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Hello everyone. I just found and joined this site last night. First, I wanted to say that I am grateful this site exists. I stumbled upon it when I was looking for information on how to exercise in a wig. It looks like an amazing community and I look forward to getting to know everyone.
Second, a little about me. I am in my mid-30s and was diagnosed last year with scarring alopecia. When that diagnosis came in April, it was like my whole life felt shattered. I had been worried about…
ContinueAdded by claudiaclaude on August 1, 2012 at 7:00am — 8 Comments
“A cat with alopecia found starving by the roadside in the rain is in need of a new home.
William, a white Persian, is being nursed back to health by staff at the national adoption centre run by Cats Protection at Chelwood Gate, near Haywards Heath.
The 12-year-old was found severely underweight and in an “appalling” condition when spotted struggling to find…
ContinueAdded by Cheryl, Co-founder on August 8, 2012 at 10:30pm — 4 Comments
Hey all.
Yet another small thing I feel like sharing.
I went out to a club bald. :)
like, no scarf, no hat, no hair bald, to an alcohol filled, too loud doof-doof music club. First time ever, and it was awesome.
I've been wanting to do this for a while now. I think clubs are fairly high pressure anyway, with all the guys looking to find girls, and the girls all dolled up so that they can find guys or at least look better than the other girls. I figured if I can be…
ContinueAdded by Georgia Gardner on August 3, 2012 at 8:42pm — 7 Comments
A Brisbane Times news articled states:
“When Joanna Rowsell's right eyebrow disappeared 14 years ago, an event that only marked the beginning of hair loss all over her then nine-year-old body, she could never have imagined feeling good about the experience that completely threw her self-esteem and caused her to hide under hats and wigs.”
“On Saturday night in London, the same person stood before the world as she was crowned an Olympic world champion. At age 23, bald…
ContinueAdded by Cheryl, Co-founder on August 4, 2012 at 7:00pm — 23 Comments
Alopecia does make you a better person at heart i agree with that but it is a pain and brings many hardships to people's lifes especially mine and you do not know if people leave you or do things because of it. Walking around is horrible most of the time because people stare at you wondering if you have cancer and then if you talk to them and tell them they either feel bad for you or treat you different even if it feels to them like they do not they really do. People do not look into other…
ContinueAdded by T on August 3, 2012 at 4:00am — 7 Comments
What a year its been so far. Unbelievable and Im totally gobsmacked. Im grateful and humbled that all that has transpired in the last 7 months. Curious as to what the rest of the year will bring.
Lets start this with the article that was written about me and voyages to the gym, which was issued in my local newspaper in late April. This was after I approached the marketing director of the gym I go to, about the possibility of raising some awareness about alopecia. I had been approached…
ContinueAdded by Bald and Fabulous AKA Terri on August 2, 2012 at 9:00pm — 6 Comments
You know all of my posts and questions about the dating world and what to do with my wig and how do I tell him and how getting rejected really hurts....well, all of the time that I waited to find the right man has paid off.
I met Tom online and on my dating profile I listed about my alopecia because I wasn't going to hide anything. Right off the bat he was very accepting and supportive. He has been so wonderful! We have been dating just over a month and he has seen me with my wig and…
ContinueAdded by Julie G on July 31, 2012 at 5:57pm — 7 Comments
Added by Ashley on July 31, 2012 at 4:00am — 2 Comments
It was a Tuesday. I was 15 years old, and like every Tuesday, I would go to the doctor, receive my treatment, and then go home. On that particular Tuesday, however, something different occurred. I didn’t follow my normal routine. It was a strange day for me. I had that routine memorized like the back of my hand, but that Tuesday was the day it all changed.
I sat in the waiting room of the doctor’s office. I had always hated the plain gray walls that began to blur when you stared at…
ContinueAdded by Megan Adair on July 29, 2012 at 9:38pm — 13 Comments
British cycling champion Joanna Rowsell has revealed how her hair-loss disorder, alopecia areata, spurred her on to be "even more focused" after becoming an overnight poster girl for all sufferers.
Joanna shared the following "It scares me to think I would not have found cycling. The alopecia made me very shy so I stayed in and intensely focused on my homework or that A* in an exam.
"Working hard was the only thing that stopped me from worrying about the future, about whether I…
ContinueAdded by Cheryl, Co-founder on August 1, 2012 at 2:00am — 20 Comments
I hate how much it costs to look normal.
I can't go wigless, I have a combo of Trichotillomania and AA, I have HUGE patchy bald spots mostly on the top of my scalp, I'm pale white with black hair, so even when I shave my head completely down to the skin they show up, black patchy spots everywhere, and when I go out in public people look at me like I'm a leper, even go as far as to avoid standing close to me or taking the long way to walk around to avoid me.
Wigs, they are so damn…
ContinueAdded by Kayla on July 29, 2012 at 2:30pm — 9 Comments
I thought I was doing ok with my great bonded on hair system and all, but the last couple of days I have been feeling worse and worse. I went to this nail place to fix a wonky nail that is probably caused by alopecia in some way for all I know, and while I was there they told me that they could fix my uneven eyelashes with their individual lash extensions, and I was so excited. I have one eye with full, long thick lashes and another one that is extremely sparse. I don't know why they took my…
ContinueAdded by Dominique Cleopatra on July 29, 2012 at 4:00am — 7 Comments
Added by Ashley on July 27, 2012 at 5:58am — 11 Comments
I read this online today in preparing Olympic watchers for travel in England (Google this headline if the link doesn't pop up here):
The nation explained for visitors to the Olympic Games
Each 212-word section covered things like accents, trains, pub rounds, etc. But the parts about bad puns, even in serious newspapers, or self-deprecating humor as part of the national culture brought to mind some…
ContinueAdded by Tallgirl on July 26, 2012 at 11:00pm — 17 Comments
Depression is settling in once again...
I've never wondered "Why Me?" Until now.
I don't know why, but this condition is bothering me more than ever before. I've dealt with it since I was born. I'm 18 now and still nothing has change. I have 2 younger sisters, they both have a full head of hair, everyone in my family does. So some thinking has gotten me to the point to ask "Why me?"
I know I shouldn't be all sad about this because there are other people out there probably…
Added by Julie on July 24, 2012 at 5:30pm — 7 Comments
I've had AA pretty much my entire life. When I was little I had a patches of hair that just never grew. That went into remission for a few years then came back when I was in high school. I've been doing scalp injections for the last decade probably. It keeps the AA in check, but I never have had full re-growth. My AA has always been pretty easy to cover up, until the last six months when I developed a patch towards the top of my head. My hair is noticably thinner (to me anyway) and I'm…
ContinueAdded by AshleyK on July 24, 2012 at 1:00pm — 4 Comments
My son has only been recently diagnosed with AU. It was quick too. in a few months he was completely hairless.
I know he is healthy and i thank god he is, but it breaks my heart knowing he is different, and he knows he's different. And after being upset about that i feel guilty that i should embrace his bald headed cuteness! I am not ashamed of him in any sense of the meaning i just fear for him, growing up in a smaller town, people are cruel and ignorant. I am mad at the world for…
Added by Jordan's Mom on July 24, 2012 at 12:00pm — 25 Comments
I saw a girl with alopecia yesterday, and a guy the other week on the bus (probably, you never know). Göteborg is pretty small in comparison so for me this was huge. Made my day!
And without my alopecia I wouldn't even have noticed. Or I might have noticed and wondered why they didn't have hair.
I'm just sorry if I stared at the guy on the bus I was so elated. But of course I didn't ask him, I didn't want to bother him, I should have instead of staring as if I was the the…
ContinueAdded by Marinetta on July 19, 2012 at 3:21am — 12 Comments
This past weekend, I attended the NAAF Conference in Washington, DC. It was my first conference as an ‘adult.’ I have been to about 10 other conferences since 1994, but I was always in the kids’ camp. I loved every minute of that camp: I met a ton of people and was able to hang out with all of the friends I have made over the years. This year was different, though. I was able to go to meetings and talk about how having alopecia affects me. That was a rude awakening in itself. It was so nice…
ContinueAdded by Alex on July 23, 2012 at 6:30pm — 24 Comments
So I just got a new job a few weeks ago and a probable diagnosis from my doctor (waiting to see my dermatologist) but all the tests so far support her conclusions.
Still this is very new to me and my hair gets worse every day. I will probably not wear a wig around family or friends but I've been fitted for one just in case I feel I need it.
The issue is now how do I tell people/boss at work, do I tell them. I don't want them to jump to conlusions about my health but I also feel…
ContinueAdded by Marinetta on July 23, 2012 at 8:00am — 11 Comments
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