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Bandanas

had a good few days bought some bandanas my wig is annoying lol like the bandanas alot better! My husbands 30th bday is Aug 10th ill wear it when we go celebrate but other than that im a bandana girl all the way lamo!!!! Anyways everyone have a good night and GOD BLESS!!!

Added by amy on July 28, 2010 at 1:21am — No Comments

Favorite quotes about baldness :-)

Here are several of my favorite quotes and sayings about human baldness, a few of which are mine. ;-) Please share your own as well as let me know what you think of the following:

"Say it loud: I'm bald and I'm proud!"

- Anonymous

"Bald is the new black."

- Anonymous, but often attributed to Gail Porter

"They say most men are not attracted to bald women. I say most men lie."

- rj, Co-founder, Alopecia World

"Women's liberation will not be…

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Added by rj, Co-founder on July 27, 2010 at 12:30pm — 13 Comments

No more eyebrows

when my hair fell out last year, i said in passing that i would have to kill myself if i ever lost my eyebrows/eyelashes. i had like really fierce eyebrows. but anyways today those eyebrows fell out. like in matter of hours they were gone. no me gusta.

Added by Ellen Chinery on July 26, 2010 at 11:36pm — 12 Comments

OMG!

well today i meet a girl with alopecia and her names alicia shes 12 and shes gonna go to the same school as me she dont like wearin wigs and she lives just up the street from me i thjought it was soooo kool that their was someone like me thats goin to the same school as me... she thinks my moms wierd tho cuz my mom was goin past her house and seen her and stopd her car in the street and was like do u have alopecia and alicia was like ya and so my mom pulld in her driveway! and startd to talk to… Continue

Added by lex on July 26, 2010 at 9:36pm — 6 Comments

Music Therapy

Seems to me we need to come up with some uplifting songs as therapy. Some of you have found great ones for your profile pages, but there isn't one place to collect them all. I wonder if we can list some of the songs that saved us, gave us hope, reassured us, etc. and see if rj and Cheryl can come up with a way to click on them as we do with photos and videos. If not, we can always Google the You-Tube videos or recordings.



I'll start with six:



Don't Let the Sun Catch You… Continue

Added by Tallgirl on July 25, 2010 at 10:00pm — 45 Comments

Is long white hair a good thing?

ok I found a long white hair on one of my spots everything is so new to me is this a good thing??? Im excited i found it but i dnt wanna get my hopes up but....I cant help it :). Other than that nothings really been going on. My moms bday was yesterday and I was depressed cause I miss her so much but Im good now. I wish she was here with me so I can let her hold me and tell me everything will be ok. My mom passed away 6 yrs ago and I miss her so much!!! :(

Added by amy on July 25, 2010 at 10:13am — 1 Comment

Lots of questions about doctors

Here you go...



For those of you who go the natural route - how did you find a homeopathic doctor? If I know of someone with a good reputation - is it worth traveling for? How often do you go? Do these doctor's treat children?



Has anyone ever gone to an immunologist - any luck there?



What about a gastroenterologist? All of these things that come up - leaky gut, candida/yeast... can these actually be diagnosed by tests?? Does it require a… Continue

Added by Cari on July 25, 2010 at 3:17am — 4 Comments

Hair is growing and we did NOTHING!

So as some of you may know Mikey started his hair loss journey on oct 16th 2009. By feb 10 he had lost most of it by mid april '10 he had lost all of his long beautiful hair with the exception of his giraffe patch which he still has. Some of you may recall we only did topical steroid ointment for no more than 2 months then decided to let alopecia runs its course. now all of a sudden beginning in mid june he started to grow hair. It isnt alot but hell its growing!! yes its patchy and some is… Continue

Added by jackie estrada on July 25, 2010 at 1:43am — 1 Comment

I hate but I can't help but love

i hate it when kids stare at me.

i hate it when they ask their parents whats wrong with me.

i hate it when they ask me whats wrong with me.

i hate it when people assume i have cancer.

i hate all the blank stares.

i hate the snickers.

i hate the pointing.



i hate not being accepted.



i hate not having hair.



i love my friends who never notice im bald.

i love my family who never snicker or point.

i love my dad who has alopecia… Continue

Added by whitney rose on July 24, 2010 at 5:27am — 6 Comments

15 years, 27th birthday...I didn't think it would be this hard

It's been over 2 years since I've wrote my first and only blog on this site. It's also now on very rare occasions, that I'm actually active on this site. But right now, I didn't know where else to go. This month marks 15 years. 15 years ago, at age 12 I lost my hair for the first time. 7 years ago, this month, I noticed my hair falling out again after having had my own hair for a little over 2 years. Here I am 5 days from my 27th birthday and I can't seem to do anything but cry. I cry over my… Continue

Added by Alexandra on July 23, 2010 at 9:38pm — 5 Comments

A few questions

Hi ive had alopecia areata for nearly a year now a couple patches have grown back while others are spreading. I have noticed a patch missing from my wrist but unsure whether its alopecia or not. I'm really worried that i may develop universalis. Just wondering of the people who have universalis how fast did your hair fall out or did it take a long time? Did you start with scalp hair loss, than patches on your body or does it normally go from scalp to facial loss eg eyebrows etc? Did the hair… Continue

Added by tim on July 23, 2010 at 8:12am — 4 Comments

Identity crisis

I just recently moved to a new area and it has been my goal to be more open about my Alopecia - wearing my wig less, not worrying about having my wig on when I step into the yard, wearing bandanas/scarves more often, etc. I want people to see the "real" me, but that's where the identity crisis comes in... Who am I, really? Do I want people to know me as the person I really would be if I had my own hair (meaning they would see my wig as my real hair)? Am I just trying to fool people by wearing a… Continue

Added by Amber W. on July 22, 2010 at 6:48pm — 8 Comments

Running into an alopecian

I was just vaguely reminiscing in the old days at my old workplace.. I was a customer service associate (cashier) at a tech store. During those days I was at my worst. Wearing a wig everyday to work and claiming I'd gotten extensions, meanwhile more and more of my hair fell out. Anyways, one day I noticed a man and his aunt? mom? He wore a baseball cap.



He looked a little like my history teacher who had lost hair prematurely and shaved his head. But it seemed like he didn't have any… Continue

Added by Sofia on July 22, 2010 at 5:49pm — 2 Comments

Supportive Mom

Let me start by saying that I love my Mom to death and she is wonderful to me. She always listens but in this one area, it has taken time for the support that I needed. When I first started having hair loss problems, I had to go see a hair specialist in another city. I really wanted for my Mom to take me, but my grandmother ended up taking me. I started using Rogaine immediately. My hair loss didn't start to really bother me until a few years later when I felt like it was becoming more and more… Continue

Added by Alliegator on July 22, 2010 at 11:46am — 13 Comments

Thought for today

None of my friends have Alopecia, yet all do have one thing in common: SELF-DOUBT. It occurred to me that we worry about how the world will respond to our hairless heads, while they are worrying about their big bums, pimples, blotchy skin, etc etc. We have a unique condition but the problem we have - namely, self-doubt - is common to all.



Here was my advice to her, and it applies to us Alopecians too:



Think of yourself as an amazing gift to the world. Think of what you are… Continue

Added by Michelle L on July 22, 2010 at 7:26am — 10 Comments

Starting a "support" group...

Hey Everyone!



So I'm going to try and set up a GATHERING, or a Meet & Greet of the Alopecians in my home town! I have wanted to do this for awhile now, and I'm READY! BUT! I was hoping I could get some ideas on home to get it started...I have a few but wanted to draw from anyone who has done this already in their home! I have started a flyer to advertise it, and get the word out. i was going to drop it off at doctor's offices, other medical offices and few places around town.… Continue

Added by Becka on July 22, 2010 at 12:34am — 11 Comments

A funny thing happend on the way home from NAAF

Hello Gang,

It's been three years now since my alopecia started.

It all started July 5th 2007 with a small round bald spot on the left side of my head. Within three months I had lost so much hair I decided to take the plunge and shave my head for the first time.

I became comfortable with my new self image with the help of Alopecia World and NAAF (3 conferences in 3 years)

I was AU for about a year and slowly things have been "Growing Along"



After the NAAF Conf in… Continue

Added by JeffreySF on July 21, 2010 at 9:00pm — 20 Comments

New here

Hello! I'm Amy and I'm new here...well its all new to me!! I started losing my hair aroung March of 2010. My daughter and I went to go get our hair done and about a month maybe less i found a bald spot by my right temple at 1st i dnt know what the heck then i week later i found another then another. I started looking up reasons for bald spots and came across Alopecia Areata the monent I saw it i knew! The stress really got to me then i got depensed then i went to the walk in clinic they took… Continue

Added by amy on July 21, 2010 at 2:27am — 3 Comments

Avoiding Active/Outdoor Life

I suppose if one is afraid to try anything new due to reasons like tiltable wigs, social insecurity, or irrational fears (like bridges and highways, insane clowns or kapusta festivals), then one might avoid all sorts of open-air, windy, or active endeavors, and stay safe with indoor hobbies. (ME? Reading, talking, art, music, movies, study, work). As a wearer of elastic-held wigs (caps too hot in California), I can understand the trade-offs that I have made in life.



You gals who are… Continue

Added by Tallgirl on July 21, 2010 at 1:30am — 29 Comments

Thinking about trying some hair pieces

So as the days have been going by, the top of my head, toward the back, is pretty much all bald. My mom had the idea I start wearing headbands to try to hold some of the hair in the front to the back, to hid the big spot. Well its all starting to thin out and I saw online these Paris Hilton hair extensions that are connected to a headband. They are not expensive and it looks like they have my color. Has anyone tried these out before, or do you know of a good hair piece? My head is tingling like… Continue

Added by Tamara on July 20, 2010 at 11:18am — 9 Comments

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