Featured Blog Posts (3,064)

A breakup during hairloss

I don't know about you, but I find that hair loss makes things like this even harder.



I had a few months of stability in my hair loss, and even some regrowth. Then, it started up again. It's now going strong, yet I still look presentable. Well, just about. Last night, my boyfriend of 3 years broke up with me. This is so devastating to me. I cried all night last night, a little this morning and I feel like part of me is dead at the moment. I don't believe we broke up because of my… Continue

Added by Lili on October 7, 2011 at 8:30pm — 12 Comments

Didnt expect that to happen

Didnt expect that to happen. I spend more and more time walking and carrying on thru life as a bald woman. And mostly I succeed. Today was the first time that I went into the mall without any head covering and I held my head high and didnt care about the stares I received or what others might have thought. And I did receive some odd looks, but I was ok with it. On a Friday afternoon, the mall as expected was pretty busy and still I chose to go in and continue with my shopping.

After I left… Continue

Added by Bald and Fabulous AKA Terri on October 7, 2011 at 6:51pm — 3 Comments

Cross-eyed...baldness - They are assets

I have what they call lazy eyes, but the more common term is crossed-eyes. All my life my eyes have been this way. When I tried to get them corrected I kept hearing the same refrain, "Well you have good control over your eyes." What is that! I wanted my eyes to control themselves.

After going to several different doctors, none who knew each other, I reconciled myself to the fact that these eyes were going to be with me always. If you look at my pictures you don't know that I have crossed… Continue

Added by Jacqui on October 7, 2011 at 10:00am — 2 Comments

Thank you for sharing

May I start by saying congrats...you are already doing something positive towards dealing with Alopecia and your bullies...you're talking about it. It's important that you find someone you can confide in and share your worries. There's no hard and fast rule when it comes to dealing with a life changing condition...Alopecia isn't dangerous or life threatening but it is certainly life changing. You have a an amazing strength within you, you probably just can't see it yet as you're scared,… Continue

Added by Karena Moore-Millar on October 7, 2011 at 3:34am — No Comments

1 in 100

I recently became involved in a book project about breast cancer survivors. Although I don't have cancer, those with Alopceia often are approached with that very question. The author invited me to participate in order to represent one of the struggles many women go through in dealing with this disease. I'm also thrilled at the fact that this book will help bring more awareness about this condition. It was very empowering to write my story and recall the stages I went through on my journey.… Continue

Added by Laura Dasi on October 7, 2011 at 1:23am — 5 Comments

Guys and women, nights out and parties

you would have to be deluded if thought it made no difference.



I've had alopecia for a few yrs now (I'm 24) and I'm going to be frank and a bit crude,



when I had hair I would be able to get most girls I wanted and have girls after me on a night out etc with ease, (no ego boost haha)

also randoms on facebook would message me for chats etc. My body was slim/normal btw.



fastforward to alopecia, well what a difference, I mean yes the odd girl but feel like ur… Continue

Added by Nick on October 6, 2011 at 3:30pm — 10 Comments

Hair systems

I just joined this group. I was reading Britney's comment on her hair system. I have a bald head and no eyelashes also. As of 3 mths ago. I want hair that stays on longer than my wig.



I have been to Hair Club but not for a bonded system. I think they are too expensive.



Your information was very helpful. I am going to go to a place close to where i live in Leawood, KS called Arista. they have hair systems for women called Virtuesse, sounds like it may be the bonding… Continue

Added by Leslie Mader on October 6, 2011 at 12:03pm — No Comments

AGA and being pregnant

Anyone out there with AGA and didn't have any problems with hair loss after the baby was born?????? I am 7 months pregnant and really nervous what the future holds after I deliver my baby boy. I have herd many different stories from people that don't have AGA. They grew more hair when pregnant and weren't shedding at all. A few others lost a lot a couple months after the baby was born. Looking to see if anyone with AGA had a baby and the hair loss stayed the same.

Added by Michelle on October 6, 2011 at 9:44am — 4 Comments

Today I confess

Hi! I'm Julie. I'm 17 years old and a Senior in high school. Pretty new to this. Never blogged, but "facebook-ed" plenty of times :D hahaI've had alopecia totalis for 14 years now. I never wanted anyone to know that I had this condition.

When I was in elementary, kindergarten to 6th grade, I always hid under my little white hat. I got teased, I always wanted to stay home. Since 4th grade I've been afriad of what others thought of me. 5th grade someone asked if I had cancer because their… Continue

Added by Julie on October 5, 2011 at 7:40pm — 4 Comments

Through my eyes

first off i do not have alopecia but i live with it every day. my wife has it. this is for all the women and men out there that have alopecia with someone in there life that loves them take a minute everyday and look at yourself through their eyes and know that you are beautiful.... what i see when i look at my wife is her beautiful smile and eyes the way she carries herself.... i just urge you to see yourself as i see you and that is perfect.... and all the single people out there don't… Continue

Added by michael on October 5, 2011 at 7:00pm — 4 Comments

My full head of hair :)

Just posting my new hair, ALL MINE regrowth that has come in quite quickly too. Here's hoping it will stay. :)

Added by lynne on October 5, 2011 at 3:30pm — 2 Comments

Love is not a follicle thing

When my boyfriend and I started dating, he nicknamed me ‘Blondie’ and told me he loved my hair.

Three months into the relationship, I discovered my first bald patch. It didn’t even occur to me not to tell him - I rang him in a panic, blurting that my hair was falling out.

He knows more than anyone how important hair can be - he adores his wild mop of curls and spends a small fortune on products. After listening to me freaking out, he gave me a hug and accompanied me to the… Continue

Added by AJ on October 4, 2011 at 5:00pm — 9 Comments

Change hurts. Birth was painful too

Just an introduction blog. I was a bald baby! Haha. My mother said that when I was a new born, I looked her right in the eyes, that the expression in my eyes looked "adult". She used to tell me that she thought I was switched with a fairy baby or was an alien in another life, lol... in fact, she claimed that she once had a crazy lady (who thought she was a psychic, or vice versa) tell her that I was an alien in a past life, from another planet. She always told me this with an added touch of… Continue

Added by Lili on October 3, 2011 at 10:00pm — 10 Comments

Tell tale signs

hi everyone,i was wondering if i could get some advice from your stories about AA when the patches started forming.
i have 2 patches just fully grown and 2 new patches which are completely bald, but before my hair falls out i have tenderness on that area of the scalp as if iv had my hair in a tight ponytail all day.......anyone else have any signs that their hair was about to fall out?

Added by laura on October 2, 2011 at 1:30pm — 5 Comments

We shaved our heads and had a party and it was lovely

Hello beautiful people - so my youngest son and I had our heads shaved yesterday for Alopecia UK and More-2-Life - we raised £2832 - and we had a really great party.… Continue

Added by mabaker on October 1, 2011 at 8:30pm — 2 Comments

The lady that sits next to me!

To the lady that sits next to me on the bus,I would have never known if you hadn't opened up. I'm sure that it was not easy for you to do. I must tell you, you're closer today than you were yesterday, just the fact that you was able to say"I have Alopecia too". Alopecia is not always an easy subject for those of us who has not find the Freedom of being without hair vs being with hair. I too was once in a world of fear,but thank God I'm Free at last. My prays is for you and everyone else to one… Continue

Added by lovelyjan on October 1, 2011 at 8:00pm — 2 Comments

Sick of it!

I am so sick and tired of being depressed. I have had Alopecia Universalis of 11 years now and I am still morning the loss of the old person I used to be. I was finally coming to terms about being bald and my neice had an alopecia scare. She woke up with a huge bald spot on the top of her head. My brother and sister in law were mortified. Everyone was so worried. They took her to Texas childrens hospital to see the dermatologist and they said it was a scalp infection. I was so happy to hear… Continue

Added by Brianne on October 1, 2011 at 12:00pm — 11 Comments

The beast is growing





Hey...



So, I can't decide if I'm happy that I haven't lost all of my hair yet, or if I wish it would just all fall out. Which would you prefer?



People stare... they probably don't mean anything by it, but it affects me. My doctor is so ambivalent about the whole issue; He just sorta looks at it every check up and is like "nothing to worry… Continue

Added by Joshua C. on October 1, 2011 at 3:30am — 2 Comments

Back to square one :/

I just need a bit of a vent!



I thought my hair was growing so well, not total regrowth, but at a fairly unnoticeable areate stage. But just lately it seems to be falling out everywhere!



I've booked to see a specialist at the hospital, but thats not until December!



I guess I more worried that now I have to tell people all over again, as Ive just moved back to uni, new people, new circumstances.



I don't want to be trapped in the 'hiding it' phase again,… Continue

Added by Lizzie on September 30, 2011 at 12:00pm — 4 Comments

Lost an eyebrow, but still gaining hair and painful lymph nodes

I was sitting at my desk on wednesday when I looked down and saw what I thought were a bunch of eyelashes on my desk... my eyelashes shed a lot, but they have never been completely missing. I grabbed my mirror out of my purse and saw that I lost half of my left eyebrow, on my work desk. I have NEVER had it happen that fast before. My hair on my head fell out in spots in months, not all at one time. But apparently I rubbed my eyebrow the wrong way, because it was right in front of me on my desk!… Continue

Added by Tamara on September 30, 2011 at 10:30am — 9 Comments

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