May 2011 Blog Posts (96)

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Alopecian families

I finally have a little more time for Alopecia World now that GEMS is done (a girls group I volunteer with). It really is a shame life tends to get hectic from time to time and certain things that are close to your heart take a seat on the back burner. My heart has been filled with passion for so many things as of late and yet I haven't the time to do anything about it. I'd like to get back into hosting alopecia meetings, go on another mission (perhaps leading some youth), go white water… Continue

Added by Carol on May 12, 2011 at 9:00pm — 1 Comment

Sorry all!

I really don't know what is going on here, i have replied to all who have emailed me, it says message sent but when i check back i cannot see the reply????

just a small update, so far i have white regrowth in the main patch which is large, bitty but hey, it's hair, not going to get too excited as i know i could lose it again......we will see !!! watch this space lol x

Added by susan williams on May 12, 2011 at 8:30pm — No Comments

Did something well

Today was my second day through my therapy and to my surprise it was my turn to talk, I spoke of my bad childhood and adolescent life and brought up "alopecia" I asked who here knows what that means? they all answered NO so I explained what it was and they told me I was very brave to share something like that. and that they couldn't even tell I wore a wig.But they were very supportive of it.

my counselor is going to help me raise awareness in Oshawa about alopecia when I have done my… Continue

Added by Lisa-Lynn Marini on May 12, 2011 at 6:30pm — 2 Comments

WHY?

I was ok today got some sun and now 'm like "WHY ME? what did I do wrong to the man upstairs to give me no hair???WHY LORD WHY ME??????]
All I want to do is cry and stay in bed and never come back out
I'm sorry to vent here but i didn't know where else to go share my thoughts

sad Lisa

Added by Lisa-Lynn Marini on May 11, 2011 at 8:00pm — 6 Comments

Looking for a new wig!

So, my newest $500 synthetic wig that I've had for only 2 months is starting to frizz & look "old" - go figure ugh - so I need a new wig. I'm looking for a bob style synthetic wig with monofilament top, any suggestions? Not too pricey if possible. I looked online but didn't find anything, yet.

Added by Sophia on May 11, 2011 at 5:08pm — 9 Comments

7 pm

There's a television show called "The 7pm Project". It's like a news program, but run by comedians. Its very clever. They have a "guest expert" on each night, the Bondi Vet, a very handsome doctor, social commentators, financial dudes, whatever. Tonight the doctor was on.

They had a story on "Bald Fear", what men in their twenties apparently go through. I immediately went to their website and posted the following.



"I saw tonight your story on "Bald Fear" and had to comment. I've… Continue

Added by Georgia Gardner on May 11, 2011 at 6:00am — 3 Comments

Meeting another bald woman in public

I recently had a wonderful experience. I was standing in a long line at customs at London's Heathrow Airport after a long flight from the US. We ended up in the midst of a plane load of people from Israel - I recognized the lilting Hebrew words. Ahead of me I saw a bald woman, about my age. As the line twisted back and forth around the rope barrier, she and I came face to face - I said hello. She didn't speak much English, and I know only a little Hebrew. I motioned toward her face and head…

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Added by Mary on May 11, 2011 at 5:30am — 10 Comments

"You stuck to your guns and...."

"You stuck to your guns and....." was the topic given to my husband to deliver an impromptu talk this morning at our Toastmasters club. He began by describing his dismay at seeing my newly coiffured hairdo on our wedding day 42 years ago and compared it in derogatory terms to how he loved how I usually wore it which was long and straight. Could he go through with marrying a woman with a beehive? Then he stated how he stuck to his guns and married me anyhow little knowing that 30 years later… Continue

Added by Pat on May 11, 2011 at 12:30am — 5 Comments

Reaction

I was on the trolley the other day and a guy asked me if i have alopecia and that's the first time someone asked me that before but i answer the question very truthfully. then he said he wasn't imagining it. i was so weirded out afterward. how would you react if it happen to you?

Added by Tamika Joseph on May 11, 2011 at 12:00am — 3 Comments

So I found another spot

it has been a couple of months since i found the first spot, my hair has been falling out everyday but it had been from all over my head so it wasn't as noticeable except for the first spot that is about the size of a half dollar coin. it has thin little hairs growing out of it but its still pretty noticeable. well today i found another little spot on the opposite side of my head, this one is smaller though its about half an inch in diameter. its super itchy and even burns a little. i have an… Continue

Added by Zayuri Sams on May 10, 2011 at 9:00pm — 2 Comments

My therapy

Today I went to my therapy and Oh my God I was shaking, until I got in there except I was surrounded by men!! I was the only woman there so I was nervous until the end I started to open up, my fisrt
assignment I have is to do something about 15 min before Thursday that makes me happy!!

I'm glad I did it today I made my first step!!!

I went in my pretty curly wig today too and the secretary was saying oh my what gorgeous hair you have, made me feel good and pretty.

Added by Lisa-Lynn Marini on May 10, 2011 at 6:00pm — 2 Comments

Peeved

It's daunting enough when trying to find a wig that meets my needs, but I just get really peeved when dealing with certain 'sellers'. You know the ones. Where they 'understand' because they have alopecia too, so that makes them more 'compassionate' than any other seller. But don't let that facade fool you. They are the most viscous of the bunch, only out for the money. They prey on your weakness, vulnerability and insecurity. It's funny how they're the ones that sell the most expensive wigs out… Continue

Added by Brandy Snap on May 10, 2011 at 3:09pm — 1 Comment

Eyelashes

Need help with disguising the fact you have alopecia sometimes? Well I think I can help you! Ive been trying to conceal this about myself since I was 12 years old. I can glue eyelashes on perfectly, draw on eyebrows in 30 seconds and have people shocked when they find out that I have alopecia. "I can't even tell you wear a wig" is the best compliment a young artist like me can get. The trick is to practice alot! I put on eyelashes and eyebrows every day, and it only takes 15 minutes once you… Continue

Added by Alyssa Schmeck on May 10, 2011 at 3:37am — 6 Comments

Head acne, stinging and the continued process out in the world as an alopecian

So I wonder if any of you have experienced this, I've been getting what seems like acne near my forehead and around the top of my head. I'm thinking since I don't have hair nothing to absorb skin oil I'm getting these bumps. Any recommendations as to what I can use?



I also have been feeling tingling. I've been bald now since early March; is this part of the process? My eyebrows are also thinning. Any recommendations as to what I should be on the lookout for, do, etc., is much… Continue

Added by Lili Añel (aka Eulalia) on May 9, 2011 at 8:00pm — 3 Comments

Nervous

I thought for a while I was gonna be ok and that I wouldn't be nervous on my trip to my therapy session , however today I find myself a nervous wreck, wondering if someone will stare at my head, wondering if they can figure out I am wearing a wig, I mean alot of folks stare and I guess it's only natural but I'm nervous about it.
Tomorrow is a big day for me and I really hope I can pull through it!
'Nervous me

Added by Lisa-Lynn Marini on May 9, 2011 at 4:30pm — 1 Comment

How do you like your Freedom hair prosthesis?

Hi everyone...It has been awhile since I have posted anything. I was looking for some input...I am looking into getting a Freedom hair prosthesis. Right now I am in the waiting stages with the insurance company (waiting to see if they are going to cover any of it). I was just wondering if anyone out there had one of these pieces and how they liked it. I have seen all the YouTube video's and read a bunch of testimonials on the web sight, I was just curious what anyone else might have to say… Continue

Added by Kris Fenchel on May 9, 2011 at 8:30am — 3 Comments

Just made new vid

Here is the link. I lost it once..but it is sad when guys won't 'look' look at you when you don't wear a wig...
anyway...http://www.alopeciaworld.net/video/an-alopecia-video-perspective
Enjoy! Please comment if you think I went too far or did well, whatever...thanks!!

Added by Laura Adams on May 9, 2011 at 1:30am — 2 Comments

Hair regrowth

I'm very excited to say that I am experiencing some hair regrowth in the past month. I'm very curious as to what is going on with my body. The hair in two places are after getting long and turning color. I find this very strange because the only time I see hair growth is when I am pregnant and I know that is not possible at this time. Could it be the DPCP treatments that I had taken almost a year ago but had to stop because of headaches. Or is my body at age 33 changing.

Added by Crystal on May 8, 2011 at 9:00pm — 1 Comment

NAAF conference & Minnesota/Wisconsin members!

Hi fellow Alopecia Friends!

I'm relatively new to this site, but not to Alopecia! I am working on getting a support group together & expanding my network of talking to people with Alopecia! So, if you live in Minnesota (I will be a Junior in the fall at Minnesota Duluth) but I am originally from Slinger, Wisconsin (30 miles north of Milwaukee) I would love to meet & talk with you!:)



Also, is anyone planning on going to LAX for the NAAF Conference in June?!

Have a… Continue

Added by Lindsay Walter on May 8, 2011 at 8:30pm — 1 Comment

Regrowth

Hello everyone, I havent wrote on here in a while, but would like to share my good news. I have a full head of hair with just a bit on the top to fill in, :) my hair seems to be growin quickly to, i cant believe it yet it seems unreal. I wont go without my wig yet as i dont like to crop style, lol
It has come back ginger to but still alot darker than my hair was, still some white to change but its all looking good,
really wanted to share my news, :) thanks for reading, x

Added by lynne on May 8, 2011 at 2:30pm — 5 Comments

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