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My Introduction to Alopecia

In December, 2006 my daughter, Rachel, was wearing her hair up in a ponytail and a friend asked her what that bald spot was. The spot was about the size of a quarter. We took her to a pediatrician who told us not to worry about it...it would grow back.



By February, the bottom half of her head in the back was bald. We took her to a dermatologist, who broke the news to us that she had AA. I was devastated. All of my hopes and dreams for her felt like they were smashed to tiny pieces.… Continue

Added by Paige on March 2, 2009 at 6:02pm — No Comments

Other People

I"m a fairly stubborn, also resilient person. I've seen people suffer, seen people go through pain and seen people bury loved ones. Heck, i've gone to friends' funerals, at 22 years of age. I have seen people from school end up paraplegics, seen kids i have looked after get limbs amputated because of cancer tumors. I've always been a fairly philosophical, realistic person, however these experiences have always made me grown up more, and have always made me see truth in my realistic views of the… Continue

Added by SportyAusGirl on March 1, 2009 at 1:55am — 5 Comments

Hair Growing back

I finally lost all hair except a few strands, it came out soo fast. Anyways I am growing it all back once it fell out it all started to grow back, and its thicker than it ever was. I was wondering if anyone has ever experienced this before that there hair fell out only once and just grew back all together. I am hoping it was just a one time thing. See all my hair started falling out once I was on a blood thinner heparin, which a few months ago they had discovered it was contaminated in the time… Continue

Added by Laura on February 28, 2009 at 5:41pm — 6 Comments

like an eagle.

golly, it's always nice to hear how I'm pretty -even though- I'm bald.

Warms my heart to know to know it's not that grossly distracting.





You know, I think I'm pretty good at having a positive attitude about all of this alopecia junk, but sometimes it's really discourging. Why does everybody's responce to "I have no eyebrows" have to be "you can get tattoo eyebrows." Or whenever it comes up.. I'm always encourage me to wear wigs/scarves/hats/etc, because then nobody… Continue

Added by Kristin on February 28, 2009 at 12:30pm — 1 Comment

How dare they call my daughter names!

It does make me so angry when I hear that ignorant losers have called Hayley insulting names, it want to punch them all very hard - although I do realise that wouldn't be a good move!! I would like to tell them all that they will never come within a thousand miles of being the inspirational and wonderful person that Hayley is. It makes you want to believe in karma and that all people get what they deserve in the end.

Added by Sheila Burton on February 28, 2009 at 6:38am — 7 Comments

It's alive!

Sooo,



Went to the derm today. The Lidex gel I was using was starting to give me some zits (3) in my spot..gross. She suggested I take it a step down and use something a little less strong. Gave me some samples, which was cool. Also got more shots...which, I would like to say, hurt like HELL. I remember the shots hurting from the 1st spot, but these really really hurt...we had to take a break!



Anyway, the good news is that the whole spot is covered in hair! My husband told… Continue

Added by Amy on February 27, 2009 at 10:48pm — 2 Comments

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Added by Alopecia World on February 27, 2009 at 2:30pm — No Comments

My baby

well as most of you know my 8 year old has Alopecia and has for almost a year now. We have decided to stop treatments as they do work but hair just falls out in other places and falls out again in the regrowth, so whats the point. I just wanted to share that we have stopped obsessing over how to treat it and decided to just live with it.

Added by Tracy on February 27, 2009 at 5:39pm — 2 Comments

To speak or not to speak, that is the question!!!!!!

Yesterday as I was travelling back from London I stopped at a motorway service station for a coffee. As I stood in the queue another “Alopecian” joined the queue. It was clear that he noticed my Alopecia. It is obvious now that I am not just simply bald as my eyebrows have virtually all gone and so the alopecia is plain to see. He was also completely bald and had no eyebrows so I naturally assumed he was the same as I am, AU.



I was speaking to the person behind the counter but I… Continue

Added by Ray on February 27, 2009 at 12:00pm — 8 Comments

question on hair regrowth

when hair grows back in , does it always grow back in your natural color or white? Does it itch? My hair is growing back and i'm wondering for all of you out there who is going through the same thing is it normal?

Added by Nitza on February 27, 2009 at 11:24am — 6 Comments

alopecia areata.

Hi , my name is Katie and I am new to this site. I hope someone can help me deal with alopecia areata. I had one spot in November, the hair grew back. Now I have 2 spots the size of a half dollar. The dermatologist injected the spots about 5 weeks ago, hair continues to keep falling out of the same spots. Will go back to the dermatologist next Monday.

Added by Katie on February 25, 2009 at 6:45pm — 2 Comments

dear life, you're strange

I have an excessive urge to leave detroit. im trying to get a few weeks off work.. gonna bail to vegas and kick it with steve and then have jon pick me up and take me out to long beach, cali.

just... want...vacation ..



havnt thought much about my hair lately.. but im still shedding like crazy! but i have almost complete regrowth on my giant patch on the right side of my head. which is cool... cause i mean, it looks insane. i kind of enjoy looking at it. my friends reassure me… Continue

Added by tat on February 24, 2009 at 7:23pm — 3 Comments

Appearance questions

I have been looking at everyone's pictures and I am noticing that no one has a red scalp. I have been diagnosed with AA and my scalp is red and often feels tingly. Also, I haven't lost my hair all at once. It has been thinning for over a year now. The part that is frustrating is that I keep thinking that my hair is growing back b/c I have hair that is about an inch long around my face (it's like baby hair and it's kind of unmanageable), but as time has gone by I am realizing that my hairline is… Continue

Added by Cathy on February 24, 2009 at 7:00pm — 5 Comments

Weaning work into accepting alopecia

I've been working at the same place for over 7 months now. For those of you who don't know, I endured wearing a wig during the interview process and for the first probationary three months. After three months I ditched the wig and at my managers suggestion that the "customers" would feel more comfortable with seeing something on my head, I donned a scarf or bandana. Since I've worn the scarf I noticed that people seemed to be more concerned that I was ill. I've been asked if I had cancer and… Continue

Added by Carol on February 23, 2009 at 3:13pm — 7 Comments

Stupid regrowth

Why can't my hair make up its mind?



I shaved my head about a year ago 'cos I was sick of having half long straggly hair, half bald head. I got a freedom wig which I love and wear almost all the time.



Then about 6 months ago, I stopped having to shave at all - which was nice.



Now I have more hair than I've had in a while - most of it is white fuzz but some is getting some colour back too. Part of me thinks, what if it all came back?! But realistically, I know… Continue

Added by Karina Louise on February 22, 2009 at 9:17pm — 9 Comments

name-calling!

someone shouted "haha cue-ball" at me the other day....ggrrrrr.....

then today, some local idiot took the piss out of my hat.

I can't win! laughed at for being bald, laughed at for my hat. losers!!!

Added by Hayley Burton on February 21, 2009 at 7:51pm — 7 Comments

Eyebrow Tattoo...!

I'm getting my eyebrows tattooed in about two weeks and I just wanted to know what the experience is like...Does it Hurt? Is it uncomfortable?...I'm really excited about it my grandma and auntie are going to pay for it...its their birthday gift for me..I'll be 20 on 3/19! So if anyone can tell me what their experience was like or anyone that they may know experience was like please comment!

Added by Montoya Grant on February 21, 2009 at 3:31pm — 13 Comments

Well tomorrow has come and gone again...

I am still sad, stressed and depressed!

I am still confused, tired and hurt!



Sad, because I want to just hide under the covers of my sheets and sleep until my hair grows back!

And now reality has just struck… it may never grow back

I feel I can't go through another day like this…



Stressed because I have been trying to avoid going back to work,

I really do think it was the job and boss I had back in October

I blame him for all this has happening to… Continue

Added by Ursula on February 21, 2009 at 9:30am — 9 Comments

Oh boy... definately need some help on this one guys...

It's only been just over a month since it's started falling out for the third time in 3ish years and almost all of it has disappeared. It surprisingly didn't hit me hard this time, suppose I'm getting used to the hair on my head falling out.



Now, this time is different from others though... very unfortunately. I am now blessed with losing my eyebrows and eyelashes... :( I am quite unhappy with that matter. They are falling out from the ends inward and inward to ends so it's starting… Continue

Added by Courtney on February 20, 2009 at 11:12am — 5 Comments

for my cousin who was so concerned... How are you? she asks :(

Its hard to talk when you have a big lump in your throat;

feels like I can't stop choking...



This pain, it hurts so much! I am trying so hard to let go...



I am trying my best to understand!



I am! I AM!! trying to understand WHY ME????



How can I make other people understand,

when I don't understand myself...



I am tired of being in the dark, hiding... feeling ashamed

tired of crying...

feeling so alone!



Can… Continue

Added by Ursula on February 19, 2009 at 3:50am — 3 Comments

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