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Bald versus wig!

I have, for the first time, bought a wig I like and are comfertable to wear... but it is not as easy as that:)



I have had alopecia for 20 years and have never worn a wig before for more than a coupl of seconds. Ofcourse I have tried some, but never started using it. I have actually been very proud of that. I go out bald without any stuggle or feeling ashamed. I went through my teens and my early twenties bald and proud of it:) And now I see all the beatiful people in the same… Continue

Added by Silje H Teig on August 26, 2008 at 10:07am — 5 Comments

September is Alopecia Awareness Month

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. You are also welcome to make suggestions and discuss your plans in the comments section below.

Wishing you great joy and good success,

richard jones (rj) & Cheryl Carvery
Co-founders, Alopecia World

Added by Alopecia World on August 24, 2008 at 9:30pm — 8 Comments

finding my alter egos

as the pictures on my last post show...it is impossible to hide my spots. I have been wearing scarves and hats for the past two weeks. actually one hat, because up until yesterday, i only had one. it was a little difficult to plan everything i wore around one hat, especially when i need to do laundry :D. Anyway, I like the I can wear hats and scarves, but it just isn't practical for every single day at my job. So, I spent yesterday wig shopping. I found one that is exactly like my hair was, or… Continue

Added by Rachel on August 24, 2008 at 4:00pm — 2 Comments

The Funniest Thing!

The funniest thing happened to me last night. I was inside Wendy's waiting for my order to be served when I heard this lady "Miss, Miss, where did you get your hair?" I must have thought to myself "I dont think she is talking to me." But she was and she said it again even louder and this time she added "thats some good stuff" which prompted the other workers to say yeah that is nice.



I actually felt flattered considering my community is filled with women who are obsessed with weaves… Continue

Added by Tamara Dixon on August 24, 2008 at 7:30am — 2 Comments

"Confidence check in aisle 5, please."

I'm a thinker. Sometimes I over-think, sometimes I don't think enough. But when I have time to myself to just Be, all of that doesn't seem to matter. (After all, sometimes we all get caught up in trying to do so much that we forget to Be...)



I was thinking the other day about the little moments in life that happen in just seconds, yet have the ability to profoundly impact your life. I've got a few of those that stand out in my mind, but I'm remembering right now about one specific… Continue

Added by traci on August 23, 2008 at 3:15am — 1 Comment

Walking in my mothers shoes.

I happen to have a very beautiful mother. I know everyone says that but she really is unusually beautiful and ridiculously unaware of it. She has smooth dark skin with big almond shaped brown eyes, a straight small nose, a contagious white smile, great legs, dark hair and genes passed down that gave her a great shape she never had to work for. She was valedictorian when she graduated, and played pro tennis until an injury led her to start her life as I know it now. While I was growing up my… Continue

Added by Lisa on August 21, 2008 at 9:38am — 6 Comments

Alopecia as a non priority ( to say the least!) or My last experience with a bald woman

As I noted in my intro, I am am a widower. Four years ago, I lost the love of my life to a very rare form of leukemia. With chemo, there are varying degrees of hairloss. With the intensity of the chemo and a bone marrow transplant that was indicated for treatment of my spouse's cancer, AU is a certainty. With such a treatment regimen, hairloss may be temporary or sometimes not. A few other husbands and I formed a very casual support system. We all agreed upon one thing - nobody could care less… Continue

Added by jamie1 on August 21, 2008 at 9:01am — 2 Comments

Pay it forward

Pay it forward. At least that’s what I’ve been taught. Never ask for anything personal in return for a gift given…it is just that, kindness with no expectation or desire for reward. Conversely, a gift or act of kindness received should be paid forward tenfold, not necessarily to the giver, but to another in a time of need.



We’ve all been there. The kindness of a stranger who retrieves a dropped glove, the person that holds a door open when your arms are full, the cashier that gives… Continue

Added by Tony on August 21, 2008 at 7:29am — 1 Comment

Della's Big Reveal

Well, today is day 5 for Della and Angel's Kindergarten career. I have to say they have enjoyed almost every moment thus far. Although, Della had been coming home after school telling me things that I haven't heard too frequently. She said she wanted her hair to grow back.



Since the teacher's home visit before school began we have talked about alopecia and we have told her just about everything that I know about it. She was welcoming and warm to Della and agreed to talk about it if… Continue

Added by Miranda on August 21, 2008 at 2:16am — 3 Comments

RE: How do you know if you are going from AA to AT?

Hey there everyone,
Does anyone on this site had the experience of having AA and then it turning into AT? If so, can you share your experience and how fast it happened? I'm just not sure if I'm turning for the worse now, it sure feels and looks that way. I've been shedding more and more everyday and my hair is feeling REALLY THIN now! I'm scared out of my mind and everything in me is in a shock-mode. I just want to know what to expect is this what is happening to me. Thanks.

Added by Melissa Harris on August 20, 2008 at 1:40pm — 2 Comments

Dating in Alopecia World

(*ALSO SEE OUR IMPORTANT COMMENT ON PAGE 3 OF THIS BLOG DISCUSSION. THANKS.)

Cheryl and I would like to know how you feel about someone (an alopecian or non-alopecian) joining Alopecia World to look for the love of their life.

For the record, we do not have any problem with singles meeting and mingling in Alopecia World as long as they always bear in mind that this…

Continue

Added by Alopecia World on August 20, 2008 at 10:00am — 40 Comments

Dermatologist Appointment

First - Thank you for responding to me and sending me encouragement. It really did encourage me to know that I'm not the only one going through this. I don't really feel like I can vocalize everything that I'm feeling yet, and it helps to know that other people have been there. Thank you!!



Its been a little over a week since I noticed the first two patches...and holy cow this thing is moving fast. The three patches that I had in the back have all merged into one giant patch. There's… Continue

Added by Rachel on August 20, 2008 at 12:52am — 2 Comments

I'm told I never ask, so I will: I need help!

I seriously think that some people are just born unlucky - like me! Unlike most I was unlucky before environmental factors kicked in, I was adopted by the wicked witch of the west and was hers from day one. At least my adopted dad was something good that came out of this all but unfortunately he's been gone for about 10 years now. Beyond that I've had countless unlucky events, doesn't matter what it is! Now just recently I've been trying for a few years to get child support from my ex and the… Continue

Added by Carol on August 18, 2008 at 6:50pm — 12 Comments

i'm back...with a few thoughts/questions/etc =)

Hello Alopecia World!



My mini-hiatus is over and I can finally begin to (somewhat) relax. I hope you all have been well.



I finished summer school last week, which is such a weight off of my shoulders. My job has been progressing nicely and I've finally finished the layout and edits on this year's season brochure, mini-pamphlet, ticket order form and fall newsletter. So for this next week it's just press releases and postcard designs for me until I finally get to go home!… Continue

Added by traci on August 18, 2008 at 5:45pm — 2 Comments

I am 24 years old and was just diagnosed with AA. I knew someone in high school that had AA totalis but other than that, didn't really know much about it AA. I went to the doctor because I noticed a …

I am 24 years old and was just diagnosed with AA. I knew someone in high school that had AA totalis but other than that, didn't really know much about it AA. I went to the doctor because I noticed a bald patch on my head in a picture. I don't usually see the back-under side of my head so I didn't notice before. In the past few weeks, I've been losing alot of hair. I wake up to hair all over my pillow. I lose GOBS of hair in the shower. I lose hair when I'm just sitting at my desk working. You… Continue

Added by Rachel on August 15, 2008 at 6:08pm — 7 Comments

Letting go of the anger and why alopecia makes us sad...

Since I have some time on my hands before i get better and get a real job (just book keep and do shopping and stuff for parents business- a residential home). I can post a brighter more positive blog than the last one. I did debate whether to put that up because its the sad side of what alopecia can do to you; but if somebody reads it and realises to get help if you feel down then it was worth it.



I did have a bit of anger built up towards my parents because of alopecia and felt like… Continue

Added by carl on August 15, 2008 at 12:00pm — 5 Comments

I'm not Charlie Brown

“It looks good…you have a nice round head.” A nice round head? What the heck is that suppose to mean? My mind immediately equates my appearance to that of Charlie Brown, the round headed bald kid from the comic strip. Sigh…tell me I look handsome, tell me that the style suits me, tell me that I could be a male model…OK, the last one is a stretch but please, please don’t compare me with some inept, always depressed, bald headed kid with low self esteem.



My own acceptance of the… Continue

Added by Tony on August 14, 2008 at 12:02pm — 1 Comment

Right to Know...

Why do people think they have the right to know what happened to your hair? I mean, I understand family members and close friends, but not people you see while walking down the street or shopping or going to a movie. Why do people think they can come right up and demand "what happened to your hair"? Concern is one thing, nosey is another. It's like they stare, then they walk right up and ask, when you give them a flippant answer they are hurt. They never think about how embarassing it may be… Continue

Added by Linda on August 13, 2008 at 3:46pm — 14 Comments

"Sad" Mother

Hi all.

My mother is not taking my hair loss well. To be perfectly honest, she's an emotional wreck over it. It is not enough for her to know that I've adjusted to the fact that some day I might be bald and wearing a wig. It is not enough for her to know that I've managed to overcome my sadness. She says that she's proud of how well I'm taking it, but sometimes she finds it hard to believe that I can truly be as accepting of it as I claim to be. The truth is, I was depressed at first. When… Continue

Added by Alexandra on August 10, 2008 at 5:22pm — 2 Comments

Me and Alopecia

When I was 14 I found my first spot on the back of my head. I didnt know what it was and of course freaked out. My mom, knowing what it was (her half brother had Alopecia) took me to the dematologist and I was diagnost with Alopecia Areata. My hair kept on falling out, it progressed into AT. We tried ALL the treatments which resulted in alot of irritated inflamed skin (hurt like hell) and oh yes the 2nd degree burn on my head. It was a bunch of hoping and waiting and in the end being… Continue

Added by Casey on August 9, 2008 at 11:29pm — 1 Comment

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