rest of my life.



I had to slow down this week and realize that my family and friends are not at the same point of acceptance of my alopecia. When I told my mom and dad about my new spot, they were quick… Continue

Added by Emily B on August 29, 2010 at 10:44pm — 7 Comments

Hair!

So lately my hair has been growing back as you may have read in one of my previous blogs, and it's been getting better and better. I hadn't really paid so much attention to my hair when it was growing back at first (not so much that I was obsessed with growing it back), but lately I have been paying more attention to it because now I can visibly keep track on the regrowth, and that's fun!

I have a hair-line again at the front of my head again, and I've produced myself a milimetered mohawk.… Continue

Added by Lionel on August 29, 2010 at 11:35am — 1 Comment

I was this close (pretend you see my fingers)

Well I had decided that I was going to shave my head tonight and well it didnt happen. My hubby was supportive but now is questioning why I want to do it now. I still have some hair and he thinks it covers the big spots. I just want to feel whole again, I feel like with more than half of my hair gone that I'm lost and it sucks. I have worn my scarves for the past 3 days and feel completely comfortable in them so that isnt the problem. I guess I'm just having a bad night, ugh. Good night AW.

Added by Julia S on August 28, 2010 at 10:38pm — 5 Comments

I truly believe I will never have hair and it is OK

Tonight I was sitting here, reading some other posts by people, talking about differnt treatments, talking about bits of hair sprouting back, talking about possibilities. And for me it is never like that, I truly don't expect my hair to ever grow back. I guess after 10 yeas I just can't see it happening. I've become so accustomed to it that I don't even think about that part. I rarely even think about the part where i don't have hair to start with.

When i first lost my hair it ll came out… Continue

Added by Erin on August 28, 2010 at 7:42pm — 5 Comments

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