August 2013 Blog Posts (48)

Frontal fibrosing alopecia

Hi I am brand new to this site. I joined because I was looking for people I can relate to. I recently found out that my doctor thinks I have Frontal Fibrosing Alopecia. I have had so many test in the past four years. That is when I started to notice my hair loss.

The first time I noticed a slight bald patch was after a hair cut appointment. I thought my hairdresser had maybe put the blow dryer on a little too hot. I did not go back to get my hair done for one whole year. The hair…


Added by LittleRhody on August 31, 2013 at 10:00am — 6 Comments

Losing hair from my left side

Hi everyone..
I seem to be having a peculiar problem.I have been losing hair continuously for 8 months now and it is very limp,thin and the scalp can be seen.However i have noticed that it is thinning much more from the left side of the scalp..I have a slanting wide part and it keeps falling from the left side only.Also the hair i feel pain in the roots,like someone is tugging them.
This is bothering me alot.Has anyone else had the problem?

Added by sup on August 29, 2013 at 11:30pm — 3 Comments

September is Alopecia Awareness Month

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. We also welcome you to make suggestions and discuss your plans in the comments section below.

Below is information on what the National Alopecia Areata Foundations has planned for the month.

NAAF - Team Up for Alopecia Areata…


Added by Cheryl, Co-founder on August 29, 2013 at 5:30am — 3 Comments

Dreams We Sew

Some day,

We'll stop looking for the answers,

And maybe,

Wear our hearts out on our sleeves,

But it's hard to make them see, and—

Just look at who are we,

Don't judge us as you please, we aren't weak,

Oh no.


And the dreams we sew,

We'll start to move mountains—

The world will be in the know,

And the more we grow—

The more they will see us, and greet us



Added by Amy-Rose on August 29, 2013 at 12:20am — 4 Comments

Alopecia , you don't hear much about it

i never knew what it was till i experienced it myself and still don't know much about it but this website has helped me alot.... but i was wondering is there a month for Alopecia awareness ?? a friend of mine sent me a pic of a ribbion and asked "does this support Alopecia" (it was royal blue) do we have a ribbon

Added by butta on August 28, 2013 at 9:50pm — 1 Comment

Relationships, why can't I find one?

Sure I'm only 18 years old and have most of my hair but when I really think about it, what girl would want to date a guy who has bald spots. I mean mine are covered but there's others out there who don't have them covered or have a third of their eyebrow left. It certainly keeps me up at night wondering if I'll have one. Actually does more than keep me up at night, sadly. So my question is where do I start? How do I go about bringing up my alopecia? Or is literally every guy and girl shallow…


Added by Connor013 on August 28, 2013 at 9:30am — 28 Comments

Talogen effluvium and stress

So.. after seeing multiple doctors, I think we have figured out what I have and what is causing it. I have Talogen Effluvium. I have a new shampoo and lotion to help with the itching.

Here's the bad news: Its stress related, I'm doing everything I possibly can to reduce stress (i.e. eating right, exercising, meditating, multivitamin, etc) but the stressor seems to be my husband's job. The worse news is that we are under contract for another 2 years. So I dont' know what I'm doing to…


Added by Amelia33 on August 27, 2013 at 1:00pm — 2 Comments

See what you're missing!

When is the last time you checked out Alopecia World's homepage at

It always features the latest and greatest content in our beloved community.

New blogs. New videos. New forum discussions. New group activity. Fabulous photos. Top content and much more!

It's the quickest way to find out what's happening not only in Alopecia World, but in the lives of our wonderful members.

Visit it daily. Visit it…


Added by Alopecia World on August 26, 2013 at 4:55pm — No Comments

Waiting waiting

Sitting at the dermatologist office... What will the verdict be? Waiting is the worst, especially when you have to pee. ;)

Added by Amelia33 on August 26, 2013 at 3:12pm — 3 Comments

How do you feel physically?

Before I found my first spot a month and a half ago I was having migraines lethargic nauseated and dizzy/light headed. I still feel that way to the point sometimes I can barely make it through the day because I am so tired. Is that normal? Is there something else wrong with me? I have wondered about lupus and my husband thinks I need to take gluten out of my diet. He is tired of coming home to a lethargic wive. I just don't know if this is part of the AA or what? Please tell me your experience.… Continue

Added by Mindy on August 26, 2013 at 12:18pm — 6 Comments

Freedom Wig excitement

Hi all, I'm new to this group! Don't know why it has taken me so many years to join such a great supportive group! I am a 37 year old woman who has a gorgeous little 7 month old girl and I have lived with alopecia for 33 years and have recently found out about freedom wigs! I have booked my flights to Melbourne and will have a natural wig buy the end of this year just int tie for my daughter first birthday!

I'm extremely excited but also scared as it will be the first time I have ever…


Added by Tina on August 26, 2013 at 9:30am — 7 Comments

New Jersey group

i know no one with alopecia nd would like to meet some ppl

i stood talking to alot of ppl i thought were

my friends i got very depressed when my hair started to fall

out nd after a while those ppl who o thought

were my friends stopped wanting to hang

around me cause i was going bald

how immature was that smh some days im feeling high nd some

im very low...i just want to meet a few ppl that know what im dealing



AW: For…


Added by butta on August 26, 2013 at 8:30am — 1 Comment

My baldness does not define me anymore!

Hi, my name is Raquel, i am 42 and can honestly say that my hair loss does not define me anymore!

The road was long, bumpy, full of storms, self hate, low self assteem etc. But i am there!

I am loved, and i love! I am at a stage where i wear wigs if i want too and if it is hot i wear nothing but my smile on my face.

Today i know that it all starts in your heart. If you accept yourself everybody else will accept YOU! If you feel uneasy everybody else will not know how to…


Added by Raquel on August 26, 2013 at 4:30am — 7 Comments

Embarrasing times

So yesterday i was going from class to sit with my group when i went under a tree which i thought was taller then it was and it pulled my wig off it was so embarrassing and i wanted to go and die in a whole i ran past my group and to the toilets and sat in the toilets for the rest of lunch and sent my friend a message to ask if she could bring my bag to my next class but she had gone home sick so i had to go back out and grab my bag which i eventually did but i had waited until lunch was…


Added by emily5 on August 26, 2013 at 12:30am — 9 Comments

New school

Hello everyone, am 17 and from the caribbean.I live in St.Lucia and am starting A level schooling in two weeks. I've had alopecia for a few years now,it always comes and goes and this time I had some spots. Only one is left but not many people here have alopecia or even know what it is and am scared that as am going to a new and bigger school people who see me for the first time and aren't my friends might laugh at me or make me uncomfortable. i used to go to an all male school and after…


Added by Keith Isaac on August 26, 2013 at 12:01am — No Comments

Does my 8 year old daughter tell classmates it's a wig?

My daughter who has alopecia for the last two years is starting third grade nd she wants to wear her first wig to school, she has been asking me if she should tell her close friends. I'm not sure what the right answer is. Her teacher will surely know but not sure about anyone else. I'm petrified...nd what it it falls off. During class? Help!!

Added by Leelee on August 25, 2013 at 11:54pm — 3 Comments

I hate it when people say...

I'm going to preface by noting that I am at the beginning of my AA journey, and I do have a lot of hair left, but I am slowly balding.

I hate it when people say, "you can't tell" or "you look fine" (something I'm sure we all never want to hear, fine is such a lying word).

But -I- can tell. My hair itches and hurts at the same time. I can feel the breeze on my scalp for the first time in my life and its weir ding me out. My husband comments on how I look like a little boy… Continue

Added by Amelia33 on August 25, 2013 at 10:46pm — 5 Comments

Alopecia & things I can't experience with my daughter

my daughter is 2 yrs old and shes starting to wonder why her mommy does not have hair
i would love for her nd myself to play hair salon like i did with my mom
she gets upset that she cant do mommy hair and it is a lil
stressful trying to explain it to her i have had alopecia for a yr now
and it has knocking my self esteem down i really lost of words
on how i feel cause who wants to be a woman
nd bald

Added by butta on August 25, 2013 at 9:30pm — 15 Comments

I LOVE your support!!

As many of you know, I started "The Love Spreader" which is a YouTube/Twitter combination in which I help people dealing with Alopecia, bullying, self harming, etc.

My goal is to be a role model for people in need... especially those dealing with Alopecia. I'm trying really hard to get my stuff out there. i just did my first radio interview.... Here is the link if you are interested in hearing it. Let me know what you think and I appreciate your support!!!!…


Added by Devon on August 25, 2013 at 9:02pm — No Comments

My inspirational 14 year old daughter Joelle with alopeia universalis has silenced her bullies through singing

Please check out this news article that has come out in today's Daily Mail about my hugely inspirational daughter 14 year old daughter Joelle who has found a way to overcome many years of bullying through singing. This video was made by the family, please watch, share, comment and enjoy, thanks Michelle :) Joelle in the Daily Mail

Added by Michy on August 24, 2013 at 2:00pm — 3 Comments

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