Featured Blog Posts – May 2009 Archive (75)

The Alopecian Closet...Are you in or out?

Hello Alopecia World,



I wish there was a poll section on this site for such a question.



I am writing tonight in support of National Bald (now called International Alopecia Day).

This is an event for women with alopecia. The objective is to raise awareness and acceptance for bald women in society. What is asked of you is to organize, join or support a group of local alopecians…

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Added by JeffreySF on May 16, 2009 at 1:30am — 12 Comments

me

well i am new too this but here i go. I have alopecia universalis and i have had it since i was 12 years old. i am 29 years old now and i cant seem to make it out outside without my wig. I really cant afford them and my friend that i am close to on here is trying to get me to go with out my wig but i still cant seem to do it. since all this has happend i have all kinds of health problems now. with all the stress i am under i now have panic attacks cause i am afraid of what people think of me.… Continue

Added by clair on May 15, 2009 at 10:38am — 3 Comments

Stressing about the weekend.

So to everyone else ths sounds weird. But I know you all will understand. Like mentoned in my last post I am pregnant and lke my past pregnancies my hair has been growing back more and more as time goes on. It has been coming in so nicely that about a month ago I decideed to stop shaving it and let it grow back. Which is very exciting because so far it looks like I might actually have enough to cover my head! The only issue is obviously I can no longer wear my vaccum wig. The problem now is we… Continue

Added by Bigmama on May 14, 2009 at 8:18pm — No Comments

Wearing It

I found some t-shirts on cafepress I think I'm going to order and wear to the gym since that seems to be where I get the most looks. Usually as I enter or exit the ladies room. I guess the make up and breasts aren't enough to prove my femaleness. *shrug* I am fighting the temptation to always wear a head scarf when I go out. I don't want to hide it. It's part of who I am whether I like it or not. The majority of the time I'm fine with it so why does it matter that other people have an issue… Continue

Added by Jess on May 14, 2009 at 12:00am — 1 Comment

And the stress keeps coming

So since the last time i wrote on here i was starting to deal with all my insecurities of my alopecia. Since then I have met a wonderful guy named John and we started dating each other. I still have not showed him my shaved head and i sleep with my wig on which can be annoying at some times. He knows about my condition and said when i am ready to show him he will be there for me. I just need some more time.



About 2 weeks into our relationship he started complaining about back pains.… Continue

Added by Danielle on May 13, 2009 at 11:16pm — No Comments

My First Blog Post

Funny thing, I have an adorable Pomeranian, now 9 years old, who also has alopecia. Poor thing was almost completely bare except for his head, legs and spine (called him Spike for awhile), but his hair grew back. He just has a little bit left to fill in on his butt (his longish fur covers it up; talk about comb overs) It was probably due to changing his diet a bit. No more wet dog food for dinner, he usually got a scrambled egg (lots of vitamins & protein) on most days (with his dry… Continue

Added by Brandy Snap on May 13, 2009 at 9:30pm — 3 Comments

There is hope!

I thought I would give everyone an update on the AA progress....

Since I stopped using the clobetasol cream...my hair has started to grow back. I started out with 16 patches...and am now left with 2 - one of which is very small on the back of my head, and the other is the very first patch that started. It grew to a lovely 4 inches...and is now about the size of a canadian nickel. I have had complete hair regrowth in all other patches. I have hair growing in the last two patches - some of… Continue

Added by Christie on May 13, 2009 at 5:42pm — 1 Comment

Still Worried

You'd think after all these years of living with alopecia, I'd be used to it by now. In a lot of ways, I actually am. I've come to accept that I'll never know what it's like to have long hair blowing in the wind, never understand the literal meaning of a "bad hair day", nor will I ever feel like I'm completely normal (whatever that is). I'm just glad that I've found this place. Now, at least, I can feel like I belong somewhere.



I've chosen to live without wearing wigs for my entire… Continue

Added by Kathie Nietenhoefer on May 13, 2009 at 12:58pm — 4 Comments

Follow-Up Visit

I had a follow-up visit with my doctor today. She's just great and I am always encouraged after seeing her. I noticed the first signs of regrowth in March (I'm talking microscopic here), by April it was a wee bit more visible though I was really quite bald. Had about 20% of my hair still hanging on for dear life. Throughout April it really came in and now I have a good bit of coverage. Still a little sparse on top but I am hopeful that if it continues at this rate it will fill in… Continue

Added by Paula on May 12, 2009 at 10:00pm — 2 Comments

One Day at a Time

It's only almost been 3 weeks since I decided to shave and I can tell I've lost more since then. At first I was just going to shave it with a HeadBlade but 'my' girl talked me into the guide. To be honest there was a sense of relief in being able to use a guide. I was still able to have visible red hair and it masked the thinning fairly well. It's not masking as well anymore. I'm guessing by the end of the summer I will be either shaving guide free or shaving with a razor.

While I found… Continue

Added by Jess on May 12, 2009 at 9:43pm — No Comments

Parent with a 9 year old girl with AT

Hello my name is Mary Alice and I have a daughter who has been recently diagnosed with AT /AU maybe. Doctors are not to sure yet. She has lost all of her hair on her head, she no longer has any eyelashes or eyebrows. She used to feel comfortable around us without her wig on but now she wants to wear the wig all the time. I don't really know what to say to her. I tell her she is beautiful and I love her no matter what. She does not like to talk about what is going on with her. She hasn't told… Continue

Added by Brianna and Mary (mother) on May 12, 2009 at 11:12am — 9 Comments

what hasn't worked and what has

after a particularly devastating and painful period of my life, i was diagnosed with alopecia areata - almost a year ago. at the time of diagnosis, i only had two small quarter size patches. i immediately began getting injections, and continued to do so until two months ago. although i was confident in the course of treatment, i found that the injections did not seem to help me. altho some hair would grow in the center, the spots were still growing larger. and others one would start forming… Continue

Added by claudine on May 11, 2009 at 7:41pm — 4 Comments

A Good Day at the Barn with only a bandana!

Its funny to me that I used to go to school only wearing a baseball cap and play soccer with only a bandana on and that I later felt completely uncomfortable wearing just those things. Maybe it was all those teenage hormones that made me feel like I had to wear a wig 24/7, but thankfully I just don't care anymore!



On Sunday I went to the barn where I keep my horse, and generally I use my "barn hair" that is generally the oldest wig that I own that I wouldn't use for school anymore,… Continue

Added by Dielle on May 11, 2009 at 2:47pm — 1 Comment

Update on treatments so far..

My friend Brittney asked how I was doing so I thought I'd share my progress to date. Well the injections of the Kenalog Cortisone seem to be wroking nicely. I have a full brow line on the left side and a bit more blotchy brow coming in on the right.



I'd say it will be a success in about another month to 6 weeks. The hairs coming in are thick and dark just like my pre- fall out hairs were. I am feeling much more confident about my overall look and would be very grateful if I could… Continue

Added by Craig S on May 11, 2009 at 2:09pm — 1 Comment

Frustration ...

I developed Alopecia while I was pregnant with my son 17 years ago. I was 19 and had no idea why my hair was falling out. I kept telling myself that it was just from the stress of an unexpected pregnancy. I was a pre-school teacher at the time and thank God for children and their compassion and understanding. It did not seem to phase them at all that their teacher was loosing her hair. I didnt buy my first wig until my son was a couple months old and looking back, it wasnt a very good one. LOL… Continue

Added by Cara Jakobitz on May 11, 2009 at 12:14pm — 2 Comments

My First Blog Ever!

This place is such a trip for me! I had no idea that so many others deal with the same basic problems I do. My form of alopecia is different from what I've been reading from many of those who have it. While most (at least from what I've read) once had a full head of hair and then lost it, I was simply born with it. I was completely bald at birth and very, very, *very* slowly started accumulating a little bit of hair. My hair has never grown past where it is right now though - very sparse, very… Continue

Added by Kathie Nietenhoefer on May 10, 2009 at 12:49pm — No Comments

RE: Just Wondering??

Just wondering,

Is pretty much everyone that is on here (this site) bald or wears a wig or scarf as their daily routine?? Are there any members that have AA and still have hair that they can wash and wear out in public still. I was told there are people like that with AA but I have not run into any people like that on here at all. Mostly everyone is bald or wears wigs. Once you are AA are you just gonna be AT and AU for sure and it's only a matter of time?? I was told different before but… Continue

Added by Melissa Harris on May 9, 2009 at 4:39pm — 8 Comments

My experience with Paul Byrom

Hi everyone! ....so this is my first blog, so I apologise if it's a little off!

So, I just wanted to share my little experience... I don't know if anyone else knows the group Celtic Thunder, but I'm really obsessed with them! They're a group of five solo singers from Ireland and Scotland. I promise all of you, I'm going to marry the 16 year old, Damian McGinty. He hugged me twice! ...But that's off topic.. Anyway, there's a guy in the group named… Continue

Added by Heather on May 9, 2009 at 1:32am — 3 Comments

I did it!!!

I just wanted to share with all of you an extremely positive thing that has happened in my life recently. As some of you are aware, I work for McDonalds and we just had McHappy day on Wednesday May 6. As part of our fund raising I promised to shave my head (kill two birds with one stone) I have AA and it was getting to the point of wanting to shave it so that no one would see my big bald patch showing through and it was to raise money for an amazing emergency shelter for women that is right in… Continue

Added by Tenille Gee on May 9, 2009 at 12:54am — 1 Comment

Alopecia at Work.

Hey guys, just a brief question. What have been your experiences as an alopecian at work? Has it prevented you from getting a job? Have things become weird at work because of your alopecia? Any advice or tips on what wigs look (and feel) comfortable and natural?
I'm new to the work force and am curious what I might be facing!
Thanks!
Alexandra

P.S. - If it makes any difference, my field will be marketing related.

Added by Alexandra on May 9, 2009 at 12:01am — 3 Comments

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