July 2008 Blog Posts (92)

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Hair Growth During Pregnancy

I was just wondering if anyone had any idea why during my pregnancy, my hair grew back in nice and thick, with very few spots. I thought it was due to the prenatel pills, however I am continuing to take the prenatel after my daughters birth, but my hair is falling out in massive amounts. Within a month and a half after her birth I went from thick hair to almost no hair at all! Why?

Added by Jaime on July 15, 2008 at 3:30pm — 3 Comments

i need adivce!!

this weekend im going to a theme park. all my friends that are going know about me having alopecia. my hair is growing back, not completely gone. but im VERY self concious. im not sure if i should wear my wig to the theme park or not.. and the options of what to do is eating me!! i really dont know what to do. i am Christian so i know that i should be comfortable with however God changes me..but its hard. i dont know what to do..

Added by susan on July 15, 2008 at 9:17am — 6 Comments

NEED help with insurance company!!

If anyone has any input...please help. I am trying to get reinbursed for my hair prosthesis through United Healthcare. I already appealed it...sent them a bunch of paperwork...and they denied it! I'm not sure what to do at this point. Should I try to get a letter from my doctor saying I need a scalp prosthesis, not a wig? What else can I do?

I cant beleive this crap!! Its bad enough we have to go through this...and they have the NERVE to say that this is COSMETIC!!! ; (

Thanks for… Continue

Added by Lee on July 14, 2008 at 8:33pm — 10 Comments

Was trying not to get too hopeful, but....

So I was sitting around watching tv last night and I ran my hand over my head (I love the way it feels shaved!) and realized the bald spots didn't feel so bald... I bolted up off the couch and ran to the mirror (haven't been looking in the mirror much lately) and lo and behold...not my whole head, but MOST of it is covered with a thin layer of white hair! Wooooo!!! Not like before with a white hair here and there...but actual white hair filling in spots! Now, it's hard to tell when it's white,… Continue

Added by Mandy on July 14, 2008 at 12:00pm — 13 Comments

SIGNS OF HAIR GROWTH................HOORAH

WELL I HAVE TO SAY I HAVE WOKEN UP TODAY A REALLY HAPPY PERSON, MY SCALP HAS GONE DARK AND I HAVE HAIR COMING THROUGH, NO PATCHES YET !!!!!

I ALSO HAVE HAIR GROWING ON MY EYELASHES AND MY ARMS........................



IVE BEEN TAKING HORMONE REPLACEMENT THERAPY, DUPHASTON TABLETS AND DIANETTE TABLETS ASWELL AS SOME REGAINE AND SYNALAR GEL.



I FEEL REALLY GREAT TODAY JUST KEEP YOUR FINGERS CROSSED FOR ME THAT IT STAYS IN, AS IVE HAD THIS HAPPEN BEFORE AND IT FELL OUT… Continue

Added by claire on July 14, 2008 at 8:56am — 6 Comments

Ignorance is bliss...

Have any of you ran into someone out and about who is ignorant and rude. Take for instance a trip to the store, minding my own business when someone Barbie doll looking, ignorant somebody started staring at me and commenting to her friend about me. I didn't put my wig on before I left the house, so I was sporting my typical bandanna when apparently me binding my own business was offensive to her. Anyhow, has anyone else run into stupidity, such as this?

Added by Jaime on July 14, 2008 at 3:00am — 2 Comments

A rose by any other name....

This posting was inspired by Annette (aka Crowned Regal)'s most recent blog post about name calling. This particular posting strikes a nerve, I'm sure, with many of us. Even though this may be considered a duplicate posting, I recognize that not everyone reads the postings in the discussion forums, but many of you read my blog postings, so I am posting my response here too. I also encourage everyone who reads… Continue

Added by kastababy on July 13, 2008 at 11:00am — 5 Comments

With the darkness, comes the light!

I have to thank everyone for their outpouring of love and support since I lost my eyebrows. I'm still pretty upset that they're gone, but I'm slowly getting used to it. I see what everyone is talking about now when they get annoyed at the slightest little things getting into their eyes. I thought my glasses would be enough to take care of that little nuisance, but they just seem to make things worse. And if anyone has ever lived in the South in summertime, you know that a more appropriate name… Continue

Added by kastababy on July 12, 2008 at 9:59pm — 6 Comments

Thanks to everyone who was so sweet.

The responses to my last blog were so nice and I really appreciate the calming effect they had. I'm sure that I'm still slightly nuts, but at least everything has worked out in the end and I can breath easy again.
Love you all
CAR

Added by Carmella on July 12, 2008 at 6:03pm — No Comments

Working with kids at a summer camp, and finding acceptance

I feel like I haven’t been on here at all in the last few weeks. It started with two weeks straight of work managing the pizza shop I work at as my bosses went on vacation and then needed other days off. I got through that and on the first day I had off I left for the summer sports camp I work at. The first week is basketball, which is now over, and the second is soccer which I leave to work on Sunday. I have internet access at the camp but I’m basically on duty from 7am to midnight so most… Continue

Added by Drew on July 11, 2008 at 1:18pm — 2 Comments

So pissed at myself right now!

Can you believe it - I would completely over react AND assume?! Well I did and I can't take it back. So sorry to anyone who thinks I'm trying to start drama. I'm not, but I'll go soon if it would make you feel better.
XOXO
CAR

Added by Carmella on July 10, 2008 at 8:41pm — 4 Comments

Haven't seen her since

But I'm still losing my mind.... I have so very many things that come to mind to say right now... best be quite.

XOXO
CAR

Added by Carmella on July 10, 2008 at 5:45pm — No Comments

Where Should I Begin?

Just researching.... I was wondering if anyone knew anywhere that I can get a all natural hair wig where I can actually try them on. I have searched and came up with nothing. Also what are the best ones? If someone could please let me know it would mean very much to me.

Added by Laura on July 10, 2008 at 3:59pm — 2 Comments

Oh the irony.. it makes me giggle inside

so i read a tid bid of Malinda Rode's blog today and i had another epiphany (did i spell that right?)



so this fall i am going to the Aveda Institute in Minneapolis for cosmetology. i have actually had this planned since before i lost my hair, and even though my hair is gone, i still want to go because hair is my passion..



anyways. so i have decided that first day of school.. NO HAIR! not gunna wear it. why bother? my wigs are so hot and i have tried so many and they are… Continue

Added by Amanda on July 9, 2008 at 5:47pm — 7 Comments

alopecia problems medication related?

[ Draft



A few months ago I started losing my hair on my face, and two prominents patches on my head soon followed. Then hair disappeared on the top of one of my hands, and a patch from my neck and back soon thereafter, then a part of my eyebrow disappeared as well. White hair, though, was noted in these areas, and never did go away. Primary MD ran labs, everything was within normal limits. Went to rheumatoid MD to rule out and auto-immune ailments, which she did rule out. One doctor… Continue

Added by JIM DOWNEY on July 9, 2008 at 5:36pm — 8 Comments

hmm

i have had AA for a looooonnnnnnnggggggg time now and only started talking about it 3 years ago when i got to the point that i couldn't hide it as well and needed a wig. ok so today i goy my first negative reaction when i told this one person about my AA. some of you know me,i can't repeat what was said quiet yet but would like to know what some of the nagative comments you have gotten and how you handled it.
hugs and kittens,
Lolin

Added by Lolin on July 8, 2008 at 11:25pm — 4 Comments

Acceptence

I discovered this site by doing a web search and came upon it. I would like to share with you how I deal with this condition. As a boy growing up into my teens I had bald spots here and there, the hair grew back, but the being teased part I never fully understood why it happened. I had a head of curly hair, at times wild looking. I started losing my hair in my 30's thinking it was stress, I lost my eye lashes and eye brows. It was until later in 2003 when I was working at a lumberyard doing… Continue

Added by Wesley Marr on July 8, 2008 at 5:45pm — 3 Comments

Owner of a Lonely Heart

Just an update:

So I only wore my wig to work for a week. It was long enough for me to feel uncomfortable. While the new wig made me feel very pretty, I just couldn't stand the feeling of wearing it all day long! I'm away from home for 11 hours a day including my commute and by the end of the day it was just so dang hot and uncomfortable! So I've been wearing bandanas to work now. I feel so much better and more like myself this way. In a way I felt like wearing the wig was just not… Continue

Added by Mandy on July 8, 2008 at 4:15pm — 8 Comments

Kids

I was down at the Jersey shore with my family. I guess I was 13 or 14 years old, the oldest of 4 kids and AU for ten years by then. We had just reached the Jenkinson's boardwalk when this kid of 8 or 9 comes up to me and says, "Hey! You have funny hair!" (I wouldn't knock off the fuzz for another seven years) I replied, "You're right! I'm from Mars!" This didn't phaze him in the least. "You are not!", he exclaimed. I put on a frightened expression, glanced left, glanced right. Then leaned down… Continue

Added by Steve on July 8, 2008 at 8:17am — 4 Comments

i know im beautiful, but i still have a problem..

so i have had au now for about 7 months.. i know my hair is probably never going to grow back and i am slowly feeling a little better about it every day.



but i still need some advice.



i feel so body concious around people who dont know about my condition and i dont know how or if i should even tell these people. i dont just want to be like "hey guess what? i dont have any hair." but at the same time when i meet new people i want them to know who i really am. im not trying… Continue

Added by Amanda on July 7, 2008 at 9:57pm — 8 Comments

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