October 2010 Blog Posts (73)

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Why I'll never again be upset when people assume I have cancer: Experiences as a bald woman in Indonesia

This is a bit long, but please read and share it if you have ever felt upset at being mistaken for a cancer patient, and/or if you are travelling to other parts of the world as a bald woman.



I've just returned from 5 and a half weeks in the beautiful country of Indonesia with my husband. The purpose of our trip was scuba diving - Indonesia has some of the finest diving in the world - and we'd never been there. In 23 days of diving at several locations, I did 71 dives. The underwater… Continue

Added by Mary on October 31, 2010 at 6:30pm — 14 Comments

Building a roof update

Last night was our first missionary meeting. From January 19 to 29, 2011 I will be heading to Nebaj, Guatemala. I had been asked by a coworker prior to the meeting why I would go to another country to help people when there are people here that need help. After the meeting I now know how to answer that question - because they need it more! The rivers are apparently filled with waste from a very primitive sewage system and there is garbage everywhere because the only dump is in Guatemala city… Continue

Added by Carol on October 28, 2010 at 9:00pm — 2 Comments

Falling back out

So my head has started itching more since I've been letting my hair grow in and I just went to scratch the back of my head and found that 2 of the spots where I had re-growth, are completely bald again :( I've been Ok with being bald, I haven't cried once. But I think now its just getting REALLY ridiculous. It teases me with beautiful re-growth, only to make it to like an inch and then start falling out again. I told myself not to get excited about it, I should learn to listen to myself a… Continue

Added by Tamara on October 28, 2010 at 11:05am — 10 Comments

Tangles

Just want to shout out to see if anyone has any tricks for keeping tangles away. Especially the underneath of the back. It's so frustrating. The only trick I have so far is to load up on mousse so it's so crunchy it just sticks to itself.

Added by Lynn on October 27, 2010 at 7:07pm — 7 Comments

Losing my sense of security

If you have never been the victim of a robbery or burglary, I pray you never have to experience it. I on the other hand, have to re-live the fear I experienced when I was robbed on my job 11 years ago. This time, it's a lot closer to home, literally -- on Friday morning between 9:30am and 12:30pm my house was robbed. They took all of my electronics, but were very neat about how they did it, indicating that someone who knew my routines and had access to my house committed the crime. The robbers… Continue

Added by kastababy on October 26, 2010 at 2:40am — 5 Comments

Trying a "True to Life" Synthetic wig by Raquel Welch...

I just ordered a new wig from wigs.com. I never order synthetic but I'm saving for a vacuum wig, so I'm trying to save money... I ordered a Raquel Welch Synthetic Tru2Life wig. I hope it holds up...

Added by lyndsey tolson on October 25, 2010 at 12:57pm — No Comments

To boost or not to boost

I guess I was just wondering if anyone else has been confused with regards to boosting their immune system and whether or not this can impact on alopecia.



Alopecia is a auto immune system disorder so would boosting your immune system make it worse? However typical unhealthy behaviour and traits are linked with lowering immune response -smoking, consuming junk food, no exercise etc.



I read that if you boost your immune system that autoimmune disorders would actually benefit… Continue

Added by carl on October 24, 2010 at 8:21pm — 3 Comments

Building a roof

I just registered with Missionary Ventures Canada to head over to Guatemala in January for 10 days. The purpose of the trip is to help finish constructing a church and putting a roof on it. I'll be working hard and paying for a portion of the trip myself however there will be a fair deal of fund-raising going on. Everything happens for a reason and I think that God has a plan for each and everyone of us. Today God combined the idea of my missionary venture and my alopecia, he was even gracious… Continue

Added by Carol on October 24, 2010 at 2:52pm — No Comments

Halloween Costume Ideas

Okay, Americans: what are this year's ideas besides
Uncle Fester,
Dr. Evil,
Mr. Clean,
Gollum,
Freddy Kruger,
Charlie Brown,
Mace Windu,
Evey from “V for Vendetta,”
Kenneth the Zombie Killer,
Lex Luthor,
John Coffey,
Yoda,
Homer Simpson,
John Shaft,
Dr. Evil, and
Mr. Magoo?

What did you choose? Post photos here!

Added by Tallgirl on October 24, 2010 at 9:00am — 11 Comments

A little story from me!

In English the whole entire class had to write about something that has affected our lives. So of coarse I was going to write about my years with alopecia. I told my english teacher that I have alopecia. So I was ok to write about alopecia. But, I wrote secret words in my story so nobody in my class could find out what I was writting about.

Secret Words: palooza= alopecia, paw= hair, and sock= wig! Put these words where the secret words are and you will figure out the story! Hope you enjoy… Continue

Added by Nicky on October 23, 2010 at 5:30pm — 10 Comments

It's all beginning to make sense now - things happen for a reason

When I say that things happen for a reason, I honestly believe it.



In my last post(s) I mention how my daughter has alopecia too...turns out, she most likely has trichotillomania (trich for short) (http://en.wikipedia.org/wiki/Trichotillomania) instead.



My beautiful girl is pulling her hair out by the handfulls - think of the width of a pencil - that's how much comes out with each tug. We are finding it behind the… Continue

Added by Sandi Walmsley on October 22, 2010 at 11:41pm — 3 Comments

The value of a support network, and "It gets better"

Last week was National Coming Out Day (on October 11). I work on a University campus, and since campuses are known for social outreach it was a well documented and discussed event. For those of you that don't know, National Coming Out Day is an awareness day focusing on discussion about the coming out process for Lesbian/Gay/Bisexual/Transgendered and Question individuals, especially teenagers and youth.



In reaction to the tragic bullying-induced suicides of recent, this year there… Continue

Added by Kate on October 22, 2010 at 10:30pm — No Comments

Day by day

Or even minute by minute. Haven't posted in a while. I went to the wig specialist, just waiting to hear back from her. I was pretty specific with what I'm looking for, its a little shop and she didn't have much on hand but hopefully we will get something that looks good. Anyone have any wig info to share ? Since I don't really know what I'm doing any advice would be appreciated.

My hair loss is still gettng worse, the dermatologist prescribed a second cream Elidel, I have been using… Continue

Added by Kelly Hamel on October 22, 2010 at 10:12pm — 2 Comments

It's a new day (part 2)

Due to my rediculous work load this semester, I am just completely exhausted from writing so many papers. Good news for you is that you don't have to listen to me carry on about nonsense. As I mentioned in one of my previous blogs, music is my therapy. I cannot function without it. A particular song is what put me into such a spunky mood this morning (which have been few and far between lately): "I Choose" by India Arie. Absolutely inspirational. If you've never heard it, it is well worth the… Continue

Added by Alex on October 22, 2010 at 12:12pm — 2 Comments

It's a new day...to be continued

This is going to be a farely short blog...for now. I have to be in class in 20 minutes, but I had an epiphany as I was getting dressed this morning. People stare at me all day long, so why not give them something to look at? I typically am a 'plain Jane.' I don't really like to stand out. Instead of being stared at looking 'average' (whatever that is), I decided today that I am going to look the best I can every day. Instead of 'hey, look at that bald girl,' maybe it will go more like 'hey look… Continue

Added by Alex on October 22, 2010 at 8:55am — 2 Comments

"Shake It" - happy moment

This is a happy and short blog.

I just felt the need to share with all my fellow alopecians that for the first time in my life, or at least all the years of having alopecia, I am happy being bald. I like what I see in the mirror and I love rubbing my head. Actually I spend alot of time rubbing my head. LOL I had spent so many years (26+years) hiding the fact that I have alopecia. Spent so many years treating (painfully treating) the hair loss, and crying. It dawned on me today that this is… Continue

Added by Bald and Fabulous AKA Terri on October 21, 2010 at 9:31pm — 5 Comments

New job

well i thought i had wrote a blog last night but it didnt seem to come up. but it was just to express how i feel just now, ive been doing ok and have some colour change in my regrowth which is brill but still early days so will need to see what going to happen, anyway i have decided to move stores for my work which im now working with new people as well, only 3 people know about my alopecia who i worked with before and are also moving. i suppose im just very worried about how to deal with my… Continue

Added by lynne on October 21, 2010 at 3:00pm — 6 Comments

My head itches!

My head started itching again about two days ago. Funny how it no longer "just itches" but now I can't help but wonder..is it fixing to start falling out again? I think my husband is in denial, he, as I already posted, says I do not need to be looking at wigs, and now, he says, "You dont know that it WILL fall out", but I think I cannot live as if it wont. I have to expect the worst. I can't deny this could happen. I have started counting hairs that I see come out...though it has been light… Continue

Added by Diana Carter on October 21, 2010 at 2:30pm — 10 Comments

Quick question! I just noticed...

Hi all, Just a quick question...Can it mean I may go AU or AT if my eyebrows no longer hurt when I pluck them, I am missing some parts of my bottom eyelashes, and have bald patches on my legs...Just curious...Thank you

Added by Trish on October 20, 2010 at 9:46pm — 2 Comments

Is it possible to have found your own cure?

i have been thinking a lot lately and i realized that im starting to get all my hair back, my eyebrows are growing back, and im getting a few eyelashes, i think i have found my own cure for this. before i met my boyfriend my hair would keep falling out like it was going out of style and when i met him my hair started to grow back, and i dont have many bald spots anymore, i think he is my own type of cure is this possible??

Added by Brandi Badzinski on October 20, 2010 at 4:32pm — 10 Comments

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