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tattoo help!

well, i am a tattoo person as you can see from my pics and i would like to get a new tatt to mark this period in my life. if it was breast cancer i would have a really cool pink ribbon drawn and that would be that tatt, but is there anything like that for alopecia? is there any kind of symbol? if not, any ideas would be great.

Added by Jenn on October 8, 2008 at 11:32am — 8 Comments

I had a wig fitting today, an in-home consultation, what a tremendous relief it is to try on wigs in the comfort of your own home. I must have tried on about 10 wigs-synthetic and human hair wigs-non…

I had a wig fitting today, an in-home consultation, what a tremendous relief it is to try on wigs in the comfort of your own home. I must have tried on about 10 wigs-synthetic and human hair wigs-none of them felt right. So the stylist offered to come back again tomorrow with one she thought I would like...so I agreed. I'm hoping she's right. I can't stand this anymore. I practically don't have any hair left and have been wearing hats all the time. I just want to get this over with and find a… Continue

Added by Esther on October 7, 2008 at 11:29pm — 8 Comments

Being comfortable with Alopecia.

Every day I came on the website and read blogs of people who are dealing with alopecia and it hurts me to know that we can't all be comfortable with Alopecia, go bald, and be accepeted! I know it is an emotional roller coaster but we can all get through it!



I know, for me, it was a big struggle at first but I think I came to terms with it fairly quick. I have now gone without wearing a wig over an entire year straight. I used to wear it out sometimes and then sometimes not and… Continue

Added by Brianne on October 7, 2008 at 5:16pm — 6 Comments

doctor's visit

well i went to see the doc this morning and i got more of the injections. i have some spots that are not even attempting to put out hair and then some other spots that are growing like crazy. i have to say that i am extremely emotional today and i have started losing hair in a very private spot. that has plunged me into an extreme crazy frezy. it makes me think that this is not going to get better even though the doc says that she is very optimistic about complete regrowth. i snapped at a lady… Continue

Added by Jenn on October 7, 2008 at 12:05pm — 6 Comments

Can Hair fall more quickly when you start wearing a wig?

Hello I just have a question, I have noticed that my hair is falling quicker and the parts where I still have hair you can really see scalp, I believe that it has been happening due to my recent lace wig.. It is just a guess.. Has anybody experienced that before?

Added by Grace on October 6, 2008 at 10:00pm — 8 Comments

The Nonchalance of Dermatologists/Doctors

Is it me or is there an increasing nonchalance of dermatologists and doctors when it comes to Alopecia. I have taken my daughter to nearly a dozen dermatologists and doctors across the state of North Carolina. I have yet to meet a dermatologist/doctor who seems to be genuinely interested in her condition. They diagnose her, give her a prescription for clobetasol or protopic, and then say come back in 3 months. 3 months!!!! I pray she still has hair in 3 months! One even had the nerve to ask me… Continue

Added by Kayreyn on October 6, 2008 at 8:37pm — 9 Comments

Depressing date with the dermatologist

I had hung such hopes on today... not that I thought we'd walk away with a "cure" or anything, but I thought at least we'd have a definitive diagnosis and confirmation for all the research I've done. Or find something out that I'd not even heard of... I'm one of those people with just enough medical knowledge to be truly dangerous. ;-) But I know it, and I know I'm not a doctor...



We started off with the Nurse Practitioner, since we'd have had to wait another MONTH to see the… Continue

Added by theantichick (Shannon's Mom) on October 6, 2008 at 5:00pm — 3 Comments

Going through a bad"patch" in my life

At the moment I`m in one of those depressive states and I think my sense of humour and pride just help me to manage through the day. I just cannot get myself to feel better.I feel so unmotivated and this is worrying me.I always managed to find something to keep me going such as study/work or developing a new interest and those blessed affirmations used in NLP......it`s just not working:(

And believe it or not I sometimes found offensive the joie de vivre and egocenticism of certain… Continue

Added by baldiegirl on October 6, 2008 at 5:00pm — 4 Comments

teaching and learning

Ok. So I haven't been on here in a really long time, and am feeling a) out of the loop, and b) embarrassed that I can get so wrapped up in some aspects of life that I forget about other aspects, like connecting with people here. I actually find I think about this site a lot, and about all of the amazing people who are sharing their stories, supporting one another, and celebrating their differences. Part of what's keeping me so busy these days is that I'm teaching a course for the first time in… Continue

Added by Emily on October 6, 2008 at 4:14pm — 2 Comments

Hoping for a "Happy Ending" Story

Hello Alopecia World! I'm a new member and I posted this question in the children with alopecia forum section earlier. This is my first post and my first blog, just hoping to hear some response:



Hi,

I'm a new member here and desperately need to hear a "happy ending" story. I am the mother of a 4 year old who was recently diagnosed with alopecia areata. It seems as though I spend every waking moment, fighting back tears, looking for an answer for her, trying to find a cure,… Continue

Added by Kayreyn on October 5, 2008 at 6:43pm — 4 Comments

I haven't cried this much in forever

Joe jokes with me that when I find something to obsess over, I put my heart into it. And he's probably right.



I find myself drawn to Alopecia World, eager to see what other people have to say about something I've spent most of my life trying to hide from the world. I'm OK with me and the hand I've been dealt, but such a huge part of me just wants to have hair long enough to put in a ponytail.



I look at pages in this community of beautiful, strong women so confident in… Continue

Added by Stephanie on October 4, 2008 at 12:56am — 5 Comments

When hair loss is not the problem

Cheryl Carvery I recently read an article that describes alopecia as "a cruel disease that leaves men and women feeling ashamed" as a result of losing their hair.

It was an article about Helen King, a wife and mother of two who has alopecia universalis, which means she has lost all the hair on her body. This happened to her after she had several bouts with alopecia areata, which is the loss of head…

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Added by rj, Co-founder on October 3, 2008 at 11:30am — 2 Comments

My Alopecia Universalis and NAAF

Early in 2006, I considered myself a tough-minded businessman, having recently opened my fourth retail sports memorabilia store in the San Francisco Bay Area. My life changed drastically at the age of thirty eight, when in the span of six weeks, I lost every hair on my body. Eyebrows, eyelashes, a full head of hair - all gone. The beginnings of my experience with Alopecia Universalis sent me into a deep depression. There were many tearful moments. One such moment occurred when I looked into the… Continue

Added by Matt on October 3, 2008 at 11:00am — 6 Comments

inspired

wow! that is all i can say to this site and everyone that has contacted me. i have been reading so many of your stories and i am truely inspired. i want to be like everyone of you and i am tired of hearing myself whine about this. i know that i will have good and bad days but i just want to get to the point that my hair is the least most important thing in my world. why do i constantly have to dwell on this and what does that say about me? there are so many things that i am interested in and so… Continue

Added by Jenn on October 3, 2008 at 10:58am — 4 Comments

Telling a six year old

When I return to my hometown to see my family, I generally spend a lot of my time without my wig on. My parents live on a farm and have no air conditioning, so it's about 900 degrees hotter in the summer than anywhere else in the world.



Most people are used to seeing me without my hair and have little to say about it.



Except my oldest nephew. Ethen is at that inquisitive age where he wants to know the reason for everything. Why my eyes are grey or why Uncle Joe spikes his… Continue

Added by Stephanie on October 2, 2008 at 10:37pm — 7 Comments

Releasing Toxins

I'm REALLY trying to be positive!! I REALLY want to move forward!! I know I am more than my hair!! I HAVE done this before!! I WILL do it again!! I just need to get all this SHIT out!! I'm not sure how to make a LONG story short!! But I'll try.



In March 2007 I started to lose my hair. By August I had lost SO much I HAD to buy a wig. In the meantime I had seen SIX different doctors!! Each had their own opinion, each ran tests ... NOTHING was working!! However when my OB/GYN put me on… Continue

Added by Celeste Edwards on October 2, 2008 at 5:29pm — 2 Comments

discovering me

ok, this is my first day on this site. for the last couple of months i have lost my hair and my entire identity. how can that be? i am a really strong and indenpendant person, so why do i feel like my identity is gone? now i feel really shallow. i have been reading the different groups and reading about my new friends struggles and everyone seems so put together and comfortable with what we are going through. i feel like i am in a dark hole and can't get out. the whole wig experience was a… Continue

Added by Jenn on October 2, 2008 at 4:34pm — 3 Comments

Doctor

I went to my doctor the other day for just a routine check up. It was my first time seeing her and I mainly went just so I would have a primary doctor if/when I do get sick (I don't trust the doctors at my university). Anyways, I don't wear a wig so she obviously knew I didn't have hair. She is familiar with alopecia so wasn't surprised when I said I had it. I told her it fell out about 5 years ago and within about 3 weeks. She kept asking me if I was happy living with no hair. I said yes,… Continue

Added by Kristen Ridenhour on October 1, 2008 at 11:18pm — 3 Comments

Well after not being able to hide my bald spots anymore, I have scheduled an appt for a wig fitting...so soon enough I will be sporting a new look! My biggest fear is the questions and reations I wil…

Well after not being able to hide my bald spots anymore, I have scheduled an appt for a wig fitting...so soon enough I will be sporting a new look! My biggest fear is the questions and reations I will receive when I go back to work, should I tell them it's a wig because of alopecia or just play along as if it was my hair? Continue

Added by Esther on October 1, 2008 at 8:12pm — No Comments

More squaric acid

Yesterday I went to the derm. for my usual....Still have one bare patch near my forehead that did not respond to the last round of squaric acid. So, yesterday I got some injections and more squaric acid applied. Yup, it's already itchy....except this time I have the prescription strength clobetasol propionate gel....so I don't scratch the stuffings out of myself this time.



My other patches are growing in with their usual whitish hairs.....it's only a matter of time again when another… Continue

Added by Georgie on October 1, 2008 at 2:18pm — No Comments

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