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The Gifts Alopecia Gave Me

Hello Sweet Women!



I have not posted, or messaged, or blogged, or commented in FOREVER! But, I just had to take a minute to connect with all of you – old and new members.



Today, I was looking at what I wrote in my profile when I joined. I had written, “I look forward to the day when I wake up NOT thinking about my hair. When that day comes, however, it will have nothing to do with alopecia and everything to do with me.” Well, I realize that day has finally come, and I was… Continue

Added by Marie on January 7, 2010 at 2:38am — 18 Comments

7 months post-gluten

So it's been around 7 months since I went gluten free and I couldn't be happier. I even quit wearing my wig a couple weeks ago. My hair is still thin, but I've always had naturally thin hair anyway. My one eye without the eyelashes has yet to grow back, oh well. I'm just happy it's come this far. My dermatologist seemed really excited for me back in October, I can't wait to see what he has to say here in a couple weeks. I did upload some before and after pics but am not sure if only friends can… Continue

Added by Amanda on January 7, 2010 at 12:42am — 1 Comment

I'm back - again!

OK I havnt been on in a while. and miss all the beutifull people here. Im going to update since last summer..

Ok my last thing was trying to get my super white head tanned ...

welllll.. that didnt go so well.

I did get to learn about another thing simerler to Alopicia its an autoimune disorder called Vitiligo its were these big white blotches on the skin appeare. mine appeared when I was trying to get a tan.

Some of me was tanning beutifully but I had burnt spots hmmm and… Continue

Added by Ms. Elizabeth on January 6, 2010 at 11:32am — No Comments

Has anyone ever worn the cheaper skin top wigs?

Just wondering if anyone has ever worn the cheaper skintop wigs or with the skin top part....they seem to be thinner from what I've seen in the stores. Are they realistic looking???

Added by Casee on January 6, 2010 at 9:08am — No Comments

2.5 yrs AU

Hey everyone, I was just thinking about life and alopecia. I was recently diagnosed with Asthma. I had my first attack in late Nov. I had to go to the ER twice since then. It was the scariest thing I have ever gone through...not being able to breathe. It's still scary.

Anyways, it reminded me of when I first got AU 2 1/2 yrs ago. I was so scared then too. Well, as far as I'm concerned, I'de take AU over Asthma ANY DAY . I WISH AU was my biggest problem. When it comes to life or death, we… Continue

Added by Lee on January 6, 2010 at 3:03am — 6 Comments

My scalp burns where my hair is falling out :0(

Alopecia became a part of my life this Christmas. As my hair continues to fall out, the bare scalp is burning. Anyone experience this and have any suggestions to make this more comfortable. I have been very good about protecting my scalp with the harsh new england weather. Any suggestions would be greatly appreciated. Heather

Added by Heather Lynn Peckham on January 4, 2010 at 6:54pm — 12 Comments

It's been a while since we blogged last, so I thought that I'd give a bit of an update!

This is some new information on my Granddaughther, Merari, she is learning how to play the piano/organ and she is doing good...overall she is coping fine with the Alopecia issue..but right now our concern is that the Organization who gave her a free wig, no longer will be able to give her a new free one....the one that she got is kind of old and she needs urgently a new one...can afford to pay for one...any advice will really be appreciated....
Thanks
a worried Grandma

Added by ESTHER M on January 4, 2010 at 11:26am — No Comments

Thymuskin

My mum is constantly looking for something that doesn't have any harmful side-effects that might be able to help get rid of my alopecia, and she recently came across thymuskin. Apparently it helps the thymus in someway (lost the piece of paper but will look for it lol) by providing nutrients and helping create antibodies that the body needs. It says it can take 9-12 months to work so I am going to try it for my mum because it can't hurt and it smells like vanilla! So I will post some pics on my… Continue

Added by Dielle on January 4, 2010 at 2:35am — 2 Comments

It's been too long

Alot has changed for me in the past little while. When i first started on this site I was dealing with alot of emotions linked to my alopecia. I was debating on whether or not to go talk to a therapist and i finally did. I had a couple of appointments but found that talking to her didnt really help much (to each their own right) but I did it for my mom. I actually found writting in a journal helped alot more then anything, it was almost like taking all of it out of my soul and leaving it on the… Continue

Added by Danielle on January 4, 2010 at 12:36am — 1 Comment

Dotty's Inspirational/Motivational Reflection

Added by Dotty on January 3, 2010 at 11:46pm — No Comments

New Year Hopefulness

It's been a while since we blogged last, so I thought that I'd give a bit of an update.



Nathan is still progessing really well. I thought that perhaps we'd hit a point and it would all catch up with him, but for now at least that doesn't seem to be the case.



Most of the time he just doesn't bother about hat or bandana, and at Christmas, he actually asked for me to come in cause he wanted to show his cousins and I think needed the reassurance in case they asked questions.… Continue

Added by Judith on January 3, 2010 at 11:02pm — No Comments

Why can't we?

Hi All,

I have been thinking about all of the lack of research/treatments/cures for our disease. There are so many great people on this site. Why can't we start something that raises money devoted to find a cure? I know two people who have a child with a condition (not alopecia and fatal unfortunately) that have devoted so much time and effort into raising money for a cure....and both work full time. I was just thinking if we really put some thought into this, could we make a difference? I… Continue

Added by Kathleen on January 3, 2010 at 7:03pm — 2 Comments

My very first blog - advice would be appreciated

Well, this is the first time I have written a blog on here, but I figure it's a good way of getting things off my chest.



I first noticed a tiny bald patch about the size of a penny on the top of my head back in August and I started to panic. I went to the doctor and chatted with friends and they all told me not to worry as it was most likely stress. This made me feel a lot better. I was travelling to Canada for 7 weeks 2 days later for work, so I went and put the bald patch out of my… Continue

Added by Sarah McA on January 3, 2010 at 3:12pm — 15 Comments

Happy Healthy 2010 to all! Katie

Happy Healthy 2010 to all!
Katie

Added by Katie on January 3, 2010 at 12:10pm — No Comments

A happy new year and 4 eyelashes!

a very happy and prosperous new year to all my friends here!!!!!!! may 2010 be fantabulous for all of you!!!!! this morning i awoke putting on my 'face'....and lo and behold!!!!!! 4 eyelashes on my lower right eye lid!!!!! i know it may be a fluke.....i know my AU might never reverse.......but to find a hair....any hair on my shiny bald body is just plain exhilerating! it gives me a shred of hope.......so......HERE is to HOPE!!!!!!!!!! and to ALL of you for the new year!

Added by brenda kay on January 3, 2010 at 11:27am — 1 Comment

Convention?

So it has been brought to my attention that there is a alopecia convention in Indianapolis this year, can some one give me any details on this event? I don't live in Indy, but it is my hometown and I would love to attend.

Added by Kris Fenchel on January 3, 2010 at 10:42am — No Comments

Happy New Year

Perhaps a year to re-think how we think of ourselves with ALOPECIA..... not losing hair.... just GAINING FACE....



I want to share with you that I am grateful (possibly a strange choice of words for some of you) for the fact that I have alopecia.. it's really made me see what's important in my life..... I am a MUCH better person for this experience, despite the tough times (hardly any these days) in the last 9 years I can honestly say ALOPECIA has made me a much more caring person...… Continue

Added by Angela Jackman on January 3, 2010 at 1:55am — 1 Comment

Users of Hair Up - Treatment by Dr.Gonen

Hi there,
We are using the Hair Up treatment by Dr.Gonen and I had a question for the other users. It has been almost 4 weeks since we started and there are some areas with white hair growth. The question is have the other users noticed an all over bumpiness on the scalp. It's like where the follicles are there is a goosebump. Any insight as to how she is progressing would be greatly appreciated.

Thanks and happy new year!

Tara

Added by Tara- mother of Presley on January 2, 2010 at 8:46am — 12 Comments

Has anyone tried the new synthetic heat friendly wigs?

Just curious if anyone's tried the synthetic heat friendly wigs....there is one call long and lush that looks pretty????

Added by Casee on January 1, 2010 at 4:31pm — 2 Comments

Dotty's Inspirational/Motivational Reflection

"When you come to the edge of all the light you know, and are about to step off into the darkness of the unknown, faith is knowing one of two things will happen: There will be something solid to stand on, or you will be taught how to fly."

Added by Dotty on January 1, 2010 at 12:38pm — No Comments

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