Featured Blog Posts – August 2012 Archive (25)

To shave or not to shave

I am thinking about shaving what little hair I have left to buy a freedom wig. I have wore synthetics and human hair for the past 3 years but can't seem to find one that will stay in place. This is very important to me because I have small children and we are active. It is not a good feeling to be cruising through wal-mart and feel your hair slipping back from your head. If anyone has experience with the silicone cap I would love to hear from you. Does the hair hold up? My human hair wig has…


Added by Cindy on August 31, 2012 at 10:00pm — 12 Comments

When the worst thing happens at work

Hi anyone and everyone who might read this. Yesterday I went into work for the first time since I got my wig (I have a job where I can work from home if I want to). I had been dreading going in because these were the people who I knew might say something because they've known me a long time, but people I don't feel close enough to to bear my soul and all my travails with my hair. The person I was most concerned about is the guy whose office is next to mine (I'll call him Jim). He's a real…


Added by claudiaclaude on August 31, 2012 at 10:46am — 7 Comments

Happiness, sadness, and self esteem. Help

Recently I've been having some issues with my AU, after 4 years I still find myself upset and torn up (not all the time though). Believe me, I wouldn't change my trail and my struggle for anything, it's my story. My friends always tell me "alopecia doesn't define you" but in a way, I believe it does. Its made me who I am: strong, caring, compassionate, and very understanding. It's helped me look past a persons exterior and see into their heart. But unfortunately it hasn't exactly helped me…


Added by Brittany Peterson on August 30, 2012 at 8:22pm — 4 Comments

Airport security check

Hi All..

I'm new to this website.. i use a wig which have metallic clips, but i understand, security check wont be a problem if i ask for privacy. but my question is, my passport have photo with wig, but what about visa? it requires recent photo.. So what do i need to do? should i give photo with wig or without? please advice.


Added by Anupam on August 29, 2012 at 12:00pm — 6 Comments

New to universalis

Hi there,

I am from Thunder Bay, Ontario, Canada and I was first diagnosed with Alopecia Areata at 16 years old. I had a difficult time with my newfound condition as I was at such a delicate age. I endured the cortisone injections and was pleased with the results. The spots appeared on and off for the next few years but at one point, seemed to cease.

Unfortunately, it was too good to be true. I moved away two years ago and underwent a great deal of stressful events. My hair…


Added by Baldilocks on August 29, 2012 at 11:00am — 6 Comments

Doctor says every form of alopecia is genetic

Except for my dad who has been receding since his 30's every one else in my family seems to have their hair. In conversation with my dermatologist last week, he said my AA is genetic. He says the gene lives and has lived within me from birth. He says it's been dormant, but something triggered it. He continued to say, that in so many people that have a genetic predispositon, AA could stay dormant their whole lives, while in others in shows up in their teens...or after episodes of stress or…


Added by Sandy on August 27, 2012 at 9:30am — 16 Comments

Great children's book on avoiding teasing

I read this to a class of third graders while substitute teaching yesterday. Being that the whole incident starts with a bad hair day, I thought I would pass on a review I saw online (below). The book is Simon's Hook, by Karen Gedig Burnett. If AW allows the promotion of a particular book to grown-up newbies, I'm sure a book for all kids would also be allowed...yes? Here's the description:

Simon's Hook; A Story About Teases and Put-downs (Paperback)

When Simon is teased by his…


Added by Tallgirl on August 24, 2012 at 8:00pm — 1 Comment

First (and 2nd) wig!

Hello anyone who might read this. Well, I did it--I cut off my hair today! I now have two beautiful wigs. I will post some photos tomorrow hopefully. They will still take some getting used to--I look VERY different and I am unaccustomed to having brushable/combable hair! But so far so good. I cried a lot while it was being cut but once it was over I felt free. The wig is very nice and light. Now for shampoo/conditioner... and hats! Oh, how long it's been since I've worn a hat.

Added by claudiaclaude on August 24, 2012 at 12:47am — 7 Comments

Just got my eyebrows tattooed on and loving it

Losing my eyebrows was like losing my hair all over again. However, after a year I finally got use to the look and liked it. It actually made my eyes look bigger and brighter. Last year I drew them on when I wore a wig for work, but it took so much time. Getting them tattooed on was a huge step for me, but I have to say that I love them. The woman used hair like strokes and it looks good. It was a shocker at first, but I am glad I did it now. I will post a picture after the touch up…


Added by Rose on August 23, 2012 at 3:30pm — 4 Comments

Need help with fingernails

I am new to this site. I was diagnosed with alopecia eleven years ago. For the most part I was getting injections in my eyebrows but in the past year I have lost all the hair on my head and all eyelashes. Recently I have seen my fingernails deteriorate. they are brittle, with nail pitting. All of them look awful. I have been taking biotin since April and have not seen positive results. The dermatologist gave me cream but that has not worked. Does anyone have advice? I am very self conscious… Continue

Added by Sportsguy on August 14, 2012 at 3:04pm — 11 Comments

Help :)

For those of you who have significant others, I was wondering how did you tell them you had alopecia, how long did you wait, and what was their reaction? Thanks in advance :)

Added by Marieca on August 14, 2012 at 3:35am — 3 Comments

Going back to school el natual?

Well "summer" is over. My daughter was home schooled last year. She thinks she is ready to go back to elementary school.

We live in a time when openness or "coming out" is accepted. This summer she gained a great deal of confidence. Going to public places without a hat or wig. She wants to go to 4th grade without anything on her head! We did manage to stay in contact with some of her friends from previous school years. She is fine without anything on head wile playing with them at…


Added by Alayna's dad on August 11, 2012 at 3:30pm — 14 Comments

Very sad today... and my mom

Hello anyone who might read this. Well, after several weeks of research, discussion, tears, and more, I have finally, finally decided what my first wig will be and confirmed my appointment to come in and have my head shaved and the piece applied. In a way, I feel relief--the anticipation part will soon be over and I can get down to the business of dealing with what it's like to be in this new phase. I admire you all who have been on this journey so much.

For me, one thing that is…


Added by claudiaclaude on August 10, 2012 at 1:11pm — 4 Comments

Texas heat

Hope I am doing this right! I am Grandma with alopecia--a few years now. In San Antonio for years now, I would love to meet with others in San Antonio. See that I missed the early August gathering. Please keep me in mind for next one.

Added by Kay J. Dabney on August 10, 2012 at 8:30am — 4 Comments

Alopecia cat nursed back to health is looking for UK home

“A cat with alopecia found starving by the roadside in the rain is in need of a new home.

William, a white Persian, is being nursed back to health by staff at the national adoption centre run by Cats Protection at Chelwood Gate, near Haywards Heath.

The 12-year-old was found severely underweight and in an “appalling” condition when spotted struggling to find…


Added by Cheryl, Co-founder on August 8, 2012 at 10:30pm — 4 Comments

Horses All - August 2012

I wanted to share with you all the recent article that was written about my alopecia journey and my love of horses. This was written in a western Canadian publication and available in all tack stores and feed stores.

Added by Bald and Fabulous AKA Terri on August 6, 2012 at 11:16am — 2 Comments

My wig won't fall off

So I came cross the wig grip and I don't need to wear tape who of thought! My wig does not move.

Added by Toni on August 5, 2012 at 1:34pm — 8 Comments

Alopecian Joanna Rowsell wins Olympic gold medal!

A Brisbane Times news articled states:

“When Joanna Rowsell's right eyebrow disappeared 14 years ago, an event that only marked the beginning of hair loss all over her then nine-year-old body, she could never have imagined feeling good about the experience that completely threw her self-esteem and caused her to hide under hats and wigs.”

“On Saturday night in London, the same person stood before the world as she was crowned an Olympic world champion. At age 23, bald…


Added by Cheryl, Co-founder on August 4, 2012 at 7:00pm — 23 Comments

My bald night out a major confidence boost!

Hey all.

Yet another small thing I feel like sharing.

I went out to a club bald. :)

like, no scarf, no hat, no hair bald, to an alcohol filled, too loud doof-doof music club. First time ever, and it was awesome.

I've been wanting to do this for a while now. I think clubs are fairly high pressure anyway, with all the guys looking to find girls, and the girls all dolled up so that they can find guys or at least look better than the other girls. I figured if I can be…


Added by Georgia Gardner on August 3, 2012 at 8:42pm — 7 Comments

Eyes don't always see heart

Alopecia does make you a better person at heart i agree with that but it is a pain and brings many hardships to people's lifes especially mine and you do not know if people leave you or do things because of it. Walking around is horrible most of the time because people stare at you wondering if you have cancer and then if you talk to them and tell them they either feel bad for you or treat you different even if it feels to them like they do not they really do. People do not look into other…


Added by T on August 3, 2012 at 4:00am — 7 Comments

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