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Knowing when to walk away

Hope is a very powerful ingredient in one's life however so is a realistic point of view. I can hope that today will be a sunny day, I can hope that I'll find the greatest man on earth and I could certainly hope that my hair would come back BUT (and that's a big but) reality must come into play at some point here. Hope will not change the forcast for the day or bring me that great man and hope has nothing to do with making my hair come back. Hope is like daydreaming or wishing. Now I'm not… Continue

Added by Carol on January 22, 2010 at 9:27am — 3 Comments

Meditation and health

Last week I attended a meditation workshop. I've meditated for several years on my own accord and figured the workshop would teach me something new. First off we sat around and talked about stress and meditation, something I was already quite aware of. Stress is generally the source of changes in diet, sleep patterns and tension which lead to other health problems such as obesity/malnutrition, fatigue, heart attacks, and weak immune systems which make us prone to infections and disease. Knowing… Continue

Added by Carol on January 19, 2010 at 4:44pm — 1 Comment

To wig or not to wig

I don't really enjoy using the the wig. I find that it uncomfortable. I always feel like it going to fall off or someone's going to pull it off. I used to be able to not wear a wig because I had enough hair to cover but now it can be noticed. So I am considering shaving off what's left and just being natural. My mother thinks i should invest in a different type of wig that will fit better. Am not sure what to do. Any ideas ?

Added by chani trav on January 19, 2010 at 9:44am — 9 Comments

Negative

I figured if i start off by listing all the things i hate about alopecia, then it can only get better right? Sure i can learn to accept it but maybe i just want to go on hating it for a little while longer.



Things I hate about Alopecia



1. I cannot wear my hair in a high pony tail.

2. My hair style of choice is a low pony tail or a loose plait

3. I feel i cannot get my hair trimmed because i don't want to go to the hairdresser

4. The way it grows back… Continue

Added by Nicole on January 19, 2010 at 2:00am — 11 Comments

Fall hard, come up strong!

Hey you guys, It's been a while since i have talked to you guys. but since i got the human hair i have gotten my life back. But when i shaved my head last year it felt better getting a fresh new start just like the new 2010! But my hair has been growing back over time and most of my bald spots are covered now and its looks nicer then it ever did.
Well you guys its time to go.
See you next NAAF meeting(:
So remember when you fall hard make sure you come back strong!

Added by Aja Eliazar on January 18, 2010 at 10:51pm — 1 Comment

Hurry, don't wait! Limited time offer!

Beautiful People,



If Madison Avenue ever created a slogan for life, that should be it. One of the things I learned through dealing with Alopecia (and having my husband suddenly drop dead of a massive heart attack), is that you can't wait until things are perfect -- or even better -- to meet life full on. If you do, you will always be waiting instead of living, and life is short. Like art, your passions are revealed in the process, not the product.



An analogy (and example)… Continue

Added by Marie on January 18, 2010 at 4:00am — 9 Comments

Regrowth Update

I thought that it was about time that I updated my regrowth blog. I'm really happy to say that the regrowth of hair on my head has been pretty impressive. I've gone from having 20+ patches to them all filling in. Some have still to thicken up a bit.



This is the patch on the back of my head near my crown.





This is the first patch which appeared a year ago. Strangely, it has been the slowest to fill in. It is still filled with… Continue

Added by Robert on January 16, 2010 at 12:20pm — 11 Comments

I'm stoked!

Friends,



I just found out that the Minnesota Center for Book Arts has selected one of my pieces, "Autotomy", for their Quantified Aesthetics exhibition that will run from March 12th to June 20th. MCBA is the largest book arts center in the nation, and I couldn't feel more validated!



THANK YOU! The confidence I have gained from being a member of this online community has contributed greatly to my artistic endeavors. As always, I urge you to go out there and find something… Continue

Added by Marie on January 15, 2010 at 7:37pm — 7 Comments

Alopecia in Switzerland

Hi there I was just wondering if there are any with Alopecia living here in Switzerland? I am South African and living here 1 yr already and think it would be nice to hear from you if so. Peharps we could start our own Breakfast mornings or have get togethers like the AW in the States. Look forward to hearing from you soon.

Added by Farial Michaelsen on January 15, 2010 at 11:24am — 3 Comments

You Can All Get an Honorary Degree (Alopecia Universalis)!

I know many of you have had this illness for a while now. Sometimes you feel like you've become an authority. Well, like many others who've spent years in their particular industry -- you've all become SMB (subject matter experts) in your field of Alopecia. :)



You are entitled to: http://www.newagemedia.ca/au/au_degree.jpg



Print one and hang it on your wall -- only a few people around the world have earned one. You… Continue

Added by Drakes on January 14, 2010 at 2:25pm — 3 Comments

Hairpieces

Has anybody ever bought a wig from Best Wig Outlet? I found a really cute human hair piece, Sepia - HB Prom, and it was a really really good price for Human hair. I am so leary about buying online. I have one now that I got thru an area salon. It is supposed to be human hair and it was rather pricy. To put it bluntly, I hate it. I haven't had it a year yet even and have only been able to wear it in a ponytail. It is supposed to be human hair, but it seems to "rat up" in the back just like some… Continue

Added by Mary Sarra on January 14, 2010 at 2:00pm — 5 Comments

Update - I hope this gives you hope!

Hi Everyone!!



I have thought long and hard about updating on Alopecia World - I didn't want to upset anyone with my good news...but then thought...HEY...If this could give even one person a bit of hope...it's very much worth it!!



The good news is that I have 100% complete regrowth. I shaved my head on January 24th 2009, and by October 2009, the last patch had grown over.



One year later, I am patch free and just waiting for my hair to grow long again. I still… Continue

Added by Christie on January 12, 2010 at 9:24am — 10 Comments

Such a relief!

I feel like this community has taken a huge weight off my shoulders. For so long, I felt like I was the only one dealing with this. I'd seen women losing their hair on hair transplant tv commercials, but never really gotten to talk to anyone dealing with the condition. It's such a releif to talk to people who understand and can let me know what to expect down the road. It also really helps to see women on here who have everything I want-husbands, children, and successful careers, and didn't let… Continue

Added by Andrea on January 12, 2010 at 9:20am — 6 Comments

New Growth!

Okay, my hairloss was about 80-90% due to my Lupus. I have now been on Plaquinel since Nov 23 and a Biotin/Fish Oil regimen since Nov 1. The first picture shows the peak of my loss before I noticed that I didn't seem to be losing and the second picture is today. Just Friday I thought I saw 1/2" hairs among the 2-3" hairs. My mother looked and sure enough she saw a lot. So I got the rest of my hair shorn to 1" to even it out. I tried to duplicate the exact lighting so it shows the same but you… Continue

Added by Andrea on January 11, 2010 at 4:02pm — 4 Comments

Here goes my RANT!

Here goes my RANT! please take it for what its worth, no more no less, I am a repair technician, I fix things for a living, therefore find it difficult to except my medical Doctors disheartening prognosises concerning the very obvious autoimune desease alopecia totalis that I have been plagued with as incurable due to lack of knowledge on there part. Basically all four docs said in not so many words you got and autoimmune desease we no nothing about, good luck with that, see ya would not want… Continue

Added by George Ortiz on January 11, 2010 at 8:07am — 7 Comments

Going fast

It seemed like my AA was taking a vacation as I hadn't noticed any new bald patches for quite some time. And then BAM over the last week I've lost a LOT of hair. I woke up last Thursday with two partial eyebrows, so I shaved the rest. I have also lost a lot of body hair, which feels weird (I was pretty hairy). My clothes actually feel different. I am trying hard not to let this rule my life, but I have found myself leaving the house less. I'm single and unemployed and really don't want to fall… Continue

Added by Victor on January 8, 2010 at 5:04pm — 10 Comments

Children's conference

Rather than send out an email to all those on my friend's list I thought I would post a blog for everyone to read. I grew up with alopecia and found it very difficult to cope with. Even my parents has a hard time knowing what to say or do. I urge you all to make a difference in an alopecian child's life by helping them attend a conference specifically for children with alopecia and their parents by visiting the link below and making a small donation to our cause. Read the information I've… Continue

Added by Carol on January 8, 2010 at 1:16pm — No Comments

Big ball inside of me. :(

recently more and more of my hair has begin to fall out even though i just recently got it back. i feel so, out of myself. in the shower i can feel the hair covering my back and my hands and i have to wipe myself down after showers because i have hair all over my body, it makes me feel disgusting. i hate it. i hate my hair when it falls out. now dont get me wrong ive had alopecia for three years now and im all about being positive and accepting it but i feel like im rewinding and its so painful… Continue

Added by Brittany Peterson on January 7, 2010 at 11:25pm — 5 Comments

Recently diagnosed and have so many unanswered questions!

I was diagnosed with Alopecia Universalis around Thanksgiving of 09 while I was 6 or 7 months pregnant with my 3rd child. The last picture taken of me was November 6th and I had a full head of hair; the same hair I'd had my whole life. By the 2nd week of December I had lost all of my hair, body hair, eyelashes, and most of my eyebrows. It has been extremely hard for me to cope with this because I have never had problems of any kind up until now and my doctor is telling me that AU usually… Continue

Added by Anna Thomas on January 7, 2010 at 3:12pm — 10 Comments

The Gifts Alopecia Gave Me

Hello Sweet Women!



I have not posted, or messaged, or blogged, or commented in FOREVER! But, I just had to take a minute to connect with all of you – old and new members.



Today, I was looking at what I wrote in my profile when I joined. I had written, “I look forward to the day when I wake up NOT thinking about my hair. When that day comes, however, it will have nothing to do with alopecia and everything to do with me.” Well, I realize that day has finally come, and I was… Continue

Added by Marie on January 7, 2010 at 2:38am — 18 Comments

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