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It's Marissa's blog time just because!

So on Sept. 14 we had my daughters first dermatologist appointment and the derm told me it looks like she has all the signs of alopecia. Then she asked me how I felt about hearing that and I told her that I pretty much have been preparing myself to hear those words. I told her that I was actually glad it wasn't something worse. She told me my daughter looks healthy and that most likely if I have a family member that had it or if I have a family member with thyroid its more likely to occur. So… Continue

Added by Marissa L. on September 28, 2010 at 11:01am — No Comments

Saturday Night Live - funny or offensive?

did anyone see the alopecia skit on saturday night live.

Did you find it offensive?
i thought it was both funny and offensive.

Added by Alison on September 28, 2010 at 3:49am — 11 Comments

Some regrowth, I think?

After my last set of steriod injections , about two and a half weeks ago , I have noticed more hair starting to grow on my spot . I don't want to get my hopes up or anything so I'm just taking this day by day strand by strand . The new hair seems to be baby fine and has a few white ones . I did have a few white ones there before so I don't know if it was from before or new ones . Does anyone know if this new hair will thicken out eventually ? And does it fall out easier then normal healthy hair… Continue

Added by letcia Parga on September 28, 2010 at 3:05am — No Comments

The AHA! Moment

Most of us can pinpoint The Moment when something big happened (Elvis died, Neil Armstrong stepped onto the moon, Challenger exploded, Kennedy was shot, Princess Diana died, Michael Jackson died, Twin Towers...).



What about the moment you realized you would stay bald forever (or thought you would), and said to the heavens, "Well. Okay, then," and just did what you had to do, from then on, as a person with hair loss...no more prayers, tears, bargaining, shots, etc.? When was that,… Continue

Added by Tallgirl on September 26, 2010 at 9:30pm — 9 Comments

Northumbria University, Newcastle Upon Tyne, UK!

Hey all!

Thought I would keep you all updated! I moved into University halls last friday!! Loving it so far! I couldn't have asked for better house mates, really they are so so lovely! A house of 6 students, 3 girls and 3 lads. All studying different subjects, but we get on so well! We have a real nice family vibe, taking it in turn to cook for everyone each day, and the lads are so protective of us 3 girls when we go out!



And NO ONE cares about the 'bald issue'. I have had a… Continue

Added by Lizzie on September 26, 2010 at 11:47am — 3 Comments

More hair everywhere!

so since being pregnant i have had massive regrowth.

my eyelashes are back and i'm going to buy mascara this week! the hair on my head is back and some even on the top! i keep shaving it so it will come back thicker and more even.



I'm now on more medication for my lupus and will be weaning off the steroids, i guess when i'm off them my hair might fall out again. or when my hormones go back to normal my hair could fall out. or it might not.



i don't want to hope to… Continue

Added by Alison on September 24, 2010 at 7:39pm — 4 Comments

Anxiety, fear and my pledge to myself

Warning: This is a total anxiety-fueled vent session, written in the hope the act of writing about my anxiety and fear will lessen it. We'll see.



Here I am again, bargaining and wondering what my problem is.

If God, the Universe, All That Is, or Who/Whatever would allow me to get away with NOT having MS, cancer, some neurological condition or any number of equally devastating diagnoses, I will be grateful if it's "just" (and I use that word cautiously, because we all know hair… Continue

Added by Lori on September 22, 2010 at 7:01pm — 4 Comments

Being bald is not a reason not to date

So the guy I told that I have alopecia. 2 ½ weeks ago I called our relationship off for good reasons. I found out that because a guy accepts you with alopecia doesn’t mean it will be a match made in heaven, it only made me realize that a lot of other guys will be just accepting.



First he never called/text after working hours. And he was always too busy. Too busy to call/text/be together, sounds like maybe a wife @home. I said what am I doing dating you? So after trying to explain… Continue

Added by Sam Sam on September 22, 2010 at 12:00pm — 20 Comments

So NOW you want to grow back

So yesterday I went to re-apply some eyeliner and noticed hair growing over my new tattooed eyebrows, I have like 4 eyebrow hairs going in, and they are thick dark brown like the rest! I cheered (silently of course, I was at work) and was so excited I e-mailed my mom "MY CATERPILLERS ARE GROWING BACK!!" Definitely cool to see the hairs coming back in. Luckily though if those hairs decide to fall back out, theres a lovely tattoo underneath it. But That kind of made my day yesterday!!

Added by Tamara on September 22, 2010 at 7:30am — 7 Comments

Lord, just some eyebrows...please!

Please forgive me - but I need to vent. I find myself lately begging and pleading with God to give my son some of his dark eyebrows and eyelashes back. That's all he wants - forget all the rest of the hair. He's 14 - just started high school, and lost basically all his hair 9 months ago. He is such a handsome guy - but he just doesn't see it. And the loss of his eyebrows (the little hair he does have is white) is such a downer for him. Tonight he was really in a foul mood - but wouldn't share… Continue

Added by April Peters on September 21, 2010 at 10:46pm — 4 Comments

Getting use to the new me is a journey too

I want to start by saying that I dont regret shaving my head. I do believe it was necessary as part of my healing. But today I find myself wavering in my self-image. Wondering if I can ever let myself truly be. I spend so many years hiding and not letting people close. Especially men. I know that there is always going to be good days and bad for everyone not just for us that live with alopecia. And I know that our "battle" sometimes makes it that much more tougher. Im not looking for sympathy… Continue

Added by Bald and Fabulous AKA Terri on September 21, 2010 at 5:01pm — 2 Comments

'Why do you shave your head?'

I started to post this as a response to the question “Why do you shave your head?,” which Pam Fitros asked this Alopecia World group. I posted this blog instead because I wanted to share my answer with the entire community.



Back in 2010 I saw an advertisement for “It’s All Good Hair,” a “natural hair” workshop and celebration sponsored by the Shrine…

Continue

Added by Cheryl, Co-founder on September 20, 2010 at 11:30pm — 14 Comments

Feeling overwhelmed!

I feel so stressed out seeing my little girl going through so much and not being able to make it go away it hurts so much! I need parents who are going through the same thing to give me advice and assistance!

Added by Kathy De La Cerda on September 20, 2010 at 11:23pm — 1 Comment

The wind

Many people will tell you how the wind in your hair feeling is great. But for someone like me who has alopecia areata, I see the it differently. Since I have bald spots on my head its generally not very noticeable but when the wind blows then it reveals. I used to always wear a hat whenever I go outside but now I'm not as self conscious. If its very windy outside then I would wear a hat.

Added by Lawrence C. on September 18, 2010 at 3:37pm — 6 Comments

An UP for people feeling DOWN on here!

so as i scroll through the blogs i notice some of us are still having trouble coping with what we have, u people do not need to be ashamed and let it effect your life, maybe in a cancer situation but we are not dying from this, yes it could be worst but it is not, i know it is traumatic for some of us but as humans we learn to adapt to things, we may feel uncomfortable sometimes but it will not be forever, for u married alopecians i can tell u that the man/woman fell in love with u for u and no… Continue

Added by Paul on September 18, 2010 at 2:52am — 5 Comments

A big thank you

I'm sure I am one of hundreds of you that want to say this but, thank you Alopecia World.

With out this wonderful site my alopecian days would be a little harder, the looks in the supermarket would sting a little stronger, the windy days on the soccer field with 18 girls would never happen, my confidence to walk on a tennis court in just a scarf would not be there, I would not have these wonderful friends that I feel so safe sharing my feelings that I never had before AA, I wouldn't have… Continue

Added by margaret staib on September 17, 2010 at 8:26am — 18 Comments

Human Beings!

So what. No hair. Once you are no longer relating to the world like high school, wanting a model or wanting validation about your own looks, you know you will be looking for some human qualities in others that please you and make you comfortable.



We all know that silly list that goes on dating sites about eye color, hair, body type etc. They never ask the real questions.



Likewise, when caught up in alopecia fears, maybe we lose sight of what it is WE have to give… Continue

Added by Tallgirl on September 17, 2010 at 2:00am — 8 Comments

It's about to be raining on my bald head

So this is going to be pretty short and random. Its 2 weeks ago today that I shaved my head, and the first day since then that it has rained. I was told rain feels really good on a bald head by like 4 different people. I asked if it was like taking a shower...but I was told no, its different, LOL I don't see how, but soon, I will find out. I feel like a dork, but I cannot wait for work to be over so I can walk to my car and feel rain on my bald head, LOL. Oh the little things in life that bring… Continue

Added by Tamara on September 16, 2010 at 3:00pm — 10 Comments

Day 4:::: BAD HAIR DAY :)

Today is day 4 of Bald life. Today is defiantly tough for me. First my daughter asked me to wear a scarf to her school. I agreed. When I got to the train station I decided I was not comfortable with it. So I took it off while she wasn’t looking. She did not notice for 2 minutes as we were talking about a picture and walking. The train came and she looked up at me and tears ran down her face. She asked , you’re not going to my school like that are you? I explained to her that I did not feel… Continue

Added by Sam Sam on September 16, 2010 at 9:30am — 12 Comments

Another sucessful NAAF meeting

Hi Everyone,

I hope everyone had a great summer!

With the changing of seasons, I find myself with harmony.

Many of us went to Indianapolis in June for the annual NAAF Conference and had our chance to get together with old friends and meet new ones. It was exillerating!!!

Tonight we had our local NAAF Support Group Meeting and it was so nice to get back together with fellow alopecians. It always feels so good for me!

It's been quite the journey. Good days with a few bad… Continue

Added by JeffreySF on September 16, 2010 at 2:30am — 5 Comments

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