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Autoimmunity Research Foundation

http://autoimmunityresearch.org/



The Autoimmunity Research Foundation is a 501(c)3 charity whose educational efforts are focused on letting Health Professionals, and the public, know the cause of Th1 chronic inflammatory disease. Many chronic conditions, including Sarcoidosis, RA, MS, PTLDS, Chronic Fatigue Syndrome CFS/ME, Fibromyalgia, and Parkinson's, are succumbing to treatments based on our molecular description of inflammatory… Continue

Added by MiNAH on November 7, 2009 at 8:44pm — No Comments

How to compliment someone with alopecia?

As a non-alopecian, I'm curious: If people would like to compliment your "look," how would you like them to do so? I mean, if it's specifically your "hairstyle" or lack thereof that they like, what's the best for them to tell you this without offending or upsetting you?

Added by rj, Co-founder on November 6, 2009 at 11:21pm — 13 Comments

Fashion Statement --- arrrrgggghhhh

I had to go to the hospital the other day, as it turns out, I have H1N1, getting through it and almost back to 100%. But something that happened while I was there really got to me. The nurse asked me if my bald head was, `Just a fashion statement`. That really bothered me. I didn`t say anything at the time but, I think I should have. I do shave my head, mainly because I had so many patches that it was almost all gone, but certainly not because I am some fashionista. I didn`t shave my head to be… Continue

Added by Tenille Gee on November 6, 2009 at 8:52pm — 7 Comments

Trying alternatives

I dont know why but this whole blog thing intimidates me. It is as if, if I blog then everyone will know this dark secret I keep. Maybe this is the road to dealing with my AA(which has been a long one). I fortunately have been able to hide my spots for 4 years and coming up to my half year it is starting to show, and I mean everywhere. Any angle I take a peak in the back and can see a spot smiling at me. Even in the front it is as if I have this receding hairline that people pretend not to… Continue

Added by Rachael on November 6, 2009 at 8:00pm — 5 Comments

Counselling

hey has anyone ever been to see a counsellor about there alopecia, i feel im findin it hard to cope with and cant talk to anyone about how i really feel, would this be better for me, not sure i can do it yet tho,

Added by lynne on November 6, 2009 at 4:53pm — 9 Comments

Two Alopecians walk into a doctor's office...

Sounds like a bad comedian's joke - "Two Alopecians walk into a bar...." But, for the first time, I actually found myself in public place with an Alopecian I didn't know.



We first saw each other in the Lab part of the hospital (I was in for a blood test). I thought he might have Alopecia. He was about my age, very fit looking, and very bald with an all-over-his-head tan. If he had eyebrows, they weren't very dark. I was, as usual, sitting there bald. Neither one of us said… Continue

Added by Mary on November 6, 2009 at 10:43am — 6 Comments

I am bald and loved!

I am engaged! Don't know why I feel the need to post this. My boyfriend proposed to me last night! YAY!

Added by Lyndsey Pitchford on November 6, 2009 at 7:19am — 8 Comments

Continental Wigs, anyone have one here?

Hi Ya'll! I was wondering if anyone on AW has a Continental Wigs from Canada?? I was looking at the website tonight and they look really nice looking. I would appreciate any feedback!! Thanks!! Melissa

Added by Melissa Harris on November 6, 2009 at 1:03am — 5 Comments

Funny comment by my husband!

Hi Ya'll!



Just wanted to share this story, I put on a wig and when my husband got home, he told me that it looks like a helmet. I was upset at first but then he said no like a helmet that is hair! I couldn't help but laugh but then I took it off thinking is that what people are thinking when they see me? That I look like a helmet head??!! Anyone else have and experience like this one??? Now I don't know if I will ever wear it again!! Don't know if I should laugh or… Continue

Added by Melissa Harris on November 5, 2009 at 6:15pm — 6 Comments

First Day Out with a Wig

So on Tuesday, my aunt gave me a few wigs she had on hand and I ordered 2 more...one that will like like my real hair and one that is totally not, lol! I'm not ready to invest in an expensive wig until I know the nature of this, though at this rate it will be gone by Christmas. Yesterday, I spent most of the day with my mom getting her glasses and whatnot, and I wore this all day with fairly good results. Here are a before and after shot.



Before:…

Continue

Added by Andrea on November 5, 2009 at 12:49pm — 8 Comments

Face of Adversity

Remember 39 years of Grief & Sadness, as we all know.

I too would hide after all my long hair fell out at 14 years of age.

I would wear scarves, synthetic wigs & cry about the discomfort.

The itch, heat & the pain.

Feeling Anger, Hurt & Sadness.

Because perception & insult didn't allow me to be myself.

I would hide....hide & fear being seen.

Fear ridicule, fear judgment &… Continue

Added by MiNAH on November 5, 2009 at 1:00am — 4 Comments

My friend wrote about me and my alopecia!

One of my close friends wrote a bit about me for one of her classes. It means so much to me and I want to share it with you all!!





Lillie Laraque



JLS- Feature Writing



The Bald and the Beautiful



She gets out of bed, brushes her teeth, and washes her face. She goes into her room and picks out her clothes for the day, finally putting on a bright top, bubbled-out skirt, and designer sandals on her trim form. She frames her green eyes with eyeliner,… Continue

Added by Camille Reinecker on November 4, 2009 at 11:37pm — 7 Comments

Support groups

hey guys not sure if anyone can help, but i was on the alopecia awareness website and there was a bit that says they would help u start up a support group in ur area,

i would love to do this as i could get support aswell as helpin other people goin thro the same thing, i sent an email to the address it had but i havent heard anything bak, does anyone know how i can get the support to get this started, i have friends who are willing to help, and one is a trained counsellor which would be… Continue

Added by lynne on November 4, 2009 at 4:43pm — 1 Comment

The hair industry

http://www.cnn.com/2009/LIVING/homestyle/11/04/o.chris.rock.good.hair/index.html

I found this article online. Though it doesn't have anything to do with alopecia I found it to be a very informative and good read.

Libby

Added by Libby on November 4, 2009 at 2:07pm — 1 Comment

Brows and lashes?

my son's eyelashes and brows have started to come back slowly but haven't darkened in color. any comments? his doctor said they would come back but now I am doubtful, hair is re-growing on his head but it is in patches, and is turning dark so that makes me wonder about his brows and lashes even more, thanks for any help

Added by rebecca finlaw on November 4, 2009 at 9:41am — 1 Comment

Reliability!

Just as you start to get used to your current form of alopecia it changes.



I have had nearly twelve months now with AU. Not a hair anywhere other than the fact that I still have to shave my chin now and then. Even then the hair on my chin is now much finer than it used to be. I’ve had no eyebrows, no eyelashes not anything.



The last couple of weeks though I’ve noticed that I’ve got a few eyelashes come back and the front section of my head has started to have hairs grow… Continue

Added by Ray on November 4, 2009 at 6:10am — 8 Comments

Haven't been on here in forever!

I barely ever get on here, mainly becuase I forgot I even had an account until I got an email from them. So I guess I will talk about what's going on with me currently. With alopecia, I have not had any hair growth in more than 5 years. I am actually used to it and just wear a wig full time. It's kind of like a security blanket for me and I barely ever take it off, which is totally fine with me because I don't feel a need to not wear it. I haven't had eyelashes or eyebrows in a couple of years,… Continue

Added by Whitney on November 4, 2009 at 12:35am — 5 Comments

Natural Foods

Hi! Has anyone had any luck with vitamins and cutting out glucose from diets with linking to Alopecia?

Added by Kyle Funke on November 3, 2009 at 5:20pm — 4 Comments

Frustrating update

To those that actually keep up on my sporatic blogs and more specifically those who were interested in the discrmination lawsuit against my old workplace, I finally got a response!! After a two week delay, I finally have it and these people haven't the slightest clue! They mentioned things that I had apparently said but didn't, things I had done but had permission to do and here's the biggest kick in the pants: I wasn't given my promotion because they hired someone else out of prejudice… Continue

Added by Carol on November 3, 2009 at 4:07pm — 5 Comments

Shedding like crazy! Is there anything that I can do?

Hey Ya'll!! I'm just wondering, is there anything know to you that would help stop or slow down the shedding?!! I can't stand it anymore! I think you AT and AU people are almost better off because you don't have to deal with it!! I cant stand it and it's driving me crazy!! Is the only thing that I can do is shave my head?! I'm just not there yet!! My doctor told me that after I got the steroid shots, it should slow down, but it has not!! I'm so worn out by this, and knowing that I will have to… Continue

Added by Melissa Harris on November 3, 2009 at 12:00pm — 15 Comments

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