Hello Everyone! I need to vent...

Not only am I loosing my hair, my image, my self-worth, my sense of femininity, at 29, but no one seems to understand. I finally told my mother after several months and she said "well, things like cancer happen as you get older. Its not that bad. It could be worse." My sister in law is belittling the situation too. I feel like no one is LISTENING. Just HEAR me. This is HARD. I know it would be hard for them if it happened to them too!

I needed…

Well... I shaved my head again. I was a little sad about it, but I feel like it's all for the best.  Whenever I shave my head and go back to wearing wigs I feel that I'm taking back control.  It's the way I cope with alopecia. I hate that when my hair tries to grow, another spot forms.  I decided I didn't want to deal with it anymore. So right now I'm back to wearing my wigs. 

Earlier I was thinking about how much things have changed over the past few years.  Last year I started…

Greetings!  I am newly diagnosed with frontal fibrosing alopecia, and had no idea what it even was.

I am curious if anyone on here has experienced this same type of alopecia, and what I can expect?   I feel as if I am sort of dancing in the dark here...

comments or advice welcome

Elizabeth

Ok, ive never blogged anything before unless it was for a school project but I just feel the need to vet now because unless I release some of these thoughts I'm going to go mad.

Ok so I'm originally from Ireland and ive come to Liverpool for university, ive suffered from alopecia arearta I think its called for about 8 years or so now and I'm only 18. I find that there is tremendous pressure on just regular kids to socialize and have relationships and party etc. the standard "Uni…

I am responding to a woman named Rose who felt her husband was not as attracted to her since AU.  I am 67 years old and have been married for 33 years. Two years ago, I developed AU---probably from the death of my dear sister which took me by complete surprise---I don't  know if that was it but it happened after her death. My husband has always thought I was beautiful, but wasn't very verbal about it.  Around the age of 60 he became very vocal about how he felt about my attractiveness---it…

I have not blogged in a really long time. I just need to vent. Back in August of 2013 I cut/shaved all my hair off for the second time. My hair was very thin and my bald spots were growing. I was sick of losing hair and was ready to take control of my alopecia. It was a good thing I did because in December of that year I had a large bald spot on the top of my head. I wore wigs from 2013 til May/ June of this year. Back in April/ May I noticed I had very few bald spots and decided to try to…

Hi Everyone,

First and Foremost im kind of glad(and sad in another way) to have found and be a part of platform full of Humans who think,feel,behave and have suffered the same way as i did..

Im Santhosh a 25 Year Old Graduate from India and I've been Suffering from Alopecia for Nearly 15 Years now,Ive lost my Eye Brows & Eye Lashes(Albeit not Completely but there are Circular Patches plenty of them infact) and Has Started to Lose Hair in Patches on My Scalp off…

http://newsroom.cumc.columbia.edu/blog/2015/10/23/blocking-enzymes-in-hair-follicles-promotes-hair-growth/

I wrote this blog post on my art website about a year ago, and having just discovered the Alopecia World website, have decided to share it here for fellow alopecians.  Any comments are welcome.

This post is a departure for me, in that I normally limit my musings to those directly related to the subject of art or teaching. But to some extent, my art has always…

Dear Alopeciaworld members,

I started wearing a hair system just one month ago. My dad was horrified when I told him as he is worried about the long term health effects of wearing adhesive on my scalp on a daily basis. I have also become concerned, and have started doing research.

I came across some postings and other websites and have taken notes on what chemicals and brands to avoid. Since many of you have done tons of research, can you please tell me what tapes you…

For the first time in the 15 years that I have had Alopecia Universalis I started to grow hair. It started a few months ago in July, I noticed a little stubble here and there on my head I kept an eye on it not wanting to get too excited because I do have a condition that refuses to let hair grow. A few weeks passed and it kept growing in to these "fuzzies" , so I decided to take pictures of its progress. Now more weeks have passed and the once stubble had turned into short strands of hair in…

So here I am upset at a situation.  Upset at peoples reactions.  My daughter who is in 5th grade and just entered the middle school and age of hormones has just faced the cruelty of people.  My daughter was diagnosed with Alopecia 3 years ago.  She did not let it make her frown.   She did not let it make her think she was anything less.  The way she explained her condition was "my hair is allergic to my head".  Positive and confident she was until today....

  Lunch time comes.  A few…

My daughter is working on her Gold Award in Girl Scouts. Her topic is Bald is Beautiful. She chose this because her cousin (my niece) has Alopecia. She developed it when she was 2 and is now 8 years old.

Does anyone here live in the Somerset County NJ area?

She could use some input on support groups in the area.

Thank you in advance.

It seems a bit crazy to be excited by one, tiny, half inch long brown hair, a hair so inconspicuous that I thought at first it must have come from our new kitten, but there it is among the white hairs. And as I stared at the top of my head, losing and then refinding that minuscule hair, I realized that the sides are undeniably filling in more. I know it is a bit far fetched at this point, but I can almost imagine getting a hair cut, a short, close to the head hair cut. And the funny thing…

OK, so the doctors I have talked to are as mystified as I am. My hairline has receded and there is a band of hairless white skin from above my ears (no hair around my ears). ear to ear. I lost my eyebrows and body hair first, then my hairline thinned and receded. There has been no inflammation or scarring. Yes, I am postmenapausal and have been on HRT but I'm not alone in my family. My 91 year old aunt has the same pattern baldness. So, you would think it's just an age thing (I'm 66)…

I found out I had female pattern baldness last year, at age 19. I had been losing here for years and could not figure out why. I struggled a lot with finding out that there was nothing I could do to fix this when I was diagnosed last year. As time went on I was reassured by my boyfriend that he would love me no matter what and that consoled me. I started to think about it less because I knew my family and him would accept me regardless. Now, after 4 and a half years with him, he has broken…