So i wear a wig to work.
But when im walking home ill take it off my head.
How surprised someone would be to see someone taking off their hair.
Consider them lucky for experiencing that.
Im looking for alternative for my head, wigs are fine but soooo iritating.
Im heading up to a cottage, what to wear? wraps make me look sickly...
Added by tash on July 31, 2010 at 1:30am —
This week Jennifer Gilbert wrote on Twitter, "My son is diagnosed with alopecia. A strange AI that causes his hair to fall out. We are devestated. Anyone know anything about it?"
I don't know her son's age or the type of alopecia he's experiencing, but I'm calling on the entire Alopecia World family to reach out to her.
Please let her know that you heard the news on AlopeciaWorld.com and that our beloved community… Continue
Added by rj, Co-founder on July 30, 2010 at 8:30pm —
There have been waaay too many problems at my school with my wig. I've dealt with it for so long, and I'm caught between just telling my school about AU or continuing letting them point and whisper. I'm just...scared of the little monsters and what will come of me telling them. Should I?? I have asked several people, and the answer is almost always the same. "Just do whatever feels right for you." Here's the problem: Nothing feels right for me. If I tell my school, it could go 2 ways. I could… Continue
Added by Ellison Jane on July 29, 2010 at 5:31pm —
Yesterday I met and spoke to two women.
The first was a bald black woman in the library and when I asked if she had alopecia she responded that, no, she just liked the look. Thirteen years ago she shaved her head and continued to do so to this day. We spoke for a bit and exchanged shaving tips and our thoughts on living our lives as bald women.
Later on that even while grocery shopping a lady made eye contact with me and then asked if I have cancer. I told her about my… Continue
Added by Cheryl, Co-founder on July 29, 2010 at 1:30pm —
If you know about any event that might be of interest to Alopecia World's thousands of members and visitors, please submit it here:
You may submit everything from support group meetings and special alopecia awareness projects to book signings and information about the upcoming release of documentaries and other media events.
All event listings are subject to approval… Continue
Added by Alopecia World on July 28, 2010 at 11:30pm —
Anyone had any one of these incidents?? I am younger than my years, or was until my hair started falling out. That was 4/08. Maybe it was because I used to go to a club on Saturday nights..my baby fine hair did nothing, so I would always wear a cool blonde wig...it made me feel better about myself..until...maybe it was the alcohol too but women would "look" at me and I would see that they were talking about me, and then their friends would "look"..it made me feel self conscious. The time when… Continue
Added by Lexi on July 28, 2010 at 5:10pm —
I am single and really enjoy being single! However, I haven't figured out how to navigate dating and wearing wigs. I am a member of a local dating website and I had an interesting experience a few weeks ago. I met a guy on there and we started chatting. The pictures were down on the website so we emailed each other more pictures. I accidentally sent him one of me wearing a scarf. He asked if I had cancer. I said no, and told him about my situation. He said it was no big deal. I never heard from… Continue
Added by Alliegator on July 28, 2010 at 3:53pm —
I shared the post below at the beginning of the year on the UK Alopecia site. Was reading it again a few minutes ago. Wow, what a year it has been. 2010 has certainly been the year i finally made peace with living with Alopecia. I voluntarily left full time paid employment at the end of last year and decided i wanted to spend this year on a journey of self-inquiry, integration and rediscovery. What a journey, what a ride! I have finally learnt to love and accept myself unconditionally and… Continue
Added by Ade on July 28, 2010 at 3:30pm —
I changed my wig sunday. I usually change it on Sundays because I like to get feedback at church (or no feedback). I brought a bob hair style and it was long. I wore it to church I got comments like you look like your mother to just stares. SO I went home did a little cutting and it came out great. I went to work the next day and the response I got from women were “Did you do something different to your makeup, it looks great but different?” (did not change my makeup). The comments I got from… Continue
Added by Sam Sam on July 28, 2010 at 9:00am —
had a good few days bought some bandanas my wig is annoying lol like the bandanas alot better! My husbands 30th bday is Aug 10th ill wear it when we go celebrate but other than that im a bandana girl all the way lamo!!!! Anyways everyone have a good night and GOD BLESS!!!
Added by amy on July 28, 2010 at 1:21am —
Here are several of my favorite quotes and sayings about human baldness, a few of which are mine. ;-) Please share your own as well as let me know what you think of the following:
"Say it loud: I'm bald and I'm proud!"
"Bald is the new black."
- Anonymous, but often attributed to Gail Porter
"They say most men are not attracted to bald women. I say most men lie."
- rj, Co-founder, Alopecia World
"Women's liberation will not be… Continue
Added by rj, Co-founder on July 27, 2010 at 12:30pm —
when my hair fell out last year, i said in passing that i would have to kill myself if i ever lost my eyebrows/eyelashes. i had like really fierce eyebrows. but anyways today those eyebrows fell out. like in matter of hours they were gone. no me gusta.
Added by Ellen Chinery on July 26, 2010 at 11:36pm —
well today i meet a girl with alopecia and her names alicia shes 12 and shes gonna go to the same school as me she dont like wearin wigs and she lives just up the street from me i thjought it was soooo kool that their was someone like me thats goin to the same school as me... she thinks my moms wierd tho cuz my mom was goin past her house and seen her and stopd her car in the street and was like do u have alopecia and alicia was like ya and so my mom pulld in her driveway! and startd to talk to… Continue
Added by lex on July 26, 2010 at 9:36pm —
Seems to me we need to come up with some uplifting songs as therapy. Some of you have found great ones for your profile pages, but there isn't one place to collect them all. I wonder if we can list some of the songs that saved us, gave us hope, reassured us, etc. and see if rj and Cheryl can come up with a way to click on them as we do with photos and videos. If not, we can always Google the You-Tube videos or recordings.
I'll start with six:
Don't Let the Sun Catch You… Continue
Added by Tallgirl on July 25, 2010 at 10:00pm —
ok I found a long white hair on one of my spots everything is so new to me is this a good thing??? Im excited i found it but i dnt wanna get my hopes up but....I cant help it :). Other than that nothings really been going on. My moms bday was yesterday and I was depressed cause I miss her so much but Im good now. I wish she was here with me so I can let her hold me and tell me everything will be ok. My mom passed away 6 yrs ago and I miss her so much!!! :(
Added by amy on July 25, 2010 at 10:13am —
Here you go...
For those of you who go the natural route - how did you find a homeopathic doctor? If I know of someone with a good reputation - is it worth traveling for? How often do you go? Do these doctor's treat children?
Has anyone ever gone to an immunologist - any luck there?
What about a gastroenterologist? All of these things that come up - leaky gut, candida/yeast... can these actually be diagnosed by tests?? Does it require a… Continue
Added by Cari on July 25, 2010 at 3:17am —
So as some of you may know Mikey started his hair loss journey on oct 16th 2009. By feb 10 he had lost most of it by mid april '10 he had lost all of his long beautiful hair with the exception of his giraffe patch which he still has. Some of you may recall we only did topical steroid ointment for no more than 2 months then decided to let alopecia runs its course. now all of a sudden beginning in mid june he started to grow hair. It isnt alot but hell its growing!! yes its patchy and some is… Continue
Added by jackie estrada on July 25, 2010 at 1:43am —
i hate it when kids stare at me.
i hate it when they ask their parents whats wrong with me.
i hate it when they ask me whats wrong with me.
i hate it when people assume i have cancer.
i hate all the blank stares.
i hate the snickers.
i hate the pointing.
i hate not being accepted.
i hate not having hair.
i love my friends who never notice im bald.
i love my family who never snicker or point.
i love my dad who has alopecia… Continue
Added by whitney rose on July 24, 2010 at 5:27am —
It's been over 2 years since I've wrote my first and only blog on this site. It's also now on very rare occasions, that I'm actually active on this site. But right now, I didn't know where else to go. This month marks 15 years. 15 years ago, at age 12 I lost my hair for the first time. 7 years ago, this month, I noticed my hair falling out again after having had my own hair for a little over 2 years. Here I am 5 days from my 27th birthday and I can't seem to do anything but cry. I cry over my… Continue
Added by Alexandra on July 23, 2010 at 9:38pm —
Hi ive had alopecia areata for nearly a year now a couple patches have grown back while others are spreading. I have noticed a patch missing from my wrist but unsure whether its alopecia or not. I'm really worried that i may develop universalis. Just wondering of the people who have universalis how fast did your hair fall out or did it take a long time? Did you start with scalp hair loss, than patches on your body or does it normally go from scalp to facial loss eg eyebrows etc? Did the hair… Continue
Added by tim on July 23, 2010 at 8:12am —