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alright ladies and gents... I've been dealing with this for 15 years. I'm a survivor. Don't have any hair, but don't need it! let's fill my page with positivity. Let's get some stories on here about loving yourself and surviving!It doesn't matter if you're bald, not, or in between. I want to hear all about loving your self!
Added by Sarah Bitar on October 28, 2012 at 9:30pm — 4 Comments
I am very thankful for this website and for the support of my fellow members. It can be very therapeutic at times!! But, I also find it can be very depressing, so I do take long breaks from it. I hear the voices of those who have accepted their condition, no longer fight it for various reasons, and I fully understand and support their positions, but that's not where I am today. I am not ready to give up hope. While I have lost well over half of my hair and still shed, I also have good hearty…
ContinueAdded by Tracey on October 27, 2012 at 2:00pm — 46 Comments
For those who may not have seen this -
Alopecia areata may soon be getting significantly greater research funding and study. As you receive this e-news today, October 25, Jan Wolf of Vienna, Virginia has just shared her alopecia areata experiences and insights at the Food and Drug Administration’s Public Meeting on Patient-Focused Drug Development. She was accompanied by Ashley Zink, 15, of Mount Airy, Maryland, as we wish to emphasize how often alopecia areata strikes children. FDA…
ContinueAdded by Chris on October 26, 2012 at 8:00am — 2 Comments
Just want to thank everyone for their support on this wonderful site.
I don't know anyone personally and haven't written much as yet. But have read a lot from the site. I appreciate everyone sharing their stories.
It helps so much,-- just to know someone else understands what you are going through. God bless you all!
Added by Georgia Kay Jarman on October 23, 2012 at 12:40am — No Comments
I always had brown hair but I always wished I was a red head. I colored it bright red. A year ago i shaved what little hair I had left. The patches got smaller and smaller and it quit growing. The last couple of months my hair has been growing back very slowly I am getting more and more. Its really sparse and has no color to any of it. Any color hair would be so great. I will take gray hair over no hair any day.
Added by Sheena Tha Cody on October 23, 2012 at 12:30am — 14 Comments
Hello everyone,
My name is Emily i have had alopecia totalis since kindergarten and am now in year 12. i have a subject that i am doing for my high school certificate the subject is community and family studies and i have to do an independent research project and i am going to do it on alopecia and as a part of this project i need to interview over the internet and or a question air if you would like to take part in this please message me and it is up to you if you won't your own name…
Added by emily5 on October 17, 2012 at 10:58pm — 11 Comments
Added by Elaine on October 17, 2012 at 10:04pm — 9 Comments
I had an appointment to get my regularly scheduled cortisone injections at the end of the month last month and just decided I was not going to put myself through it anymore. It hurts like hell, I am an emotional wreck, and its sore afterwards. I am firm believer that continuously putting any chemical into your body over a long period of time causes some issues. As I touch my bald spots, I notice dents, which is a side effect. The dermatologist told me that it means my scalp is thinning due…
ContinueAdded by Jasmine Harrell on October 16, 2012 at 12:30am — 5 Comments
I went to get my first mammogram. I was already uncomfortable with the fact I could not wear, perfume, lotion or deodorant. I have anxiety from the horror stories of getting a mammogram. I enter the waiting area and all eyes are on me. Instantly it occured to me, my bald head was associated with me perhaps having breast cancer. I suddenly felt like the star attraction at a freak show. I was filled with many emotions in which I could not easily identify. It took every ounce of my energy not…
ContinueAdded by kymkym on October 13, 2012 at 11:30pm — 11 Comments
I'm new here , don't know what to expect but I thought I'd give it a try , "suffered" for 10 years , the eyebrows disappeared around 1995,and had patches from childhood. I am 50 and happily married with 2 kids, generally go through life not thinking about this , only time I'm aware when I return to my hometown in Scotland ( I live in England) as everyone remembers me with hair as I went to live in England with a full head of hair . I am totally "accepted" although I fell very self -concious…
ContinueAdded by broonz1 on October 6, 2012 at 3:24pm — 2 Comments
Found this article online, and thought it might encourage men on this site!
Men With Shaved Heads Appear More Dominant, Study Finds
The Huffington Post | By Jessica Misener Posted: 10/01/2012 5:39 pm EDT Updated: 10/01/2012 6:20 pm EDT
A new study suggests that balding men should just go ahead and Bic it all off: society sees men with shaved heads being more "manly."
Alfred Mannes, a researcher at the University of Pennsylvania, published…
ContinueAdded by Tallgirl on October 13, 2012 at 1:00pm — No Comments
ive been going back and forth about shaving my head ever since i was diagnosed. i started with shaving the side, then some more, and today i went to shave the other side. as i started cutting i began getting frustrated becuz all i could focus on was my thinning crown area. in that moment i decided that i was better off just doing all of it.
ive had this headache about my hair for months, and im tired of letting it consume me. everyone on this site is beautiful bald or with hair. my…
Added by neverthoughtidenduphere on October 11, 2012 at 1:23am — 11 Comments
My son was diagnosed with AA at 12 months. He finally grew some hair a couple of months earlier and it started coming in nicely. Within just a few weeks, almost all of it was gone. He was left with this weird little patch of blonde curls on the top of his head that made him look like one of those cute little cartoon babies with his big blue eyes the way they are. He lost all of his eyelashes and eyebrows, too.
He is now 21 months. He has a newborn little sister and is starting to get…
Added by Nikki - Coley's Mama on October 10, 2012 at 11:52pm — 8 Comments
I love my husband, but he has a hard time with me being bald and there are some days I just want to rip my hair system off because I do not feel like me. The real me is bald, but i guess in someways I am scared to be bald because when people ask me if I have cancer I get frustrated and have to explain the diease and people have never heard of it.
I love my husband and he has been my rock through all the tests, wig fittings, the shaving of my head ritual, and just plain breaking…
Added by Elizabeth Glaspie on October 8, 2012 at 5:07pm — 4 Comments
i started noticing about 5 years ago that the hair at my temples started thinning out and breaking off. the pieces will grow to about 2" as of now. then, in july of this year, i started noticing the rapid thinning of the hair on the crown of my head. i went to the dermatologist hoping it would be stress related, but i had a gut feeling it would be genetic. ive always had higher levels of testosterone, so i kind of knew. the dermatologist said that it was, in fact, genetic. androgenic…
ContinueAdded by neverthoughtidenduphere on October 6, 2012 at 11:30pm — 3 Comments
I have had eczema for 10 years, but have really struggled with it for the past 6 years. I have used creams and lotions as prescribed by my dermatologist.
I got so fed up with it last year and saw an allergist. I didn't show as having any allergies. The allergist suggested I could see a dietian.
I saw a dietitian in May 2011, I started a 6 week elimination diet. Basically cutting out lots of foods and get foods out of my system. This continued for a while, because I kept eating…
ContinueAdded by Blue tulip on October 6, 2012 at 8:52am — 8 Comments
"You should just cut the rest of your long hair off. It'll be different, but you'll get used to it."
This is what my nine year old son told me this morning, and there is wisdom in his words. The remaining long strands serve little purpose (except to be pulled back to do the pony tail and ball cap thing on the weekends as a welcome break from Harriet the Wig), and now look just as ugly as my bald patches next to the regrowth that's anywhere between 1/4 - 3 inches in length. I am…
ContinueAdded by Tracey on October 4, 2012 at 5:00pm — 8 Comments
Hi I have alopecia areata universalis. I got it suddenly at the age of 28. I went from having a full head of thick long hair to nothing in about 3 weeks. I also lost my eyebrows, eyelashes etc over the next few months. I don't remember ever having any bald patches growing up, but I did have very thick hair. Finally to my question, this morning I was blow drying my 10 year old's hair (since she is 10, she does her hair most of the time) and I found a round bald spot on the back of her head…
ContinueAdded by Alicia Mengel on October 4, 2012 at 3:45pm — 4 Comments
I have not posted in awhile, which I think in some ways is a good things as it means I have not been troubled by anything alopeica related. Until now...
Now I don't know if anyone will see this but worth a try... but my issue is I have started to get a slight bit of regrowth on just one eyebrow in the corner nearest to my nose..
Now I am actually starting to get weary of this as currently I do not draw my eyebrows on or anything, no one ever says anything so I just get on with it.…
Added by KFlame on October 4, 2012 at 4:30am — 5 Comments
I was pretty young when I found out I had AA. My mom noticed a small spot of hair missing on my head when I was 11 years old but didn't think too much of it. We started to notice that my hair continued to fall out and we went to see my doctor, who thought I was intentionally pulling out my hair. We went to numerous dermatologists who tried treatment after treatment for two years until I had decided I couldn't take it anymore. I was sick of spending two hours of my time every day having…
ContinueAdded by Jessica on September 29, 2012 at 2:21pm — 3 Comments
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