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Invent Yourself

Each of us has that right, that possibility, to invent ourselves daily. If a person does not invent herself, she will be invented. So, to be bodacious enough to invent ourselves is wise.

-- Maya Angelou

Hello All, this is my first blog on AW. Just wanted to share this quote that a friend sent to me after seeing me without hair for the first time. I found it to be so appropriate and inspiring. From the moment that we take off our wigs and step outside we invent a new us. It's important… Continue

Added by Joye Pressley on July 19, 2010 at 11:43pm — 2 Comments

Almost there

My family is so supportive about my AU, and they always encourage me to do what I feel is best for me. It was ok when I asked for a human hair wig, it was ok when I just wanted to go without any hair, and it was ok to them when I went through the stage of not letting anyone seeing me bald. It almost seems like when I'm walking around the house without any hair, I get more attention. Mom always looks at me like showing people I'm bald is me being brave, so I get more praise from her. When I have… Continue

Added by Ellison Jane on July 19, 2010 at 5:08pm — 3 Comments

I'm still having a pretty rough time

So this is my first blog entry.

About 50% of my hair fell out in the begining of 2009, so by July I shaved my head and went to a dermatologist. Alopecia areata. I had two rounds of steroid shots done and my hair began to grow back ! I was thrilled, and I thought that was the end of that. In March it began to thin again, but this time it was much worse. On a side note, I can't explain it, but before the clumps even started falling out, I could feel in my scalp that it was going to happen.… Continue

Added by Ellen Chinery on July 19, 2010 at 4:48pm — 5 Comments

Not so bald anymore

Hello all,



It's been a while since my last blog post so I thought I'd give you another update.

And it's not just any update, no no no... It's an update about my hair.

'Huh, hair?' you may think but yes you read 'hair' allright.



So lately I've been doing my best to push some hair out of my head, and I've done well.

For the last couple of weeks more and more hair has been growing back, and I'm pretty excited about it actually. Well, I don't think it's strange… Continue

Added by Lionel on July 19, 2010 at 3:00pm — 7 Comments

Pretty Woman?

Last night one of my guy friends came over to my apartment. His best friend, I will call him Mike, actually lives in the same apartment complex as me in the building next to mine. On Saturday, I saw Mike and said hi. I was wearing my blonde wig at that time. Then, on Sunday, I drove by Mike while he was walking in the parking lot and waved. I was wearing my brownish wig. When my friend came over, I asked him if Mike knows that I wear wigs. He said yes and that Mike may look dumb but he is not… Continue

Added by Alliegator on July 19, 2010 at 10:15am — 9 Comments

Keep the faith

ive had alopecia long time now... but ive always kept faith bout it comin back,, last couple of years now ive been keepin fit. takin zinc, magnesium.ginseng. headhigh tablets. and quail eggs. i reckon theses should help every1 wit it,,protein is vey imporntant in hair growth. lots of tuna and salmon.u must keep takin all of these everyday.. myself i think quail eggs ave made a serious diff towards my hair comin back. 5 every morning raw 2 start ur day.google bout quail eggs read up bout dem… Continue

Added by jay wilson on July 19, 2010 at 6:08am — 1 Comment

Cyclosporine?

Has anyone ever been prescribed the drug called Cyclosporine? If so did you have any side effects or did you get sick?

Added by Jeannie Terrel on July 18, 2010 at 11:50pm — 4 Comments

Sulfasalazine

So I am going on month 2 with the Sulfasalazine with no side affects and good blood work. I have had some positive signs and some hair growth and recently they bumped me up to 1.5 grams a day from 1.

If this doesnt work its on to CellCept. Anyone heard of this or any good results?

Additionally, has anyone done anything other than the steroid shots to help with eyebrow growth?

Added by Eric Dane Mattson on July 18, 2010 at 10:08pm — 1 Comment

Feeling slightly "down in the dumps"

Ok, so I don't get to get on here much but I've been feeling slightly "down in the dumps" lately about wearing a wig. I have a huge family thats predominantly females. All of them have beautiful full set of hair. When I don't have my wig on I wear a scarf or turbin around the house. Today I felt very sad after watching my mom style her hair. She was mentioning how much better she felt and how having her hair styled brightens her day. She then looked at me and mentioned how I looked like a… Continue

Added by Jessi on July 18, 2010 at 8:20pm — 5 Comments

Bald spots

They've been getting bigger and bigger, until finally I can't ignore them anymore.

The worst one lately is the one at the center of my head.



I used to pull my hair out, (I've been able to stop for quite some time)

But now it's coming out on its own, could it be that all the years of pulling have finally killed my roots?

What do you guys think?

~Kayla Little…

Continue

Added by Kayla on July 18, 2010 at 6:02pm — 6 Comments

Bald and Beautiful...I don't see it...why can't I see it?

I look in the mirror and see an alien..I definitely do not see beauty. I work at a local speedway in the Budweiser booth serving beer (as a part time gig) and I hear all night how pretty I am. I come home, peel my hair off and say "what a fraud".

Added by Lynn on July 18, 2010 at 2:13pm — 11 Comments

8 year old daughter has alopecia & allergies - please help!

My 8 year old daughter was diagnosed with Alopecia Areata a year ago and had a single bald spot. This past April she had another bald spot appear and we used the topical steroid to help it grow back. Recently after a vacation we came home and all of her hair started coming out - obviously we were horrified. We were told there is nothing that can be done but the more i reserach the more i see things in common with other children her age. She has allergies and asthma. We've given her 24 hour… Continue

Added by Kevin K on July 18, 2010 at 8:50am — 9 Comments

Losing it

Hey all I've had alopecia areata since september 09 and ive had it twice before that. However this is the worst its ever been. In that short time ive had two large patches go bald and slowly grow back, but the regrowth is very thin unlike other times its grown back thin then got thick really quickly anyone else experience this? As those 2 patches are growing back another patch got large really quickly on the other side of my head getting harder to cover up each day and shedding tons of hair.… Continue

Added by tim on July 18, 2010 at 7:37am — 1 Comment

Beautifully Baldacious

Walking into school with a wig was not exactly what I had in mind when I found out I had Alopecia...that is until I lost all my hair and had a choice between the wig, and going bald. My school is filled with 800 judgmental little twits that would love to shoot you down if you show the slightest hint that you have a weakness, so I guess thats why I thought the best choice was to have a wig. The wig I got was ordered online (big mistake) and it turned out to look extremely unnatural. Walking in… Continue

Added by Ellison Jane on July 17, 2010 at 4:25pm — 3 Comments

A day of firsts

IAD Brochure 1.pdf





Today seems like a good day for firsts for me. Today is my first attempt at blogging! It is my first celebration of International Alopecia Day. It is the first day I will meet others in my area who are fellow alopecians. And it is the first day that I will live life…

Continue

Added by Pam Hagler on July 17, 2010 at 11:00am — 6 Comments

Skin to the wind - or, I shaved my head!

I DID IT!!! I got my hair buzzed! At least right now, I am so happy I did it!!! I don't know how I'll feel when I see myself tomorrow morning, but we'll see when we get there. I cleaned up all of my hair around the house, knowing that I wouldn't have to face doing it again day after day, and I put moisturizer on my head (which was blissfull)! I also can't stop petting my head! Thanks for reading my happy bald ramble, I'm just so relieved that I'm not weeping! :)

Added by Amy on July 16, 2010 at 3:01pm — 4 Comments

Dad told me not to go out in public bald

I have been living at home with my parents for the last five months before I start grad school. Since then I have always worn a wig around the house (I have been wearing a wig for almost 2 years now). I had never gone out in public without a wig until attending the NAAF conference a few weeks ago in Indianapolis - which was also my first time meeting anyone else with Alopecia. My parents have always been supportive for the most part - when my hair started really falling out they found a wig… Continue

Added by Margarita on July 16, 2010 at 2:18am — 16 Comments

Vegetarian new to Alopecia World (and the world of alopecia)

Hi,

I'm Amy, and I'm new to Alopecia World (and the World of Alopecia). I started losing hair about a month and a half ago, got tested for everything ever, and was told that either it's a (really unlikely) reaction to my immunosuppressant (which I was on for eczema), or just plain ol' alopecia. So about two weeks ago my body upped the ante to include my eyebrows (ugh), lip (good news!), and legs (better news!). It's freaky, and it doesn't seem quite real yet (even as I sit at work wearing… Continue

Added by Amy on July 15, 2010 at 8:32pm — 4 Comments

Stupid bald spots

This is honestly getting ridiculous. I had ONE spot a month ago, now I have all whole bunch. The worst is the HUGE one right on the top of my head, right in the middle. I just spent like 10 minutes in the bathroom trying to make my hair go over it, but instead its falling out in my hands, and whats not, wants to go to the sides. I hate the idea of people at work walking behind me, because they can see this HUGE spot, that isnt round anymore..but now creeping down the left side of the back of my… Continue

Added by Tamara on July 15, 2010 at 2:21pm — 10 Comments

Go Wigs!

Every once in a while I will get a compliment on my "hair" from a stranger. Yesterday a woman said "I love your hair". I just smiled and said thank you. It is nice to get random compliments from strangers... it reminds me that it isn't obvious to everyone that I am wearing a wig. Also, I used to never get compliments on my hair from strangers especially when it became really thin so this is a nice change.



The other weekend I went to a party. I was getting myself a drink and a woman… Continue

Added by Alliegator on July 15, 2010 at 2:11pm — 15 Comments

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