July 2014 Blog Posts (40)

Your presence may mean far more than you think

Recently, a mother whose beautiful young daughter has alopecia said to me, "I always tell my daughter that you are her twin. I tell her when she grows up, she's going to look like you."

The emotions that statement elicited in me were very strong: I was honored and extremely humbled.

Our reach as alopecians is far beyond us. We may be just living our lives and, at the same time, encouraging a neighbor, a person on our morning commute, or perhaps someone we least…


Added by Cheryl, Co-founder on July 31, 2014 at 12:00pm — 10 Comments

Fluctuating between sinking & drowning

I'm battling a lot at the moment, things that are near and dear to my heart.

There is a lot to take in, but then add my hair falling out and it just all seems too much.

Yesterday I made the leap and returned to the dermatologist.

In 2009 I had my AA treated (with amazing success) with cortisone injections. In 2012, along with a host of natural remedies I returned to the dermatologist, the success was less than amazing…but I always knew that could be the case. I had…


Added by Overwhelmed on July 30, 2014 at 5:30am — 3 Comments

Rapunzel, Rapunzel, let down your sweet hair…so she did, and it all fell out

Gosh I don't even know where to start. Crying won't do anything so I may as well just start with the facts.

29, AA, currently experiencing my 3rd AA outbreak... My first was in 2009; patches in the back & sides. 2011 small patches in the front, 2014 shedding mostly from my fringe, crown @ receding from my temple area.

I've been emotional, but pragmatic.

I've created a spreadsheet of my blood work over the last 7 years. Interestingly I can find correlation between…


Added by Overwhelmed on July 30, 2014 at 5:30am — 1 Comment

DCP treatment

My name is Richard and I've been dealing with AA since Nov 2012.  My story begins with  my barber noticing a small bald spot when cutting my hair.  I ignored it until there were 3 spots, and then started growing from there.  I've been reading people's blogs and noone has mentioned much about Diphencyprone (DCP) as a treatment lately.  All the posts have been prior to 2014.

Is it because it's been discussed to death already? Or are people generally unaware? DCP treatment is a solution…


Added by Richard on July 29, 2014 at 9:30pm — 7 Comments

Thoughts on being a bald science fiction icon at Comic-Con

I want to share my thoughts about wearing my Ilia costume at Comic-Con. Attached is a photo of the original character, played by Persis Khambatta in 1979's Star Trek - The Movie.

For my two days in the costume, when people looked at me, they DIDN'T see a woman with cancer, or a masculine-looking female. They saw me as normal and healthy - more than that, they saw me as beautiful and sexy! (I apologize if this sounds boastful, but the character is much-loved and I nailed the…


Added by Mary on July 28, 2014 at 1:30pm — 28 Comments


I just want to warn people to be very careful when buying a wig online.  A month ago I entered a search online for petite wigs.  A lot of wig sites popped up but I chose a site that had a great return policy.  I placed my order, paid using American Express via paypal and received an order confimation.  When the wig arrived I did not know it was coming  China.  The packaging had no return address.  I went to the site and emailed customer service to let them know I wanted to return the wig…


Added by Frances on July 28, 2014 at 1:19pm — No Comments

The ups and downs of alopecia

When I first began to have alopecia at the age of 23, I constantly asked myself, how will I ever learn to live with this thing. In the first 3-5 years I became extremely focused on my spots, and I was almost certain that people would either laugh or talk about my spots behind my back. In a few years I had developed a 'constant acute awareness' of other people's behaviour, and it was almost like being a 'human-radar'. Everything out of 'the ordinary' I would pick up and process.



Added by Tommy on July 28, 2014 at 6:00am — 4 Comments

Is anyone else struggling with the cost of having alopecia?

I am not ready to go wigless, but cannot afford nice looking wigs anymore. I have been paying $150-$250 for synthetic wigs that look good. These are the cheapest ones I can find that look decent. The problem is that they don't last long. I have to buy at least 3 a year. As a mom of 3 and a teacher I do not make enough to keep buying nice wigs. Is there any support out there for the financial burden of being bald?

Added by Jackie on July 27, 2014 at 7:49pm — 5 Comments

Ayurvedic treatment

Hello All

My wife is 29 years now and her hair is becoming very week and density is also becoming very less in overall the scalp. We are worried as this may be alopecia or female pattern baldness.

Will the ayurvedic treatment helps her to improve the hair condition, do any one have got treatment from Dr. Rohit's Herbal Treatment for this problem [alopeciacure.com], will this help, can you please share you experience with his treatment. 

Thanks., Raju

Added by ssraju on July 27, 2014 at 12:39pm — No Comments

Need advice

Married 3 months ago and never let my husband saw my baldness head without wig . Even when I sleep I use it, it's not comfortable but I can't show my problem to the closest Pearson to me ,
Or talk about it to the people !!
And hate the questions !!
I want to feel fine And live in peace inside and can work with all confidence !!
Also I fear if my husband saw my head without hair ... How he will feel .??

Added by Amouna on July 25, 2014 at 8:33pm — 8 Comments

My insurance covers a wig

I called my health insurance to see how it works for them to pay for a wig for me. They said I make an appointment and the doctor prescribes me a wig. Does anyone know if there is like a specific list of places I can choose from or can I get it from anywhere? If I can get it from anywhere, I'd like to get the best wig possible. I do have hair that's like 1/2 inch thick so any suction wigs will probably not work.

Added by Jennie on July 24, 2014 at 11:00pm — 2 Comments

Should you feel that you have to explain? NO but I do

A couple of years ago I was on holiday in the Dominican. One night,in the restaurant, the man on the table next to ours started asking me about my hair! Wig. He asked me how I had got it curly and if it was permed. I replied that it wasn't naturally curly and smiled hoping that would be that. But his wife kicked him under the table and apologised to me for her inquisitive husband. He told her 'shut up -you don't know it could be a WIG', enough was enough so I said 'well yes actually it is a…


Added by wisteria on July 23, 2014 at 10:00am — 37 Comments


Hi! I was diagnosed a few months ago and recently my head has become more itchy and I don't know whether ya paranoia but I believe my patches are getting bigger - are they any warning signs I should look out for incase this starts to turn into Totalis?

Added by Chelsea on July 22, 2014 at 12:02pm — 4 Comments


Hello everyone!

I was wondering if anyone could help me out! The bald spots on my head are SUPER itchy. Is there anything i can do to stop it from itching? 



Added by Sara on July 22, 2014 at 8:00am — 1 Comment

What's the cure?

Or should I say, what am I trying to cure? My hair started falling out when I was 9. I've lost "love", been angry, been depressed, been there... I'm done with that. I don't care if there's a cure for hair growth anymore. I can only hope that there's a cure for insecurity, shallowness, and feeling left out. Self acceptance? Emotional growth? It would be like trying to find a cure for a dysfunctional society. I wonder who made these crazy rules anyway. Stupid rules about how everything should…


Added by CandiiP0w3r5 on July 21, 2014 at 9:11pm — 1 Comment


Anyone ever see the info out there about Keranique products to regrow hair ??????

Added by Kat on July 20, 2014 at 7:20pm — 3 Comments

San Diego area International Alopecia Day event on August 2

If you're in Southern California, join us for an International Alopecia Day luncheon in San Diego on Saturday, August 2. Bonus: I'm planning on going on a Bald Mannequin Project photo shoot in the nearby mall after our lunch for those who would like! Celebrate the 5th annual IAD with us from 11:30am - about 1:30pm at Cozymel's in the north part of San Diego near I-805. Private room, party! Please RSVP to me if you would like to come. Family, Kids, Friends are welcome. Bald is optional -…


Added by Mary on July 20, 2014 at 1:52pm — 4 Comments

Random upset

As I've had alopecia for ever I feel really strange to find I'm crying over a loss right now.
I'm unsure the trigger but just been thinking how sad I'd feel to loose the random patches of regrowth although there is no guarantee it will even stay. But what has caused it to come? What was the trigger to cause it to grow? Why can't I work out what I've done differently to keep it growing? Why am I even bothered? And why right now do I feel so sad over it.... not a good alopecia day :(

Added by KFlame on July 18, 2014 at 2:00pm — 4 Comments

Sad in Chicago

Just found you guys....I was diagnosed with FFA last year after going round and round to docs looking for reasons I was losing my hair, only to be told I had female pattern baldness, but it proved to be a much more specific diagnosis and I hate it.  Losing from the front to back is just weird and there does not seem to be anything to do about it.  I have lost most of my eyebrows, all my face fuzz, arm hair and leg hair, as well as my ridiculously receding hairline front and by my ears.  I…


Added by Sad in chicago on July 18, 2014 at 1:10pm — 7 Comments

Dyeing a wig?

I have a black lace front wig and it's not the colour I want. It's real hair.. Has anyone ever dyed a Black wig like stripped it and then coloured it the colour they want. I'm thinking a chocolate brown colour but I don't want to go ahead and do it as if it messes up that's a lot of money ruined..

Added by Natasha on July 17, 2014 at 10:30am — 5 Comments

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