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I'm Grumpy Today.

Today my boyfriend warned me that he could see a spot. He knows how I obsess over each new spot and he also knows that if anyone but him pointed out a spot to me I'd probably brake down. I've been dealing with some other health issues so my defenses are way down.

Every since I was diagnosed I've been losing hand fulls of hair in the shower. I've taken to washing my hair less with the idea that out of sight is out of mind but the other day a CHUNK fell out. I felt hope die a little. I know… Continue

Added by Kat on June 9, 2009 at 11:46pm — 5 Comments

Has this happened to anyone else?

Wanted to know if this has happened to anyone else! Had 2 bald spots since Dec, then a third one started.Hair is starting to grow back.Had 1 set of kenalog shots and have been going for acupuncture. All seemed good for the last month. NO hair falling out! The other day I ran my hand through the back of my hair and noticed hair falling out. Then the God almighty terrible feeling came rushing back. Got out the dreaded mirror and sure as I thought another new spot, about the size of a fifty cent… Continue

Added by Katie on June 9, 2009 at 11:07pm — 4 Comments

how much more hair can i lose...

I feel like i just see 15-20 hair every 15 minutes on my clothing.. Not to mention the shower..How long do these episodes last. I get so sad. Waiting for my biopsy to come back in a week..What is going on?? Have to vent can't take it anymore..

Added by Lori Villa on June 9, 2009 at 8:31pm — 5 Comments

Introduction

Hi there, I am Christine. I have had alopecia since 1998- my hairdresser noticed a small bald patch behind my right ear.In 3 years it progressed to me being fully bald on my head, and a couple small patches on my arms and legs. When I had lost most of my hair, all but a thin patch, my parents decided to buy a wig for me for Christmas that year. It was amazing how much it helped. It wasnt anything fancy, just a $35 wig from a local wig shop run by an Asian lady. She helped us pick it out, said… Continue

Added by Christine Peck on June 8, 2009 at 10:46pm — 2 Comments

stupid dermotologist):

so i went 2 the demotologist 2day didnt go so good.....so me and my mom drove 1 hour 2 get there and my dad was working down there so he helped us find are way. when we got there we got in right away everything was going good they told us a doctor would be down there soon but 3o minutes later the nurse came back and say my doctor back home didnt send the blood test to the dermotologist and they had 2 get them so they sent me back to the waiting room and 30 more minutes later they sent us back… Continue

Added by Nikki Mans on June 8, 2009 at 8:45pm — 7 Comments

Performed bald for the first time last night!

I'm a drummer with a couple of Balkan bands and since losing my hair, I've worn one of my Turkish scarves while performing (as shown on YouTube videos - search for "Dromia stoynoff"). Though I've gone folk dancing bald, I've never gotten up on a stage and performed without my scarf since I lost my hair. I just haven't been ready to be up in front of people on a stage, bald.



Last night I did it! It was warm, and I was working hard drumming with some visiting musicians, so I took off… Continue

Added by Mary on June 7, 2009 at 8:03pm — 7 Comments

seem ok

why is it everyone tells me im takin it well, wen im not really, i hate bein bald i hate the fact that my eyebrows and other body hair is thinnin, i am so hurtin inside that no 1 knows' apart from the people that r on this site, i hate it like really hate this havin not hair,no confidence left now, didnt have much before that anyway. people will never ever understand how u feel until they have bn thro this themselfs, i her my friends n family sayin how gd it would be if no one had there hair to… Continue

Added by lynne on June 7, 2009 at 6:54pm — 17 Comments

not such a good day :(

Today wasnt a good day at all!!! I went to a military ball last night and all the girls were looking at me weird!!! so today I was all down because I just dont feel pretty. Ugh I just wish It would go away . I wont long beautiful hair and not have to deal with this!!! I guess today was just not a good au day for me.

Added by Izzy on June 7, 2009 at 12:16am — 1 Comment

My 1st Blog

Ok, so this is my first Blog on here. I maybe just need to vent abit.

Im feeling rather down, and glum.

I was diagnosed with alopecia almost a month ago. It was mainly the left side of my parting and I have been applying some caffeine stuff I bought from Boots, willing it to work.

Ive felt the last few days that my hair at the back felt thinner, so tonight I took a look and there seems to be a patch. So I cried my eyes out.

Im scared, and it all feels worse because I'm… Continue

Added by christina on June 6, 2009 at 7:48pm — 4 Comments

Help Me Help Myself

I am a young looking 50 y.o. woman who was recently diagnosed with Alopecia. It all started around Thanksgiving time, while in TX visiting my daughter, when she was drying my hair. She said, "Mom you have a bald spot!" That small bald spot has gotten much bigger (probably the size of a half-dollar now) and I find my hair everywhere in the house. Now it seems like on the sides it is really thinning out and I'm scared to death that I will go totally bald. Any help, assurances, etc. would be very… Continue

Added by Pamela Garrahan on June 6, 2009 at 11:09am — 4 Comments

County Fair

I am very pleased to blog about my experience tonight. I went to the county fair this evening with my friend, her son and my 13 year old daughter. I wore a light blue bandanna on my head, pulled low to cover half of my ears. Because I have stubble by my ears and I wanted to cover that. The whole ride there, all I could think about was how I was going to feel once I got inside. We parked about 3 blocks away and walked to the gate. As we were walking, about half-way there I started to feel very… Continue

Added by Kristen Viveros on June 5, 2009 at 10:56pm — 8 Comments

Definitely Worse Things Than Alopecia

Well first off sorry haven't been around. Between visits from in-laws that lasted almost a month and other things it just hasn't been possible.



This week I lost my grandmother. We buried her today. She passed away Tuesday morning at 11 am. I was out running around doing appointments and my parents called and left a message saying she was dying. Because my parents couldn't get a hold of me they got a hold of my husband who rushed home and gave me the sad news. She had died. The… Continue

Added by Lori M on June 5, 2009 at 10:00pm — 1 Comment

Time flies when you're busy!

OK don't be mad, I haven't been neglecting you all, I has just been busy folks! My hours at work are picking up so even though I'm part-time, it's more like full-time in the summer but let's face it - no one really wants to build a deck in the winter! On top of that I am making sure I have everything planned out for the CAP conference which I will be doing a workshop at. My current problem is writing a short bio - writing a short anything about me is difficult. There was a point in my life when… Continue

Added by Carol on June 5, 2009 at 9:58pm — No Comments

The shower is not my friend...

And for that matter, either is;



- The stupid wind

- My ever insulting hair brush

- My constant mocking pillow case

- Don't even get me started on my asshole hairdryer

- Even my slimy fingers have given me grief these days

- Oh and then there's the good ol' dermatologist... yea, we won't EVEN go there...



I'm not sure how my boyfriend and family will feel about my break-ups, especially with the shower... but, lucky for them, it's one relationship I… Continue

Added by eva on June 5, 2009 at 9:30pm — 4 Comments

Debut

The picture on my page is the first time anyone other than my husband and daughter has seen me without a wig. I am slowly working toward going out one day without my wig. I think I look just fine without hair and my husband loves the way I look. I am just afraid of how people will react and weather or not I will be able to handle it. My goal is to go without my wig by July 19th. I felt very good posting my picture it was quite liberating.

Added by Roslyn on June 5, 2009 at 9:03pm — 3 Comments

mrs.almos and goals

mrs.almos was a teacher i had for one class in fourth grade so, i didnt no her that well but i always thought she was nice..... this year she was diagnosed with breast cancer shes bald and really sick...... my mom saw her today in the grocery store my mom was talking 2 her, i wasnt there so my mom told me this, she told my mom how she heard about me and that me and her were strong and can get through this thank u mrs.almos



GOALS

i am going 2 set some goals. i learned in health… Continue

Added by Nikki Mans on June 5, 2009 at 6:00pm — No Comments

Bald is Beautiful!!!

I am haveing a hard time dealing with the fact that I dont have any hair. I graudated high school last year and yea.... High school was really hard. I have had alopecia since I was in the 2nd grade but it never really bothered me being bald until I hit high school. People were really mean to me and I didnt understand why cause it wasnt my fault. People would walk past me and say stay away from the girl with the disease and I would just go home and cry everyday!!! I had to wear hats to school… Continue

Added by Izzy on June 5, 2009 at 8:02am — 4 Comments

Regrowth...???

Well it seems my hair is growing back, however I cant help but worry that this will more than likely wont be a permanent thing and it will eventually fall out again...but then again, I should just be happy that so far so good. What mixed emotions this alopecia brings, getting used to the ups and downs is quite tricky, taking one day at a time seems to be the best action for me :)

Added by Bel on June 5, 2009 at 7:08am — 1 Comment

YOU ARE LOVED.

I went to town without my headscarf on today. My heart was beating so fast and i was nervous. The last time I did so was when I was with Margaret, a fellow alopecian. I asked myself can I really face the world on my own? Will that high I felt the last time be there again or will I be terrified and self-conscious instead? I braced myself and decided that I will never know the answers to those questions if I didn't go ahead and do it. So I did.



At first I was terrified and as much as I… Continue

Added by Salmezan on June 4, 2009 at 4:58pm — 6 Comments

First day nekkid

June 4, 2009



So today was the first day back to work with my new nekkid head. I prepared a lot of ppl, but still I was greeted with "Whoa! Why? The summer 'do ?" A few ppl I just nodded at and said it was for the summer. A few others I kinda filled in some details.



The Surprising thing was, when I mentioned Alopecia, a few people nodded and said they knew or know someone (else) with AA. Either someone they know had a small patch lost and then it returned or a relative has… Continue

Added by WyldCard on June 4, 2009 at 4:38pm — 5 Comments

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