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That Answer in the Night

Isn't it remarkable that in 2010 we can put out our alopecian thoughts and fears (be they medical, personal or social) online...and that someone, somewhere, whom we have never met, from anywhere in the world, may be reading and answering at any time of the day or night? That someone, somewhere, may be putting out a little thought of hope or prayer for our situations, or have the very answer we need? Imagine how amazing it is for those of us who went through MANY years of no computer at all… Continue

Added by Tallgirl on August 12, 2010 at 10:45am — 35 Comments

Accept the things you cannot change

My mom has been asking for years that we take a picture, all four of her kids in the same room together…. Ha! I’ve always said hell no! I am not a photogenic person plus I’ve always been insecure with my weight and physical appearance, plus not to mention all of us work and never really have time for anything. This year I finally decided its time, were getting older and it may be the last time we ever have a chance to slow down and do something good for the person whom gave us life. So I called… Continue

Added by Maria on August 12, 2010 at 10:44am — 1 Comment

Our wedding day

So much can be said about our special day....our wedding day! A joyous celebration with family, friends, and a man who knows my heart. We could not have asked for a more beautiful and spirit-filled event.



I lead a "bald life" on average 363 days out of the year. I went back and forth on whether to wear a wig on my wedding day. I was not living in my hometown when I lost my hair.… Continue

Added by Jill on August 11, 2010 at 6:00pm — 16 Comments

Work

Now everyone that I work with knows that I wear wigs. It feels great! It is good to know that everyone knows about it. We only have 7 people in the office so its not like I work with a big group of people. And there is only one guy in the office. I went to lunch today with the one coworker who I had not told yet. We had gone to happy hour together a few times and had lunch a few times so I decided it was time to talk to her about it. She said she had no idea that I wore wigs. That felt good! I… Continue

Added by Alliegator on August 11, 2010 at 5:45pm — 3 Comments

Irritating people

Why do people have to be so difficult or negative. I am a person who love a good quote or one that makes people respond (well to the quote) no about me. Yesterday I was on my facebook and my quote I found amusing was "loving a man is live loving a child, if you don't correct them when they upset you they will never learn how to treat you with respect", not thinking anything bad about this I received to comments from my boyfriends sister and mother. His sister asks," what is this all about?" and… Continue

Added by Dana Kozlowski on August 10, 2010 at 8:38am — 8 Comments

Headband wigs - seeking advice

I was going to post this on the discussion board, but decided to post here instead. I've decided to try a headband-style wig as an alternative to a hat. Problem is, I'm in Asia (where the chances of finding a non-costume blonde wig are not very good) and my friend in the US is going to send it to me- so I have to choose one just from online pictures.



I'm kind of torn between the Paris Hilton headband fall ($20 on sale, synthetic hair) and a Put On Pieces headband fall ($150 on sale,… Continue

Added by Nari on August 10, 2010 at 6:00am — 2 Comments

Acceptance

hmm i have been feeling good about being bald lately, i dont know why...i guess im in a good place in my life right now. and then i see the likes of amber rose (kanye wests gf) and think shit its okay to not have hair, its hot...amber doesnt have alopecia, she just chooses to wear her hair that short



Right well im going to go shave my head again, am sick of my wig and have been wearing head scarfs as of… Continue

Added by Mjay on August 10, 2010 at 2:21am — 9 Comments

Donating a bone marrow

I really want to donate a bone marrow, I'm going to be 18 this month. I was looking on www.marrow.com and there are some condititons that can prevent someone from donating. Would it be ok for me to donate even though I have Alopecia Areata?

Thanks in advance

Added by Rebeccalynn Morris on August 9, 2010 at 5:19pm — 4 Comments

Birth control causing alopecia?

Hello!

About a month ago I noticed redness on my scalp and asked my bf to take a look. We were both shocked to discover 3 bald spots on my head. I work at a salon so went in the next day to make sure I haven't always had them. They confirmed I had not, so was able to get estimate how long this has been going on. (2 months)



I went to doc's and got some cream. When I went to apply, I noticed 4 more spots. AHHHH!!! I have been racking my brain trying to understand what is going on… Continue

Added by Stacy on August 9, 2010 at 1:00am — 3 Comments

Not sure if I really am "living" with alopecia

I have been without any hair for 8 years. I turned 50 yesterday and thinking back - I had the most beautiful thick brown hair and I still long to have it back. I still pray every day even though I know better. I still cry sometimes and feel sorry for myself. I even still dream that I wake up with it all back. I really do not know if I will ever really accept this. Oh sure I wear a wig and "paint" on eyebrows every day. I sweat like heck in the heat and itch. It can be miserable. I can fool… Continue

Added by Barbara A Helnore on August 9, 2010 at 3:17pm — 7 Comments

Do vitamins/supplements help or hurt?

Hi everyone... I have been taking a bunch of supplements since this hair loss and scalp pain started 6 months ago. I had more blood tests done last week and my Vitamin B12 was very high. This caused me to have hives, itchiness, redness, hot feeling, etc... I did more damage than good. My Vitamin D3 was low and my doc told me to take 4000 units a day to boost it back up. I know Vitamin D has a lot to do with your mood and depression but I also read today it can cause scalp pain and hair loss if… Continue

Added by Julie Koch on August 8, 2010 at 7:45pm — 12 Comments

Message from a friend

Today on FB I received a message from a friend who has terminal cancer and said "it's hard to be without hair" and she doesn't see how I handled it all this time. She is the most amazing person. I remember when she was diagnosed and was worried about losing her hair, I told her not to worry I would come to work bald with her. There is nothing the doctors can do for her now but she is still here and living life. And you know what, that's what we should all be doing as well.

Added by Roslyn on August 7, 2010 at 10:34pm — 6 Comments

Identity

I have a scar on my forehead about 2/3" in length. I got it when I was four years old, from jumping on my grandmother's sofa and falling headfirst onto her ancient radiator. My mother had heard that they don't use anesthetic in the ER when they stitch you up, so trying to save me from further pain, she cleaned and bandaged my wound herself. The scar is actually an oval depression on the surface of my skin, probably not something you'd notice right away upon meeting me. Through the years I've… Continue

Added by Nari on August 7, 2010 at 2:30am — 6 Comments

If you were this man... thank you!

Hi there fellow bloggers :)

Just thought I would type and tell you of my little happy story for the weekend.

So there I am, stepping off the tram in Nottingham City Centre, Old market square, with my Mum and my Oma. when a man ran up to me and touched my shoulder. for a moment I thought he was going to tell me that I had been a right numpty and left something on the tram, but actually, he said:

" Hi, sorry, you don't know me, but I just wanted to say, that you are really… Continue

Added by Lizzie on August 6, 2010 at 7:31pm — 5 Comments

Coming out

I work with a guy that has alopecia but we have never talked about it. I don't even know if he knows that I have alopecia. There are not to many people at work that do know, since I have been wearing a wig at work. Well, the other day I walked into a conversation by a couple of female co-workers and they were talking about my fellow alopecian brother at work. The conversation went something like this. " It started with a small bald spot on the top of his head. His wife said he should go to the… Continue

Added by Petra on August 6, 2010 at 4:36pm — 9 Comments

Already August

Alopecia World:



Hey kids. I apologize for my absence. It's late, and I'm tired but I wanted to write a quick update. Apologies for the disarray that is this blog entry.



I'll work backwards.



Vanessa thinks my hair is growing back. I can't see anything, but I believe her. She says there is some hair actually coming in some spots, while other areas are rockin' this like, light peach-fuzz. Since buzzing my head, we've had to re-buzz once. Vanessa and I went to Los… Continue

Added by Ellen Burns on August 6, 2010 at 5:34am — 1 Comment

Irony

Day 5 of collecting hair and today's pile is biggest of all. I uploaded a profile photo, and you can't *really* tell how much hair I've lost thanks to the damaging power of hair bleach. I think my hair looks scraggly as I don't dare to style or even brush it all that much- just let it air dry as it is. But at this point I'll take scraggly hair or my natural dark or my abused blonde or whatever I'm allowed to keep.... just please don't take any more away.



Irony, 3 months ago I bought… Continue

Added by Nari on August 6, 2010 at 4:30am — 7 Comments

The cancer question -- I finally got it

Well, it was bound to happen to me, and today was the day.

Cheryl and I went for a walk and stopped at a local restaurant to order water.

While I was paying, Cheryl stepped away to get a couple of straws just as an older woman tried to touch her and say, "God bless your heart."

Realizing that I saw her, the woman smiled at me and asked without pause, "Does she shave her head, or does she have cancer?"

I immediately responded, "Neither. She has alopecia areata, a…

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Added by rj, Co-founder on August 5, 2010 at 11:00pm — 8 Comments

How is alopecia diagnosed?

Hi y'all... I have had so many labs done and scalp checks and everything looks good and normal. I was wondering how you were diagnosed with alopecia, female pattern baldness, etc.. Does it show up on any tests? Should I be getting a certain test done for an actual diagnosis? So confused about what steps to take! Thanks for any advice! My scalp is itchy, burning and feels like hairs are being pulled. It's super sensitive and can hurt in the wind, sun, water, etc.. It can also be tender to the… Continue

Added by Julie Koch on August 5, 2010 at 6:51pm — 10 Comments

Its been another 5 months!

Yes its been ages and my hair is still growing, now have some curls coming through and i can straighten it! Its now a good 4/5 inches long. So I am very happy! I now have made my own clip in hair extensions, its so nice to have long hair without the itching like wigs come with! I hope everyone gets the out come i have had =]

Added by Kayleigh George on August 5, 2010 at 4:01pm — 4 Comments

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