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People never cease to amaze me. So this woman at church came up to me last Wednesday,and asked me if I was wearing a wig. I was shocked and I started stuttering, and then I finally told her "yes", with a smile. She then asked me "why, because Indian woman have beautiful hair"? and I noticed that I was about to tear up so just then I took my mind somewhere else as I answered " I have a form of Alopecia". She then asked what that was, so I told her. It's surprising to me sometimes that some…
ContinueAdded by Elizabeth on December 14, 2011 at 4:13pm — 37 Comments
I have only been diagnosed for oh 3 months now with AGA/TE, but one thing that I am finding a bit annoying is the sheer amount of hair loss shenanigans on the internet.
Try doing a search on YouTube for alopecia. I am looking for genuine people telling their stories. I personally find them helpful and inspiring. However what I mostly find are a lot of videos promoting a product or some dermatologist telling the usual treatment options for alopecia.
My favorite…
ContinueAdded by Figarosmom on December 13, 2011 at 10:30am — 6 Comments
I'm a 14 year old freshman and I don't wear a wig at all.. I don't like it. So i just wear a scarf. Everyday I end up in the bathroom crying because of the mean people. I have other issues in my life and I'm becoming very depressed. I finally got a therapist but I'm thinking about being home schooled for a while just so I can get back on my feet. I just don't want to disappoint my friends. Any suggestions? Homeschool? Or not?
Added by Jasmine on December 12, 2011 at 6:30pm — 4 Comments
It's been a while since I've been on here. I have profiles on at least four social networking sites and I sometimes lose track.
I thought I'd post some thoughts about eyebrows. I know there are discussion forums, but I get overwhelmed by those because one person says one thing and gets so many replies that it's hard to get back to the original question. I also figured that if anyone cares about what I have to say, they'll take a vested interest in my blog, instead of trying to search…
ContinueAdded by peachfuzz on December 12, 2011 at 4:53pm — 7 Comments
Hello, I am sure who ever stumbles across my blog will be nice. I don’t know how often I will post, more than likely as and when I am having an ‘alopecia moment’ I think this will be a good place to express my feelings without worrying people will judge…
I more or less have fully hair loss, I have at least 90-95% I guess, well maybe more like 95-99% lol I guess it is a little bit of me not fully accepting its more gone then I like think off. I have lost 99.5% of the hair on my head,…
Added by KFlame on December 12, 2011 at 3:36pm — 2 Comments
Anthony's story update:
We went through all the blood testing for thyroid and allergies and anything else that we could think of. End result: he's perfectly healthy, but bald. We saw a pediatric dermatologist at the Children's Hospital and the only treatment we considered was SADBE (a chemical applied to the scalp that would create an allergy in hopes that it would divert the immune system from the hair follicles). We did the test spot and he had no reaction whatsoever. In a follow up…
Added by Heather Ramon on December 12, 2011 at 1:30pm — No Comments
So my dermatologist says it's okay for me to dye my hair.
Earlier this year i acted on this advice, however i found that a lot of my new regrowth fell out when i was drying my hair (obviously after i had washed the dye out).
Actually, it didn't really fall out, it was more that i found the small hair on my towel after drying my hair. Like i had rubbed them off.
That was the first and only time i dyed my hair (it was a wash out dye, didn't have bleach in it).
What are…
Added by Tiasha on December 11, 2011 at 8:30pm — 10 Comments
Im not sorry for being weird.
Im not sorry for being shy & quiet.
Im not sorry for being werid & real & weird
Im not sorry that I hate parties.
Im not sorry that I like
to stay in on a Friday night
and hangout with my family.
Im not sorry for not answering
your "personal questions
Im not sorry for being bullied
because it makes me stronger
day by day.
Im not sorry for having Alopecia
because it makes me different…
Added by x3Awesome'TTx3 on December 10, 2011 at 3:07pm — 3 Comments
Everyone on here has those days when they wake up, wash their hair and think "hey, I think it's getting better!" And I for one, being the naturally anxious person that I am, starting getting a giddy, flippity-floppy feeling in my stomach.
This happened to me this morning. To be truthful...I suspect there is some improvement in my hair. And being that I don't know what exactly is going on, there might be for a bit. But I suspect that won't last forever. I sense genetics are against…
ContinueAdded by Figarosmom on December 8, 2011 at 11:00am — 7 Comments
I had my third child about five months ago. After having her I DREADED the 3 month shedding of hair. It was pretty bad with my last pregnancy so I expected as much this time around. I had no idea it would be this bad though. I pretty much have a bald spot where bangs should be. I have been able to strategically keep it covered with hair and lots of hairspray. I also started using Toppik. It is really bringing me down. I am getting more and more discouraged. How do people deal with this? I…
ContinueAdded by Caligrl on December 7, 2011 at 7:30pm — 2 Comments
Hi People,
Shall we do this again?
Add a line and have some fun!
Peace!
Jeffrey
On the 1st day of Alopecia Areata I received my first little bald spot on me.
Added by JeffreySF on December 6, 2011 at 10:31pm — 20 Comments
There are 302 Christians on the Christina alpoecia sight which is pretty impressive compared to the 15 on the Atheists sight, but if the numbers are right your better of being an atheist than a christian because on the figures Christians get more alopecia than atheists. No-one ever answer my atheist comments but it would be interesting to know how a god that is supposed to be so loving allows his followers to suffer in greater numbers than atheists. This is a serious question and not asked…
ContinueAdded by BTB (John) on December 6, 2011 at 8:48pm — 7 Comments
This is a question I reflect upon every once in awhile. I guess I'm a believer in the saying "Things happen for a reason" and so I often think about what is the reasoning behind my alopecia.
For myself, two lessons resonate for me.
Lesson 1) I learned that I am far stronger than I ever thought I was or could be. When you are first thrown in the spotlight of alopecia, all of those small self-conscious issues surface quickly. For myself, they didn't go away...so I had to "deal"…
ContinueAdded by Jennifer Krahn on December 6, 2011 at 11:05am — 8 Comments
So. Yes, today no panic attack just that murky, obsessive thinking. Or as my new friend calls it the hamster wheel. To be honest, before I had hairloss, I had the hamster wheel. I have suffered from anxiety for a long time. I just didn't make a big effort to do anything about it. Now it is priority no. 1. In fact, yesterday I realized mental health was priorty no. 1. Hair would have to be no. 2.
How did I come to this conclusion?
Here is the logic I used.
Do I hate hair…
ContinueAdded by Figarosmom on December 6, 2011 at 10:00am — 3 Comments
Wow I haven't been on here in a long time. A lot has changed. I've become more social. This seems very basic, but I've struggled with it my whole life since I lost all my hair at 8. I've made new friends, but there is still a part of me that is embarrassed by my alopecia. Also, I do not date at all. Since the end of my last relationship at 24 I have not dated at all & I am now 29, yep 5 years. I know it’s because I have a serious fear of rejection or being judged because of my alopecia.…
ContinueAdded by Anastasia on December 5, 2011 at 7:54pm — 7 Comments
So I see there have been a few changes in how chat works and such, still getting used to it. There seems to be a few bugs but I have faith they will be worked out in no time flat.
It got me to thinking.
With every site there are things I like and things I don't.
However, when I find a site that I LOVE, such as AW, it is worth the very minor 'growing pains' I may have to deal with from time to time
If however, I belonged to another site, one that I found that I no…
ContinueAdded by LilyBell*Murphy'sLawLuvsMe on December 5, 2011 at 4:00pm — 12 Comments
It's been a roller coaster ride with my alopecia over the last 6 weeks. After the fourth visit to the dermatologist, I went to my hometown for 3 weeks. Around that time my biggest bald patch (the size of a matchbox) was not showing any regrowth and the others (7-8 small ones) were all showing some fuzzy growth. But 3 weeks at home did me some good. (Was it the lack of stress because of being away from office? Makes me wonder if stress was my trigger. Lately work pressure has been giving me…
ContinueAdded by Nachiketa Sanyal on December 5, 2011 at 9:18am — 1 Comment
Hello everyone I need help. You see I work in retail and I have had many people come up and ask me why I don't have hair and I have had to many just asume that I have cancer. And I just wanted to know if there is anywhere I can get a button or ribbon that represents Alopecia to show that I don't have cancer. Thank you.
Added by Samantha White on December 4, 2011 at 10:55pm — 4 Comments
Hi everyone just a short question did anyone feel a needle pokig sensation on eyebrows before they fell out or a tingling sensation?
As much as I cried and as angry as I was over the lost of my eyebrows what I truly miss is my eye lashes. Who would have thought those tiny little hairs made such a big difference.
Added by Natasha on December 4, 2011 at 12:31am — 11 Comments
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