All Blog Posts (5,825)

A great big thank you!

Just want to thank everyone for their support on this wonderful site.
I don't know anyone personally and haven't written much as yet. But have read a lot from the site. I appreciate everyone sharing their stories.
It helps so much,-- just to know someone else understands what you are going through. God bless you all!

Added by Georgia Kay Jarman on October 23, 2012 at 12:40am — No Comments

I'm getting gray like white hair all over my head

I always had brown hair but I always wished I was a red head. I colored it bright red. A year ago i shaved what little hair I had left. The patches got smaller and smaller and it quit growing. The last couple of months my hair has been growing back very slowly I am getting more and more. Its really sparse and has no color to any of it. Any color hair would be so great. I will take gray hair over no hair any day.

Added by Sheena Tha Cody on October 23, 2012 at 12:30am — 14 Comments

Granddaughter with AA

My granddaughter was diagnosed with AA.I have hope that her hair will come back not only in treatments but that God took upon himself on the cross her disease and by his stripes we are healed.

Added by jayden thompson on October 23, 2012 at 12:00am — No Comments

The journey

I am a freshman in college and have personally had Alopecia for almost 5 years now. I would say that it doesn't bother me anymore, but sometimes I find myself staring in the mirror and wondering what I would look like if I still had my long, brown hair. I think the hardest part of having Alopecia is that my twin sister does not and I have a constant reminder of how things should be. I know it's not her fault, but I feel like that is almost natural to feel. Fortunately, these moments of…

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Added by Megan Bry on October 22, 2012 at 12:30am — 1 Comment

New to Alopecia World and AA

hi everyone

my names nicky im 25 ive recently just been diagonosed with alopcia areta its been a few weeks now and already the bald spot on my left hand side of my head has almost doubled in size :( im dreaing wats to some in the next coming weeks. how have u all managed to cope so well which such self altering news :( is there anything i can do to help slow down the process or help get my hair back or should i just accept the new me ???? worried confused me i would love hearing any…

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Added by Nicky Hall on October 20, 2012 at 4:00pm — 3 Comments

I saw the back of my head for the first time

So last night I went to this awesome fundraiser event: DCLAW - arm wrestling for Miriam's Kitchen!

Sporkticus was Miriam's Kitchen's entry into the competition and of course as a former Senior Case Manager at Miriam's I was there in full support.

This morning I saw this picture. An awesomely awesome picture. But it made me flood with emotions. It was the first time that I saw the back of my head.

I knew that there wasn't hair back there but I didn't know about the crazy…

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Added by HilEspi on October 20, 2012 at 2:33pm — No Comments

IRP

Hello everyone,

My name is Emily i have had alopecia totalis since kindergarten and am now in year 12. i have a subject that i am doing for my high school certificate the subject is community and family studies and i have to do an independent research project and i am going to do it on alopecia and as a part of this project i need to interview over the internet and or a question air if you would like to take part in this please message me and it is up to you if you won't your own name…

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Added by emily5 on October 17, 2012 at 10:58pm — 11 Comments

I'm shaving my head tonight :/

It's time for me to shave the little amount of hair I have. I'm so nervous! I'm just happy my husband is here for me. I got my new lace wig today and I'm really happy with it! I hope it looks good on :) My mom doesn't like the color and said I should color it or find something else. I think she just isn't ready for me to shave and wear a wig yet.I can't believe I'm finally brave enough to do this. Here we go :/

Added by Elaine on October 17, 2012 at 10:04pm — 9 Comments

No more cortisone injections (in my mommy dearest voice)

I had an appointment to get my regularly scheduled cortisone injections at the end of the month last month and just decided I was not going to put myself through it anymore. It hurts like hell, I am an emotional wreck, and its sore afterwards. I am firm believer that continuously putting any chemical into your body over a long period of time causes some issues. As I touch my bald spots, I notice dents, which is a side effect. The dermatologist told me that it means my scalp is thinning due…

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Added by Jasmine Harrell on October 16, 2012 at 12:30am — 5 Comments

Topical steroids. Scared

I just started using a topical steroid. I'm scared. I guess I used it when I was a baby but when I started growing up I was ALWAYS scared to put something on my head Cuz I thought it would hurt the hairs that are growing back but the dermatologist said that it'll either do something or nothing. Has anyone had experience with topical steroids? if so please tell me your experience and fill me in. thanks.

Added by Devin on October 15, 2012 at 9:30pm — 2 Comments

Nursing licensure exam

Hi everyone,

I graduated a few months ago with a bachelor's in nursing, and I am taking the NCLEX (nursing licensure exam) in a couple days. I'm looking for advice from anyone who has taken the NCLEX or any other PEARSON test. I've heard ridiculous stories about how strict the security is at the exam, and I'm feeling worried. I wear a wig all the time, and I am very private about it. I don't know if they will inspect the head/neck well enough to know, and I don't know if they would…

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Added by Lauren on October 15, 2012 at 6:00pm — 2 Comments

UK Petition for Medical Research

Dear Alopecia World members, BeBold Make A difference Alopecia support group are supporting a members creation of a petition to the UK Government to drive research and funding into Alopecia Cause and Cure - I would like to get the word out and wonder if I can post the link on Alopecia World site - could the webteams confirm this would be ok??

The petition may only be open to those living in the UK, so perhaps the post could go on the Groups page - is a similar petition possible in the…

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Added by Chris L on October 15, 2012 at 5:47pm — No Comments

Skin hair and nails vitamins

I am a bit of a cynic when it comes to taking pills to find a cure. I know there are a number of things out there that claim to 'regrow' hair. Although I have not wasted my money on these products and never will (I don't suggest anyone else does either) I did get thinking about just taking normal vitamins.

I was told once in hospital to take Vitamin Bs, Zinc tablets and Haribo sweets! I went out to get the suggested pills and tried to take them but never really committed to…

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Added by KFlame on October 15, 2012 at 1:30pm — 2 Comments

All eyes are on me!

I went to get my first mammogram. I was already uncomfortable with the fact I could not wear, perfume, lotion or deodorant. I have anxiety from the horror stories of getting a mammogram. I enter the waiting area and all eyes are on me. Instantly it occured to me, my bald head was associated with me perhaps having breast cancer. I suddenly felt like the star attraction at a freak show. I was filled with many emotions in which I could not easily identify. It took every ounce of my energy not…

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Added by kymkym on October 13, 2012 at 11:30pm — 11 Comments

Bald men considered more dominant

Found this article online, and thought it might encourage men on this site!

Men With Shaved Heads Appear More Dominant, Study Finds

The Huffington Post | By Jessica Misener Posted: 10/01/2012 5:39 pm EDT Updated: 10/01/2012 6:20 pm EDT

A new study suggests that balding men should just go ahead and Bic it all off: society sees men with shaved heads being more "manly."

Alfred Mannes, a researcher at the University of Pennsylvania, published…

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Added by Tallgirl on October 13, 2012 at 1:00pm — No Comments

I DID IT!

ive been going back and forth about shaving my head ever since i was diagnosed. i started with shaving the side, then some more, and today i went to shave the other side. as i started cutting i began getting frustrated becuz all i could focus on was my thinning crown area. in that moment i decided that i was better off just doing all of it.

ive had this headache about my hair for months, and im tired of letting it consume me. everyone on this site is beautiful bald or with hair. my…

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Added by neverthoughtidenduphere on October 11, 2012 at 1:23am — 11 Comments

"I am so sorry!"

My son was diagnosed with AA at 12 months. He finally grew some hair a couple of months earlier and it started coming in nicely. Within just a few weeks, almost all of it was gone. He was left with this weird little patch of blonde curls on the top of his head that made him look like one of those cute little cartoon babies with his big blue eyes the way they are. He lost all of his eyelashes and eyebrows, too.

He is now 21 months. He has a newborn little sister and is starting to get…

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Added by Nikki - Coley's Mama on October 10, 2012 at 11:52pm — 8 Comments

Has anyone else...?

Hello all. I've read about the wide diversity of alopecia we have although I haven't come across a case quite like mine. It is a rather normal looking male pattern baldness except the fact that I am only 27, and have had it sense 10-11 years old. I've said before, It's rather fitting when wearing a suit Ha. But what is interesting to me is I also have an oval shaped spot on my left arm triceps and the same on my right arm only half the size at the elbow. Also my lower legs have only…

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Added by RonaldStone on October 8, 2012 at 6:30pm — 2 Comments

I just want my husband to see the goodness of this disease!

I love my husband, but he has a hard time with me being bald and there are some days I just want to rip my hair system off because I do not feel like me. The real me is bald, but i guess in someways I am scared to be bald because when people ask me if I have cancer I get frustrated and have to explain the diease and people have never heard of it.

I love my husband and he has been my rock through all the tests, wig fittings, the shaving of my head ritual, and just plain breaking…

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Added by Elizabeth Glaspie on October 8, 2012 at 5:07pm — 4 Comments

Sunday

This sunday me and my husband tok a walk on the beach. It was very windy and the waves was high. The dog loves to run into the ocean and back up on the beach. They get a lot of sand in their fur that comes of at home on the floor later.

I love to take these long dogwalks in the weekend when I have time for it.

Later I trained my pony to walk in to the trailer.I'ts nice to have the time to "play" around with my animals.

It's getting colder by the day and this morning it was only…

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Added by Renée on October 7, 2012 at 2:02pm — 1 Comment

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