All Blog Posts (5,832)

Mini-Mes

You know the scene in the movies where the mini mes sit on your shoulders speaking in your ears????

Lately I have found that is what Im experiencing.

Its like one moment Im loving my bald look, I have a nice shaped head, and I like the smoothness. Shaving was the far better option as oppose to living like I was.

But in the very next breath, I get all sad.....I really have no hair. I will run my hands over my head and there is nothing. There really is nothing. Maybe for a little… Continue

Added by Bald and Fabulous AKA Terri on March 9, 2011 at 7:14am — 4 Comments

My little girl

My little girl (who is 2) woke up yesterday fine. 9 hours later when I picked her up from daycare she had a bald spot that was fairly noticeable...The doctor tells me it is Alopecia... I am unsure about everything...I sit here and ask myself what causes this and will her hair come back or will it keep getting balder.. I dont know what causes this and I feel so lost...Is there a cure? what tests will they do?? I need to know answers and nobody can help me....Next week she is going to a… Continue

Added by Melissa(Breanna's Mommy) on March 8, 2011 at 11:38pm — 5 Comments

Why?

Why me, why you, why us???
I just don't get it.
Just like that, stripped from my identity.
It really sux.
I just want my life back.
But then again, what is normal??
Why were we chosen??

Added by Patricia on March 8, 2011 at 6:23pm — 2 Comments

The Good Life

Has anyone seen The Good Life? The main character has alopecia and I liked how the writers and the director portrayed it. It was an issue that the character dealt with but it didnt define his whole life or take over the main message of the movie. It said just enough. At least I think so.

Added by Camille Reinecker on March 8, 2011 at 5:21pm — 4 Comments

Does anyone else have this?

I'm new to this site but sadly not new to the hair loss. I have so many people telling me I have alopecia and then others saying I don't.. I don't know what to think anymore.



The first time I lost my hair, it grew back like weeds within 3 months. The second time I lost my hair was 11 months after the first time I lost it, and this time around I'm losing my eyebrows and eyelashes too. I don't know if I should be hopeful that it will magically grow back again in a month or to believe… Continue

Added by Jessica on March 8, 2011 at 3:50pm — 5 Comments

Curly regrowth?

My areas of regrowth are growing in CURLY! The rest of my hair is mostly straight, but the regrowth is quite curly. My dermatologist said that she has no medical explanation for this, but she has seen this before--sometimes regrowth is curly and sometimes stick straight. Anyone else have this?

Added by Michelle on March 8, 2011 at 1:13pm — 9 Comments

Getting more comfortable

Well my friend Liselle called me out about not bein on AW lately, so I decided to post a blog. Thanks Liselle for reminding me to blog!



I am getting more and more comfortable with my wig, I am actually getting more comfortable with my buzzed hair too. I actually have showed it to my bestie's kids and husband in KY. I skype with her since we are 6 hours away. They all said that I look good, but of course they aren't seeing the top of my head, but atleast they make me feel comfortable… Continue

Added by Julie G on March 8, 2011 at 8:42am — 2 Comments

To shave or to not shave

I'm so frustrated. I look ridiculous with a giant bald spot on the back of my head, but I will look ridiculous bald. I've just got to take the plunge and shave it all off. I'm thinking about investing in a hat... I'm 22 and have never worn a hat before. My wife keeps telling me that she loves me no matter what, but I feel guilty that she has to go through this with me. How long until the depression lets up?

Added by Joshua C. on March 8, 2011 at 8:16am — 5 Comments

Going "all the way"

Is there anyone (I am sure there is) who still has some scalp hair but has shaved it off? Do you need to "shave" daily? Does it look like you have light and dark spots all over your head? I need some input because I am thinking of getting rid of what is left of my hair.

Anyone?

Added by Anne Williams on March 7, 2011 at 7:22pm — 6 Comments

2 years - wow does a lot happen...

Wow, two years since my last post here on AlopeciaWorld. Time flies! I am disappointed that I missed out on two years on here... I suppose life got busy though...



Speaking of 'busy'.... I'm pregnant!!!!!!!!!!! Yep, roughly 16 weeks down, and only 24 more to go!!! So exciting! But, what I really wanted to discuss was the fact that my hair is growing back!! I wondered if anyone else has had this happen to them or has known of this happening to someone they know? I know that pregnancy… Continue

Added by Courtney on March 7, 2011 at 10:05am — 1 Comment

Done...bald...transitioned...spot-less...liberated!

I will forever remember Saturday, March 5, 2011, the day I buzzed off what appeared to look like a light, scattered bird's nest on my head. It was amazing. I returned to my hometown, NYC, to my hairdresser of 19 years, Skipper Edwards. I initially went to Skipper because he was my sister's hairdresser; he was good with hair of women of color. Being bi-racial my hair was kinky, although it could be blown out. He proceeded, throughout the years to cut, style my hair in an appropriate way to hide… Continue

Added by Lili Añel (aka Eulalia) on March 6, 2011 at 9:30pm — 23 Comments

2 years ago today, wow time flys!!

so 2 years ago i sat in a dermatologists office to be told "you have alopecia", i have never been down about having it, and i have met so many people on here and facebook who have it, so i'm definitely not lacking support and friendship that is for sure, it has been a pretty fun ride!, for those of you who know me you know that i'm always positive, yeah i have my days but i'm never negative about much, well its been a fun 2 years, wow it went quick!!







you who don't have me… Continue

Added by Paul on March 6, 2011 at 5:29pm — 2 Comments

The horrors of getting a hair cut when you're so close to bald

So, I still have enough hair that I'm not wearing a wig or topper as of yet. But, trust me that my scalp is VERY easy to see at the right angle in the right light. I hold my hair up and I can see my entire scalp from the front to the back of my head. Strangely enough I'm beginning to accept it.



I knew I had to get a haircut- I had split ends and it was looking shaggy. I took 3 of my anxiety pills and went into the salon. I had a hat on, and before I took the hat off, I told her that… Continue

Added by Jennifer Schlueter on March 5, 2011 at 9:33pm — 5 Comments

And something about the fringe that makes me look like a hippy

My new wig arrived Thursday. Absolutely gorgeous! very very long chocolatey brown colour. I'll post a photo at some point.

I got it, I loved it. It was brilliant.

And I was a total mess all day.

I'd be totally fine one minute, then all panicy and sad and angry the next. Then I'd be fine. I had no idea what was going on for quite a while.



Then it kind of struck me:



Imagine holding the thing you want most in your hand. Imagine getting that thing which will… Continue

Added by Georgia Gardner on March 4, 2011 at 11:09pm — 12 Comments

New hair!

I just got my first wig today. Went to the wig shop with my husband. He liked the one I picked out and another one also (shorter, same color) and insisted that I buy both. Since I always wear a hat or scarf, the wig doesn't feel that strange. I have decided to have fun with my new hair. Now I am contemplating whether or not to get rid of what I have left of my own hair.

Does anyone use those gel headbands? I am thinking of getting one just to add a little security.

Added by Anne Williams on March 4, 2011 at 9:19pm — No Comments

"I'm a survivor" too!

I had a new "cancer" comment today while at a drug store. The checker was an older guy, and as he finished ringing up my stuff he smiled warmly and said "I'm a survivor". As usual, I had forgotten about being bald, and was taken aback. So, I responded with my usual "Oh, I don't have cancer...I have Alopecia Areata....But, I'm glad you're a survivor."'



As I left the store, it hit me - I'M A SURVIVOR, TOO! The next time someone tells me they're a survivor, I'm going to… Continue

Added by Mary on March 4, 2011 at 5:48pm — 19 Comments

DCP - Alopecia Poetry please comment!!!!!

My skin is torn pierced marked

my fingers, toes, swollen my

veins,coarse



I can feel the toxic wastes running through my body.

The drugs taking there effects

they are helping me cope I guess

with these unnecessary symptoms induced by poison another drug

I am full , with emotion ,with pain, with medicine

it is so vain



They think they can reverse nature, cure a wrong,

what they don't understand is that the more they force it, focus… Continue

Added by Nadine on March 4, 2011 at 3:00pm — 1 Comment

Scene 7 from The Glass Menagerie by Tennesee Williams (best parts for alopecians)

JIM. Didn't we have a class in something together?



LAURA. Yes, we did.



JIM. What class was that?



LAURA. It was--singing--Chorus!



JIM. Aw!



LAURA. I sat across the aisle from you in the Aud.



JIM. Aw.



LAURA. Mondays, Wednesdays and Fridays.



JIM. Now I remember--you always came in late.



LAURA. Yes, it was so hard for me, getting upstairs. I had that brace on my leg--it clumped so loud!



JIM.… Continue

Added by Tallgirl on March 4, 2011 at 1:57am — 2 Comments

I wish my hair would not tease me

I am 6 months pregnant and my hair has started to come back. I know it's only teasing me and will probally fall out after I have baby.. I wish my hair would not do this to me... Grrrr.

Added by Becca on March 3, 2011 at 7:32pm — 6 Comments

Six months later

I cant believe that today six months ago was when I first took a pair of clippers to my head and shaved off what I was desperately trying to hold on to for so long. For ten years I was undergoing treatments. (injections every six weeks and PUVA weekly) I made a promise to myself, No treatments for six months, then decide if I would continue (The answer is no more treatments.) There has been many ups and downs during the entire period. A lot of self-discovery and many tears. A continuous journey… Continue

Added by Bald and Fabulous AKA Terri on March 3, 2011 at 2:54pm — 4 Comments

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