September 2009 Blog Posts (77)

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Progress...

Its been a while since I posted anything and a lot has happened. Since I shaved my head Ive been on yet another emotional roller coaster. I have had all kinds of thoughts going through my head. My main one is I am already somewhat socially ackward kind of shy around new people, Im on the left side of "normal" now I have being bald to contend with meeting people and/or dating feels even more impossible than before. My friends that Ive told have been very cool a few are very protective even. I… Continue

Added by Trixie on September 14, 2009 at 7:35pm — 2 Comments

When alopecians being portrayed in a bad image collaterally

I'm quoting a brief news article below from a Malaysian online news portal which read (recently):



["Youths sporting the close crop hairstyle akin to skinheads are making a comeback in various shopping malls, reported Kosmo! Ahad.



These groups had been seen loitering in malls such as The Pavilion in Kuala Lumpur during weekends or at underground music performances.



A former member, Mohd Haris, said there was one group in each state.



“They… Continue

Added by Joshua on September 14, 2009 at 11:57am — 1 Comment

An old flame.

is it real?

Added by Sarah on September 13, 2009 at 10:35pm — No Comments

Bad day!

I've been pretty positive lately but today has been just downright SH@&**!!!! I'm angry, I'm mad, I'm sad....I just want my hair back!!!

Added by Dana on September 13, 2009 at 9:28pm — 3 Comments

She didn't understand, but I did

i just recently came back from visiting my parents. i was a little self concious about my parents seeing me for the first time bald so i put on a hat before getting off the plane. as i was waiting for my dad to drive around to pick me up, i saw him and waved. he looked at me and drove right by! i called him on his cell and told him to drive around again because he missed me. so at the house my dad told me to take off my hat so he could see me. he told me i dont look bad with a bald head and… Continue

Added by Pat on September 13, 2009 at 2:42pm — 9 Comments

Rogain or not!

I'm not sure what to do. Once again more hairloss this morning! I've never used Rogain and have thought about giving it a try. Has anyone tried Rogain and does it work for Alopecia? Feeling helpless!

Added by Annette Stewart on September 12, 2009 at 7:15pm — 7 Comments

Vacuum Wigs-which one is the best?

I'm contemplating getitng one and am trying to search-----would appreciate all thoughts/comments.....good and bad.

Thanks all!

Added by Leah Larson on September 12, 2009 at 2:36pm — 2 Comments

Considering the head shave

hello all



I'm new to this site, but have had AA for almost 18 years now. i have always treated my AA with the steroid injections, due to the face that is the only thing that ever worked for me. untill now, i've always been able to cover my spots with my own hair by simply changing hairstyles. now however, i have some really large spots that can no longer be covered aside from with a baseball hat. my problem occured due to the fact i'm leaving for a cruise in a couple of days, and i… Continue

Added by Amie on September 11, 2009 at 9:10am — 6 Comments

Cheap wigs

hey, i want to know if anyone can help me get cheap wigs. i got one that was about $400 and i dont think it was worth it. i feel like if i only wear that, that it'll go bad real quick. so i just want to find cheap ones so i can beat on it.

just a little help please

Added by alyssa on September 10, 2009 at 6:18pm — 5 Comments

I need a wig for my daughter's wedding

My daughters getting married in jan and I would love to have a wig .I don't want to ruin the pics for her. The thing is I don't have any money.I was injured in a car accident in feb and haven't worked since. My hair has all fallin out in the last 2 months. My husbands been out of work for almost three yrs . And on top of that I need a new hip and am waiting on medicare!! We're just getting by and was wondering if anyone knows if there are any organizations that could help me with the cost of a… Continue

Added by linda carraway on September 10, 2009 at 5:18pm — 2 Comments

loose anagen hair syndrome

Has anyone heard of Loose Anagen Hair Syndrome?

Added by Auntie Garrett on September 10, 2009 at 5:04pm — No Comments

Hoping to learn some things

I have been daignosed with alopecia 20 years ago, I also happen to be an HSP a highly sensitive person. I am constantly in conflict with my environment. Hopefully i will learn one or two things from all you courageous people. I am lacking a support system here in the States. My husband is there once in a while??? Even though i am a very strong person well my shell is at least, inside i am very vulnerable and fragile...it gets hard sometimes-(

Added by Sofia on September 10, 2009 at 12:15pm — No Comments

Overwhelmed with joy!

My cousin JT (who is basically me in drag) told me before he went to Dragon-Con this past weekend that he was going to shave his head to support me during Alopecia Awareness Month. I just laughed it off, because he's never done it. Well, I just posted the picture -- he did it!! All I could do was call him and just cry on the phone, because I was so overcome. Literally, nobody has ever done anything like that for me in all the years I've lived with alopecia.



Somehow, thank you just… Continue

Added by kastababy on September 9, 2009 at 7:24pm — 7 Comments

in disguise

last night.
just be normal.

Added by Sarah on September 9, 2009 at 1:30pm — No Comments

I've broke down.

Plain and simple.

I've lost the control I once thought I possessed.

Added by Sarah on September 8, 2009 at 3:00pm — 2 Comments

Scalp burning, pinching, itching

have been having this Scalp burning, pinching, itching.....mostly burning for about a month now. I had a Bout with it about 2 years ago that lasted for many months, then again about a year after that but it did not last as long maybe only 2 - 3 months. It just left when I had it befor, no explination. I have also been to diffrent doctors and they all have no idea. I was put on diffrent antidepressants that only made me very sick, I am not depressed I am normally a very happy person except when… Continue

Added by Jody on September 8, 2009 at 12:27pm — 2 Comments

I feel stupid

Found my first spot back in June a day after my birthday! Since then it has got bigger and while there are no other spots my hair continues to come out.....thinnning i guess. Have been to the doctor and am now halfway through my 3 month wait to see a specialist. They are all certain it is alopecia. In the beginning i didn't let it get to me, i thought well at least im not sick right? But in the past couple of weeks its all got to me and I find myself starting to cry and unable to stop! It might… Continue

Added by Gretchen on September 8, 2009 at 12:45am — 6 Comments

Why not just have "selective" (chosen) exposure?

I just bare it in certain places, not in others. Why does it have to be all or nothing? It's your head. You get to choose where and when and with whom and for how long you will feel comfortable!

Added by Tallgirl on September 6, 2009 at 9:14pm — No Comments

Another new derm

Took my son to the derm yesterday for some better answers. She ordered the tests that I wanted and said we could do the biopsy whenever I was ready. I went ahead and held off on the biopsy for now only because I'm scared it will encourage another spot to start. His last spot started from a major head bump. He had a huge knot after the bump, its actually still there 2 months later, plus the new spot that started where he bumped his head. So because of that I'm afraid for now. She did say that… Continue

Added by Jennifer on September 5, 2009 at 1:07pm — No Comments

Fix what's in your head to cure what's on it

Hello very interesting news about the treatment of alopecia. CBT (cognitive behavioural therapy) is helping many with alopecia. Although stress is a most probably a contributing factor to alopecia; ongoing stress or more specifically situation related stress- anxiety is a big obstacle why hair takes time to regrow. This anxiety state adds to our unwell health and increases our stress hormones stunting hair growth.



If we feel quite self conscious and avoid doing things as of alopecia… Continue

Added by carl on September 5, 2009 at 5:39am — 1 Comment

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