January 2013 Blog Posts (47)

Regrowth

It seems that every morning when I look in the mirror I have more hair growing even my friends can see it now and they comment on Your hair is growing at first I thought it was just what I wanted to see but others seeing it confirms it is coming back. Long road yet though. It is white like Santa clause fingers crossed it keeps coming back.

Added by Annette on January 18, 2013 at 4:20pm — No Comments

My story of alopecia universalis

I was born with my disease Alopecia Universalis a hairloss disease that removes every hair from the body, causing complete permanent baldness, through the grace of God himself I somehow survived my declining spiral to oblivion. The main reason for it was due to the fact that I was three months premature, as I've said without God I wouldn't be here. I needed something to fight death and my disease boosts my immune system to fight off hair follicles so that explains why I was able to survive,…

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Added by Lushiro Shikari on January 17, 2013 at 5:00pm — No Comments

Just joined Alopecia World

Hello. I feel so happy to have found this site. My Androgenic Alopecia is worsening to the point I went to a wig shop today. I am scared and feel so alone. Looking for advice and struggling with acceptance.

Added by Missy on January 16, 2013 at 4:30pm — 12 Comments

Five years already?

I lost all of my hair shortly before my first year of high school and now, here I am today with short hair. Sure, it is falling out again but who would have thought that after four years of treatment with no results that without anything, hair would grow? It amazes me. Anyways, as I was thinking about my one year anniversary with hair, I started thinking about what I am going to do once I have lost it again and what my new college friends, who know but do not understand Alopecia, will do in…

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Added by Megan Bry on January 16, 2013 at 1:33pm — 2 Comments

To shave or not to shave

Not sure if anyone else has been through this. You only have very sparce hair but you try to hang on to the little bit you are still sporting on your head. After loosing 95% of my hair in just 11 weeks I am now growing new hair all over my head but I still am clinging to the very few long bits I have. Why is that ? you know it look awful but you just keep hanging on to it, what the hair fairy is going to come while your alseep an put it all back LOL I don't think so some how so why do I keep…

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Added by Annette on January 16, 2013 at 2:40am — 3 Comments

The Office episode where character shaves her head

Did anyone see the January 10 episode of "The Office", entitled "Lice"? If not - you can watch the whole thing here:

http://www.nbc.com/the-office/video/lice/n31399/

If you do not want SPOILERS, STOP READING this until after you've watched the episode. I'm about to tell what happens....

The office floozy, Meredith, is discovered to have head lice. It actually was likely brought to the office by Pam via her…

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Added by Mary on January 15, 2013 at 11:20pm — 1 Comment

The Bald Mannequin Project!

Tired of seeing all those bald mannequins in the clothing stores and windows and thinking "Why do the fashion world and advertising media think FAKE bald women are so beautiful, but never use REAL bald women?" Maybe we can change that.

THIS IS THE START OF A REVOLUTION!

Step 1: Go to the mall to one of the many stores featuring bald mannequins. BE BALD (very important step).

Step 2: Put on the same outfit that the mannequin is wearing, or stay in your own fashionable…

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Added by Mary on January 15, 2013 at 5:55pm — 7 Comments

My 5th anniversary of the woman I am now - thanks to being bald!

January 30 will be 5 years since the day I took control of my fast-departing hair, and shaved my head. Universalis followed shortly. I'd like to share what I've learned, and how being bald has affected me. Here's a photo taken on January 30, 2008, shortly after I shaved my head.

I began going out in public bald only a few months after shaving. I took "baby steps" to…

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Added by Mary on January 15, 2013 at 2:00pm — 13 Comments

Regrowth possibilities

Question on hair regrowth. No hair for two n half years. Yesterday my husband found 6 hairs on the side of my head and some of my eyebrows are coming back. I was so excited. On closer inspection my sister found an area on the top with several black hairs. I have no hair on my entire body, but the ones mentioned above. My thyroid is finally leveled. What are the chances that all my hair will come back?

Added by zeida on January 14, 2013 at 5:58pm — 2 Comments

Where are the friends now?

I have noticed that after I have told people I have known for years about my AA they just don't bother with me anymore it's like I have a virus they are going to catch of me. I feel so alone at times I try to be my bubbly self when I am around people as to not be a burdan are they scared of me or what. I am not sure if anyone else has had this happen but it is very hurtfull it just makes you feel so rejected from sociaty like I'm a lepper or something. And if I hear one more comment it's…

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Added by Annette on January 12, 2013 at 7:00pm — 5 Comments

My story

i have had alopecia for bout 2 years it was connected to my asthma found a wee patch went into denial n tried to sort it myself by the time i faced up to it majority of my hair had fallin out got treatment in needed a wig was able to stop wearin the wig just before xmas but started findin wee patches after xmas hoping it dosnt decide to fall out again

Added by ruth on January 12, 2013 at 6:30pm — 1 Comment

Wow this is hard

Wow this experience has been the hardest thing I have ever gone through. A little over a year ago I got a concussion and was having trouble coping with some of the ongoing symptoms so I finally broke and gave into getting help and was put on an anti anxiety med and sleep med. Things were finally starting to settle down for me, but then I realized about four months into the med my hair was starting to fall out, and I was getting a burning or tingling in my scalp. The shed started in September…

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Added by Jan on January 12, 2013 at 2:52pm — 2 Comments

Need some advice!

Hi all

It's been a while since I have been on here, I have some solid hair growth in the initial area that fell out and it looks good, the rest is growing in patches. I cut the rest of all the straggly bits of hair which I'm glad because it has been really hot these past few weeks. I have had some good comments from those that have seen it, though I still have to wear my wig. Id say I need another 6 months for it to all grow and cover my head. Taking this step by step. :-)

A…

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Added by Blue tulip on January 12, 2013 at 5:00am — No Comments

Australian Alopecia

So I don't really know what to write on here lol. Kinda joined this site to see how many Australians suffer from this disorder. I'm 24, male and have Alopecia Universalis. I've had it for roughly 2 years now. I suffer from a form of rumertoidal arthritis and the medication I take for that lowers my immune system. Myself and my arthritis dr believe that is the cause of my Alopecia. I've seen doctors, dermatologists etc about it but no positive outcomes from there visits.



Lately there… Continue

Added by Walker on January 11, 2013 at 2:13am — 8 Comments

Dairy free/gluten free

I've decided to try a dairy and gluten free diet(or at least cut them out considerably). I'm a big believer that your diet has a lot to do with the way your body reacts to an already existing problem. I'm mostly trying to cut out inflammatories because even before AA appeared in my life I've always had skin problems (rashes, itchiness, dryness) that I believe are connected to my diet. If it doesn't help my AA at least I'll be healthier! My question is for anyone who has tried a diet like…

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Added by Katelyn on January 9, 2013 at 6:30pm — 16 Comments

Please help!

Have been losing my hair for 2 years. My husband also has MPB. Now my one year old is losing his hair. I am freaking out, don't know what to do. Any one have experience with ENVIRONMENTAL FACTORS that caused their hair loss? I am starting to think our apartment has something in it that is causing hair loss. The water? Mold? I don't know where to start. Please any advice would be greatly appreciated. Thanks

Added by Michelle on January 8, 2013 at 3:00pm — No Comments

Just want to ask

I am a little confused when you start to lose your hair does it come out in clumps or small amounts I had only 2 small circles then my hair was falling from everywhere I still have about 10 percent of my hair but now it seems to be growing back. It has been about 10 or 11 weeks from when it first started so if anyone can answer I would appreciate some feed back.
Annette

Added by Annette on January 8, 2013 at 7:04am — 11 Comments

First Ann Arbor, MI Alopecia Support Group Meeting, Saturday, Jan. 12!

The first Ann Arbor, MI Alopecia Support Group Meeting is coming Saturday January 12 (See below for details). RSVP if you plan to attend. I hope to see you there!

Saturday, JANUARY 12, 2013
1PM – 3PM
Ypsilanti Public Library
229 West Michigan Avenue
Ypsilanti, MI 48197

-Caitlin

Added by Caitlin Riley on January 7, 2013 at 4:30pm — No Comments

Folliculitis decalvans

Does anyone have more info for this form of Alopecia? Doctors who did a recent biopsy on me determined that i have it. i feel like its the wrong diagnosis considering that i have hair loss in places other then my head. I tried to look it up on Wikipedia, but it only gave me a brief paragraph. There was no elaboration what so ever. My derm told me it is rare so im assuming that's why there's barely any info about it... If ANYONE can help me out i would truly appreciates it.

Added by Jamar on January 6, 2013 at 9:24pm — 1 Comment

Wig advice

Hello, I am a 35 YO female that has alopecia. I first suffered with this at the age of 3 with a few minor spots. I now have about 1/3 or more of my head that has lost hair. I have made an appointment at Joseph Paris' establishment in NYC and wanted to see what feedback others had with this. I am very active with running and swimming 6 days per week and wanted to see thoughts on using a piece as well as insurance reimbursement. Thanks in advance.

Added by SAC on January 5, 2013 at 4:53pm — 3 Comments

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