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Vitamins and supplements

Hi all. I am just wondering if anyone thinks that vitamins and supplements are worth the money?



I take SO many pills and I am afraid I am just wasting my hard earned money.. I take the following:



Prenatal once a day

Biotin 15000 mcg a day

MSM 2500 a day

Fish oil (Omega 3) 2400 mg a day

Vitamin E

Vitamin D





I take the basic vitamin because of some low levels, but does anything REALLY help?



Thanks in advance! I would love… Continue

Added by Julie Koch on November 7, 2010 at 1:40pm — 5 Comments

Us

Wow..

Every time

I come to this sight I can't believe how many new members have joined!! There truly are alot of us out there!! And everyone is so very beautiful..so funny loving and creative, it warms ny heart to know you all are out there. Went to a wig shop here in Detroit area and the good Lord blessed me with meeting another fellow alopecian. Very beautiful woman. We exchanged #'s and so forth. I wish I could become friends in person with all of you!! I would love to get a… Continue

Added by Sherry Stalnaker on November 5, 2010 at 7:53am — 1 Comment

Girl grows her hair back!

Hi everyone,



I live in Australia, and one of our current affairs programs tonight, had this story about a 9 year old girl, with Alopecia Totalis Universalis who has had success with growing her hair back after 3 years of no hair. It may not work for everyone, as they state in the article, but if just one person could benefit then it is all worthwhile. Here is the link to the article:… Continue

Added by Shana Bebeklis on November 5, 2010 at 7:19am — 16 Comments

New style

so since I got a new hair piece on NHS (£158, compared with the £400 one I had last year that my parents paid for). The old one was looking a bit outdated so I got a fringe put in it, but the girl at the salon had to cut a small fringe into my own hair to thicken it up and make it look more natural.



I love the look but its making my head so greasy and hot, and im worried the front clip will make my hairline really thin. Its a pain because before i was tying my hair up all the time to… Continue

Added by Rachel on November 3, 2010 at 2:26pm — 6 Comments

Seasonal alopecia?

Hi friends! I have a totally random thought. Has anyone noticed any connection with hair loss and seasons? I have a few patches right now and noticed that this is the 3rd fall in a row that this has happened. It seems that I only lose hair in the fall. Has anyone else noticed this? Am I crazy? :)

Added by Rachel on November 3, 2010 at 12:00pm — 6 Comments

I love you just the way you are!

Finally, I was sitting at home and my daughter said, “Mommy you don’t have to come to my school with a hat on or a scarf. I love you just the way you are.” WHAT?!?! I said okay, had a long day and I knew she would NEVER EVER want me to be bald around her school. The next morning I get on the bus and train bald. I am getting off the train I say are you sure you want me to be bald around your school?



I pulled my hat out of my pocket to see if she would like me to put it on. She said NO… Continue

Added by Sam Sam on November 2, 2010 at 4:09pm — 8 Comments

When filing a claim for alopecia...hoping this helps others!

Today was supposed to be my next injection treatment, but since the insurance company denied my treatments, calling them "cosmetic surgery" I am on hold with them (the insurance company). I feel like I could swallow my own throat, my panic attacks have been through the roof since dealing with this insurance stuff. I don't know if I can take any more. I have spoken to the lady at my dermatologist's office twice, and gotten nowhere with her...she is a hateful lady, and obvious she does her… Continue

Added by Diana Carter on November 2, 2010 at 3:59pm — 3 Comments

A song that I wrote about 3 years ago and I just finished it

UNBREAKABLE



its so hard to feel

when you dont know whats real

i wanted you to see

how much you mean to me

people are always fading

the homeless are always begging



i am always falling down

i cant stand on my own



i waited for you to come around

there is no sound

no one can heal my broken heart

now that its falling apart

im losing everything i came to be

baby why cant you see

i need someway to fix what… Continue

Added by Brandi Badzinski on November 2, 2010 at 9:03am — 4 Comments

Conventional beauty standards be damned!

Sometimes I feel like shaving my head just out of spite!



Yeah, I have cicatricial alopecia that has left some interesting "spaces" in my TWA, so I guess I have a good enough "reason" to shave, but I don't really need to yet.



What really gets me going is the experiences that ladies here are sharing. What gives anyone the right to denigrate a person for something they have ABSOLUTELY no control over? The hurt that has been experienced over this is maddening to… Continue

Added by Angie P on November 1, 2010 at 5:46pm — 6 Comments

Why I'll never again be upset when people assume I have cancer: Experiences as a bald woman in Indonesia

This is a bit long, but please read and share it if you have ever felt upset at being mistaken for a cancer patient, and/or if you are travelling to other parts of the world as a bald woman.



I've just returned from 5 and a half weeks in the beautiful country of Indonesia with my husband. The purpose of our trip was scuba diving - Indonesia has some of the finest diving in the world - and we'd never been there. In 23 days of diving at several locations, I did 71 dives. The underwater… Continue

Added by Mary on October 31, 2010 at 6:30pm — 14 Comments

Falling back out

So my head has started itching more since I've been letting my hair grow in and I just went to scratch the back of my head and found that 2 of the spots where I had re-growth, are completely bald again :( I've been Ok with being bald, I haven't cried once. But I think now its just getting REALLY ridiculous. It teases me with beautiful re-growth, only to make it to like an inch and then start falling out again. I told myself not to get excited about it, I should learn to listen to myself a… Continue

Added by Tamara on October 28, 2010 at 11:05am — 10 Comments

Tangles

Just want to shout out to see if anyone has any tricks for keeping tangles away. Especially the underneath of the back. It's so frustrating. The only trick I have so far is to load up on mousse so it's so crunchy it just sticks to itself.

Added by Lynn on October 27, 2010 at 7:07pm — 7 Comments

Losing my sense of security

If you have never been the victim of a robbery or burglary, I pray you never have to experience it. I on the other hand, have to re-live the fear I experienced when I was robbed on my job 11 years ago. This time, it's a lot closer to home, literally -- on Friday morning between 9:30am and 12:30pm my house was robbed. They took all of my electronics, but were very neat about how they did it, indicating that someone who knew my routines and had access to my house committed the crime. The robbers… Continue

Added by kastababy on October 26, 2010 at 2:40am — 5 Comments

To boost or not to boost

I guess I was just wondering if anyone else has been confused with regards to boosting their immune system and whether or not this can impact on alopecia.



Alopecia is a auto immune system disorder so would boosting your immune system make it worse? However typical unhealthy behaviour and traits are linked with lowering immune response -smoking, consuming junk food, no exercise etc.



I read that if you boost your immune system that autoimmune disorders would actually benefit… Continue

Added by carl on October 24, 2010 at 8:21pm — 3 Comments

Building a roof

I just registered with Missionary Ventures Canada to head over to Guatemala in January for 10 days. The purpose of the trip is to help finish constructing a church and putting a roof on it. I'll be working hard and paying for a portion of the trip myself however there will be a fair deal of fund-raising going on. Everything happens for a reason and I think that God has a plan for each and everyone of us. Today God combined the idea of my missionary venture and my alopecia, he was even gracious… Continue

Added by Carol on October 24, 2010 at 2:52pm — No Comments

A little story from me!

In English the whole entire class had to write about something that has affected our lives. So of coarse I was going to write about my years with alopecia. I told my english teacher that I have alopecia. So I was ok to write about alopecia. But, I wrote secret words in my story so nobody in my class could find out what I was writting about.

Secret Words: palooza= alopecia, paw= hair, and sock= wig! Put these words where the secret words are and you will figure out the story! Hope you enjoy… Continue

Added by Nicky on October 23, 2010 at 5:30pm — 10 Comments

It's all beginning to make sense now - things happen for a reason

When I say that things happen for a reason, I honestly believe it.



In my last post(s) I mention how my daughter has alopecia too...turns out, she most likely has trichotillomania (trich for short) (http://en.wikipedia.org/wiki/Trichotillomania) instead.



My beautiful girl is pulling her hair out by the handfulls - think of the width of a pencil - that's how much comes out with each tug. We are finding it behind the… Continue

Added by Sandi Walmsley on October 22, 2010 at 11:41pm — 3 Comments

The value of a support network, and "It gets better"

Last week was National Coming Out Day (on October 11). I work on a University campus, and since campuses are known for social outreach it was a well documented and discussed event. For those of you that don't know, National Coming Out Day is an awareness day focusing on discussion about the coming out process for Lesbian/Gay/Bisexual/Transgendered and Question individuals, especially teenagers and youth.



In reaction to the tragic bullying-induced suicides of recent, this year there… Continue

Added by Kate on October 22, 2010 at 10:30pm — No Comments

Day by day

Or even minute by minute. Haven't posted in a while. I went to the wig specialist, just waiting to hear back from her. I was pretty specific with what I'm looking for, its a little shop and she didn't have much on hand but hopefully we will get something that looks good. Anyone have any wig info to share ? Since I don't really know what I'm doing any advice would be appreciated.

My hair loss is still gettng worse, the dermatologist prescribed a second cream Elidel, I have been using… Continue

Added by Kelly Hamel on October 22, 2010 at 10:12pm — 2 Comments

It's a new day (part 2)

Due to my rediculous work load this semester, I am just completely exhausted from writing so many papers. Good news for you is that you don't have to listen to me carry on about nonsense. As I mentioned in one of my previous blogs, music is my therapy. I cannot function without it. A particular song is what put me into such a spunky mood this morning (which have been few and far between lately): "I Choose" by India Arie. Absolutely inspirational. If you've never heard it, it is well worth the… Continue

Added by Alex on October 22, 2010 at 12:12pm — 2 Comments

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