May 2009 Blog Posts (109)

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rude people!!!

why do people think they have the rite to ask me why am i wearin a bandana, or why am i lookin like a pirate, how rude and insensitive can people get,

dont they realise how difficult it is livin without any hair, my confidence is at its lowest now, ive had some1 tell me ive put on weight or i look terribly pale, i just want to be accepted for who i am,

im not any different apart from havin no hair, i have feelings and these small minded people dont realise how much it hurts wen they… Continue

Added by lynne on May 25, 2009 at 6:06pm — 7 Comments

wigs

today i went shoppig 4 wigs(: i didnt find any but, i ordered 1. im glad i am getting a wig i feel so ugly walking around with half of my hair gone!!! i dont understand how people can be happy of theirselves bald ????not that they look bad but i dont have the guts 2 shave my head when i get my wig i will be sooooooooooooooooo happy

Added by Nikki Mans on May 25, 2009 at 6:00pm — 1 Comment

hats off!

this weekend i got my first real haircuts since january. my mom had trimmed up the ends a while ago, but this was the first real cut. my strategy was to wait as long as possible to let some of the new growth lengthen before getting a cut, but i could not stand all of the straggle-y hair any longer. so, he shaped it up about as well as he could given what he had to work with. this also meant changing my part (which, as you can imagine, always feels weird) because my hair seems to naturally be… Continue

Added by Paula on May 25, 2009 at 5:03pm — 2 Comments

AA BBQ

Hi I live in winnipeg,manitoba canada...I live in the St.Nobert area.. I was thinking of have a kids AA BBQ, I have a pretty big fenced in yard and tons of toys in get into.Since there's not much for kids in winnipeg I thought I would have my own kids day.. I think it would be a great way to meet other parents and kids to meet. Let me know what you guys think and if it seems something you'd be intrested in let me know and I'll get a date figured out.....

Added by Christine Messner on May 25, 2009 at 2:19pm — 2 Comments

My Story Part 3

Three years later, I’ve accepted the fact I am a bald 39 year old woman and there’s not a damn thing I can do about it. No potion, no medication, and no magic wand is going to make my hair come back. I’m not quite ready to face the world without a hat just yet, I feel as if that day is coming thanks to finding this site. It encourages me and lets me know I’m not alone. Recently a friend of a friend heard about my AU, going through training for permanent make-up she offered to donate her talent… Continue

Added by Kami M. on May 24, 2009 at 9:39pm — 5 Comments

My AU Story Part 2

I cried everyday wondering why me? How come this happened? Does my husband still find me attractive, and are my children embarrassed of their mother. My Sister and mother insisted I needed a wig; they chipped in their money and bought me a wig. I went to the salon, had the wig styled and thought I might just like the wig. After a couple days of wearing my wig, I didn’t really like it, it was hot, itchy, and it made my scalp break out. While driving down the road, I had enough of the wig, ripped… Continue

Added by Kami M. on May 24, 2009 at 9:29pm — No Comments

My AU Story Part 1

In May of 2006 my husband was walking up the steps as I was sitting on the steps. He shockingly said "Um you have 2 bald patches on your head what the heck did you do?" not believing him, I went to look for myself. Sure enough, 2 quarter size bald spots, I immediately called the Doctor, not knowing why this would happen to me. My family Doctor sent me to the Dermatologists, who told me I had Alopecia Areata. The dermatologist put many steroid injections in my scalp, gave me topical solution and… Continue

Added by Kami M. on May 24, 2009 at 9:16pm — No Comments

Gonna Get A Tan On My Head.

I was thinking about how white my head is...lol. So I decided that I am getting some baby sun block and I am going to jump on the trampaline and see if I cant get a little tan on this white scalp of mine... lol. I promise I wont stay out for long... dont want a burn. OUCH!

Added by Kristen Viveros on May 24, 2009 at 7:29pm — 3 Comments

What embarrasses me most...

What embarrasses me most is not that I am as bald as an eagle, but the way that I've handled it over the years.



I mean...it is JUST hair...whenever I fail to make a big deal of it, the rest of the world follows suit.



I met a girl once who is stark bald, and never - ever wears a wig. She is probably the most beautiful and fashionable girl I've ever known, and her make-up is always picture perfect. When someone asks her why she doesn't have any hair she just smiles and… Continue

Added by Jackie on May 24, 2009 at 3:30pm — 8 Comments

More Than Meets The Eye

As you all ready know I have Alopecia Areata and I have shaved my head. No big deal compared to my other medical issues. I was diagnosed with Fibromyalgia Disease on the same day as I was with Alopecia. I also have chronic Anemia. So I am dealing with three things all at the same time. From the fibromyalgia I am always in pain. I do not take pain meds tho. I have extremely bad anxiety attacks and muscle spasms. If you would like to learn more about Fibromyalgia Disease you can find its… Continue

Added by Kristen Viveros on May 24, 2009 at 9:46am — 4 Comments

Getting Past Hurdles

I really want to say thanks to everyone who commented on my last post. You all helped me make a decision I was fighting with. I'm close to the end of an Associate's degree now and as part of one of my classes, I had to go on a mock job interview where the interviewer was the one grading me and part of that grade was on my appearance - was it professional enough. I thought about wearing my wig as this would be the most professional-looking thing to do, but in the end, I chose to go as I am. I… Continue

Added by Kathie Nietenhoefer on May 24, 2009 at 4:09am — No Comments

Totally Me

I am bald, I am bold and I am not ashamed. I go out in only my bandannas. I never wear wigs nor do I ever plan to wear one. I am a very open minded person. I love to show off the new me. I love to make people wonder whats wrong with me. Let them stare because they dont know what they are staring at. I get a lot of sympathetic looks, as though people think I am a cancer patient. But, no one has the guts to ask me whats wrong. People will always talk about someone or something so I say, why not… Continue

Added by Kristen Viveros on May 23, 2009 at 9:27am — 10 Comments

Treatment

Hi.

Anyone heard about this?

http://www.shmuel-gonen.com/en/

Roger.

Added by Roger on May 23, 2009 at 9:17am — 8 Comments

AU and the Sun

Just wondering if anyone else with AU experiences being allergic to the sun? I never had any signs of Alopecia until I turned 37. I use to tan well when in the sun. Every since I was diagnosed as having AU, I can't go into the sun without turning into hives and itching everywhere. This even includes drving/riding in a car. The strangest thing to me, wherever the sun has made contact with my skin, face, hands, etc. later in the evening turns into hives and requires me to take benadryl to control… Continue

Added by Kami M. on May 23, 2009 at 6:45am — 4 Comments

A wonderful book!

I worked in my local school district for seven years. A 5th grade Teacher having read this book for many years along with her students, discovered I had Alopecia. She asked me if I would be interested in having a discussion with her class, and without hesitation I blurted out , "Yes, sure I will." This was my prior to Alopecia outgoing personality coming out. Later, I thought I can't even come to terms with having Alopecia myself, lil alone discussing… Continue

Added by Kami M. on May 23, 2009 at 6:35am — 1 Comment

Making Progress

The support on this site has been amazing. I've starting taking baby steps. A couple days ago I told my best friend about my alopecia and how it has made me feel. I even took my wig off so he could what my hair actually looks like. As of right now I'm not completely bald I had to stop shaving because my scalp was so irritated. He was so supportive and understanding. We talked until 2a.m., he suggested since it was so late and no one would see me that I drive home without my wig on. I did and it… Continue

Added by Anastasia on May 22, 2009 at 4:55pm — 2 Comments

TV interveiw

My son Kyler and i did a TV interveiw at our house today(winnipeg,Manitoba,Canada) It was for children who suffer with Alopecia but they will touch on adults suffering as well. I just want to try to get some awarness in winnipeg for people with AA.. It will be on monday25 on big breakfast channel 8.It will be on 7:20 and agian 7:45 am. and on tuesday they will have a dermatologist on talking more about AA..Just wanted to tell you guys and I hope that some of you can tune in

Added by Christine Messner on May 22, 2009 at 2:17pm — 3 Comments

Can anyone help?

I have noticed an incress of my hair loss and the growing size of my patches. But i used to regulary dye my hair, but ever since i have had AA i have been more aware of the risks it may cause. I supose that nothing may happen or something extreme could.I would just like some help on how to go about this, i would really be thankful to anyone how can offer me support or share there stories with me. Thankyou.

Added by Rebecca Rae on May 21, 2009 at 1:53pm — 2 Comments

plants and pets

might sound silly, but the only time i don't feel affected by this horrible thing, is when i have my hands in the dirt planting something......or when i am talking to my sons' fish in the pond while i am feeding them(a chore which i usually dread because when he goes out of town, i take over animal chores) .......or scooping crap from the 4 litter boxes from the 7 cats his deceased father left him........or walking my grand dog, who cares little whether i have on eyebrows or a wig. even tending… Continue

Added by brenda kay on May 21, 2009 at 10:42am — 3 Comments

Shaved it off! - Missing...between 100-200 thousand hairs. If found please return to this rightful owner

Well I did it. The hair is gone. My spots were getting to the "I look sick "stage and the hubby helped me make the call. He shaved my head with my little girl present. Her response "You look like Uncle Paul" my handsome brother in law who sports his head -shaved look. My husband's response "You have a good head" How do I feel...Relieved a bit, stunned alot, sad a bit, but not as painful as I thought. In a very abstract weird way, I think I look cute...at least not sickly which is what I saw in… Continue

Added by Jennifer Krahn on May 20, 2009 at 10:29pm — 9 Comments

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