Featured Blog Posts – May 2009 Archive (75)

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AU and the Sun

Just wondering if anyone else with AU experiences being allergic to the sun? I never had any signs of Alopecia until I turned 37. I use to tan well when in the sun. Every since I was diagnosed as having AU, I can't go into the sun without turning into hives and itching everywhere. This even includes drving/riding in a car. The strangest thing to me, wherever the sun has made contact with my skin, face, hands, etc. later in the evening turns into hives and requires me to take benadryl to control… Continue

Added by Kami M. on May 23, 2009 at 6:45am — 4 Comments

A wonderful book!

I worked in my local school district for seven years. A 5th grade Teacher having read this book for many years along with her students, discovered I had Alopecia. She asked me if I would be interested in having a discussion with her class, and without hesitation I blurted out , "Yes, sure I will." This was my prior to Alopecia outgoing personality coming out. Later, I thought I can't even come to terms with having Alopecia myself, lil alone discussing… Continue

Added by Kami M. on May 23, 2009 at 6:35am — 1 Comment

Making Progress

The support on this site has been amazing. I've starting taking baby steps. A couple days ago I told my best friend about my alopecia and how it has made me feel. I even took my wig off so he could what my hair actually looks like. As of right now I'm not completely bald I had to stop shaving because my scalp was so irritated. He was so supportive and understanding. We talked until 2a.m., he suggested since it was so late and no one would see me that I drive home without my wig on. I did and it… Continue

Added by Anastasia on May 22, 2009 at 4:55pm — 2 Comments

TV interveiw

My son Kyler and i did a TV interveiw at our house today(winnipeg,Manitoba,Canada) It was for children who suffer with Alopecia but they will touch on adults suffering as well. I just want to try to get some awarness in winnipeg for people with AA.. It will be on monday25 on big breakfast channel 8.It will be on 7:20 and agian 7:45 am. and on tuesday they will have a dermatologist on talking more about AA..Just wanted to tell you guys and I hope that some of you can tune in

Added by Christine Messner on May 22, 2009 at 2:17pm — 3 Comments

Can anyone help?

I have noticed an incress of my hair loss and the growing size of my patches. But i used to regulary dye my hair, but ever since i have had AA i have been more aware of the risks it may cause. I supose that nothing may happen or something extreme could.I would just like some help on how to go about this, i would really be thankful to anyone how can offer me support or share there stories with me. Thankyou.

Added by Rebecca Rae on May 21, 2009 at 1:53pm — 2 Comments

plants and pets

might sound silly, but the only time i don't feel affected by this horrible thing, is when i have my hands in the dirt planting something......or when i am talking to my sons' fish in the pond while i am feeding them(a chore which i usually dread because when he goes out of town, i take over animal chores) .......or scooping crap from the 4 litter boxes from the 7 cats his deceased father left him........or walking my grand dog, who cares little whether i have on eyebrows or a wig. even tending… Continue

Added by brenda kay on May 21, 2009 at 10:42am — 3 Comments

Shaved it off! - Missing...between 100-200 thousand hairs. If found please return to this rightful owner

Well I did it. The hair is gone. My spots were getting to the "I look sick "stage and the hubby helped me make the call. He shaved my head with my little girl present. Her response "You look like Uncle Paul" my handsome brother in law who sports his head -shaved look. My husband's response "You have a good head" How do I feel...Relieved a bit, stunned alot, sad a bit, but not as painful as I thought. In a very abstract weird way, I think I look cute...at least not sickly which is what I saw in… Continue

Added by Jennifer Krahn on May 20, 2009 at 10:29pm — 9 Comments

Wigs wigs wigs...

Gosh, sometimes I get so sick of wigs, I live in a really small town, it's pretty obvious I wear a wig.

It's even worse when the "children" here think its funny to pull it off in public *twitch*.



I'm sixteen, I know it sounds immature but I really dislike people who make fun.

Tease, pull and jerk off my wig, call me baldy etc.

And decent wigs are so expensive...



I looked into a vacuum wig that wouldn't come off when someone pulled it.

4100$,

good… Continue

Added by Kayla on May 20, 2009 at 6:42pm — 4 Comments

day three....sister stand-off

since my unpleasant incedent on sunday with my little sister seeing my new short wig...and totally freaking out....we still haven't made communication. we usually talk every morning or at least once a day. we are both stubborn scorpios and i have cooled down conciderably after being told i look like Farrah Fawcett on chemo. now gosh darn...what if i took off the wig and showed her the barren plains of my cranium????? I'd have to have 911 on speed dial cause for surely she would have a stroke… Continue

Added by brenda kay on May 20, 2009 at 8:59am — 5 Comments

Not Alone

I'm kinda glad that I'm not alone in this and at the same time sad that we're in this too. I used to feel all alone, but since I've found this site I'm swimming in a veritable sea of bald heads. ;)
Hey, we're not bald, we're follically challenged. :D

Added by Brandy Snap on May 20, 2009 at 1:06am — 3 Comments

Wig Wearing Women - Stand Tall!!

I feel so compelled to write this message to all of you bald women who choose to wear wigs. I don't mean to be controversial or engage in debate because aren't we all one family, one community of support? We are ALL in the same boat. First, to you ladies who go bald in public, I appreciate and thank you for being true to what you think is right for you. Because isn't that REALLY what it's about - To Thine Own Self Be True.



But that said, shouldn't we all be accepting each other for… Continue

Added by Kelly on May 19, 2009 at 11:28pm — 20 Comments

New Woman

Well... I have posted a side view of my very first wig. As you can see, the wig is VERY similar to my bio hair style. After much consideration and convincing, I realized this was a good stepping stone. As much as I really wanted longer hair, this is a good intro for people, clients and family to the new me. I have had it for 4 days now, wearing it everyday and LOVE IT!!! I have gotten so many compliments. Some people at work "know" it's a wig and still love it, some people just think I've… Continue

Added by Tawny on May 19, 2009 at 10:00pm — 4 Comments

oh it's so wrong..

I know the sweetest nine year old girl on this planet (in my opinion)

One of the most unspoiled children I've ever seen in my life.



she's absolutely beautiful, but she has to wear wigs because of Alopecia Areata, Her mom was telling me about how she came home crying from school one day because the children took off her wig on the bus and were running around hiding it from her.

She actually had to go back up to he school, to get the wig back from lost and… Continue

Added by Kayla on May 19, 2009 at 8:37pm — 5 Comments

Did things change or am I just noticing them more?

I don't usually blog, but I need to vent...so here I go:



I've had Alopecia for as long as I can remember. My entire life I've dealt with the stares and double takes, just like everyone else. For the most part, it didn't bother me...at all. I would brush it off and not take any notice to it anymore. Walking through the mall or anywhere else, I expected people to look, so I almost stopped realizing when this happened. Why then, is it starting to bother me all of a sudden? It doesn't… Continue

Added by Alex on May 19, 2009 at 3:04am — 7 Comments

...The girlfriend thing...

The last time I had a really close BFF was back when I was twelve years old (just before AU took over my life). I miss having a good friend so much.



The problem is this:



I have issues...issues that people don't understand. Issues that I can't just "Get over". Some days are fine...but other days - especially a BWD (bad wig day) -- oh God!! Those days I could just build a cave under my blanket and hibernate for the whole season.



The phone rings, and instead of… Continue

Added by Jackie on May 18, 2009 at 11:07pm — 6 Comments

Alopecia later in life

Im wondering about getting alopecia later in life, i had just turned 30 when i found my first patch and I read a lot how people have had it most of there lives.
I would like to talk to anyone who has got it later in life and has had positive results with the hair growing back. (hey, I can live in hope that my hair will grow back and not fall out again!).

So, were you older when you got alopecia, I would love to chat.
Bel :)

Added by Bel on May 18, 2009 at 10:50pm — 5 Comments

thank you, friends

I joined up here less than a week ago and have been blessed to get to know that there are so many wonderful people out there who belong to our "hidden society" who can give me some comfort, some ideas, some advice....because up until last week, I have felt so totally alone, scared, embarrassed, and sad, not really having anyone to confide in who really understands what I am going through. I only wish that I can also contribute the same to all of you in the future. Thankyou. bk

Added by brenda kay on May 18, 2009 at 10:27pm — 2 Comments

upsetting morning

came to my little sister's house (49 yrs. old, not so little) to of course, do my bushy haired niece's hair.....i was wearing a new wig....much shorter and spikey, got good feedback at work and from friends. Upon seeing my new "do"...my sister gasped and put on such a theatrical scene of how she hated it and i looked like Farrah Fawcett on chemo.....she kept on telling me that she couldnt look at me and to get away from her......I couldn't believe how she carried on, i still had to stay and do… Continue

Added by brenda kay on May 17, 2009 at 5:55pm — 6 Comments

I need help

I'm struggling with Trichotillomania,

I don't mind wearing wigs, i'm used to it... but I'm so tired of having to shave my head.

I'm still a teenager, and people are very cruel about these things, Ripping off my wigs in public... I'm not ashamed that I'm bald, but I often find myself lying about my actual condition out of fear that they will think i'm crazy for pulling my own hair out...



I'm starting to feel that way myself, It's gotten so bad, I had to shave my head again… Continue

Added by Kayla on May 17, 2009 at 5:45am — 3 Comments

Being Honest

Hello, this is very strange to me first of all. I am not one who socializes at all, especially on the internet. Today is my birthday. I am 27 years old. Alopecia has been running my life for the last 20 years. Yesterday, I took some time to think about everything I have missed out on because I was afraid. I have always felt that I wasn't good enough period. I think it comes from all of the teasing and hurtful comments over the years. I have never had a real relationship with anyone. I have… Continue

Added by Anastasia on May 16, 2009 at 4:00pm — 8 Comments

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