Featured Blog Posts (3,061)

How do you feel physically?

Before I found my first spot a month and a half ago I was having migraines lethargic nauseated and dizzy/light headed. I still feel that way to the point sometimes I can barely make it through the day because I am so tired. Is that normal? Is there something else wrong with me? I have wondered about lupus and my husband thinks I need to take gluten out of my diet. He is tired of coming home to a lethargic wive. I just don't know if this is part of the AA or what? Please tell me your experience.… Continue

Added by Mindy on August 26, 2013 at 12:18pm — 6 Comments

Freedom Wig excitement

Hi all, I'm new to this group! Don't know why it has taken me so many years to join such a great supportive group! I am a 37 year old woman who has a gorgeous little 7 month old girl and I have lived with alopecia for 33 years and have recently found out about freedom wigs! I have booked my flights to Melbourne and will have a natural wig buy the end of this year just int tie for my daughter first birthday!

I'm extremely excited but also scared as it will be the first time I have ever…


Added by Tina on August 26, 2013 at 9:30am — 7 Comments

My baldness does not define me anymore!

Hi, my name is Raquel, i am 42 and can honestly say that my hair loss does not define me anymore!

The road was long, bumpy, full of storms, self hate, low self assteem etc. But i am there!

I am loved, and i love! I am at a stage where i wear wigs if i want too and if it is hot i wear nothing but my smile on my face.

Today i know that it all starts in your heart. If you accept yourself everybody else will accept YOU! If you feel uneasy everybody else will not know how to…


Added by Raquel on August 26, 2013 at 4:30am — 7 Comments

Embarrasing times

So yesterday i was going from class to sit with my group when i went under a tree which i thought was taller then it was and it pulled my wig off it was so embarrassing and i wanted to go and die in a whole i ran past my group and to the toilets and sat in the toilets for the rest of lunch and sent my friend a message to ask if she could bring my bag to my next class but she had gone home sick so i had to go back out and grab my bag which i eventually did but i had waited until lunch was…


Added by emily5 on August 26, 2013 at 12:30am — 9 Comments

Does my 8 year old daughter tell classmates it's a wig?

My daughter who has alopecia for the last two years is starting third grade nd she wants to wear her first wig to school, she has been asking me if she should tell her close friends. I'm not sure what the right answer is. Her teacher will surely know but not sure about anyone else. I'm petrified...nd what it it falls off. During class? Help!!

Added by Leelee on August 25, 2013 at 11:54pm — 3 Comments

I hate it when people say...

I'm going to preface by noting that I am at the beginning of my AA journey, and I do have a lot of hair left, but I am slowly balding.

I hate it when people say, "you can't tell" or "you look fine" (something I'm sure we all never want to hear, fine is such a lying word).

But -I- can tell. My hair itches and hurts at the same time. I can feel the breeze on my scalp for the first time in my life and its weir ding me out. My husband comments on how I look like a little boy… Continue

Added by Amelia33 on August 25, 2013 at 10:46pm — 5 Comments

Alopecia & things I can't experience with my daughter

my daughter is 2 yrs old and shes starting to wonder why her mommy does not have hair
i would love for her nd myself to play hair salon like i did with my mom
she gets upset that she cant do mommy hair and it is a lil
stressful trying to explain it to her i have had alopecia for a yr now
and it has knocking my self esteem down i really lost of words
on how i feel cause who wants to be a woman
nd bald

Added by butta on August 25, 2013 at 9:30pm — 15 Comments

My inspirational 14 year old daughter Joelle with alopeia universalis has silenced her bullies through singing

Please check out this news article that has come out in today's Daily Mail about my hugely inspirational daughter 14 year old daughter Joelle who has found a way to overcome many years of bullying through singing. This video was made by the family, please watch, share, comment and enjoy, thanks Michelle :) Joelle in the Daily Mail

Added by Michy on August 24, 2013 at 2:00pm — 3 Comments

The bright side

Earlier today I was on Tumblr, looking for nothing in particular, and I ran into a quote. A quote that couldn't stop making me laugh! Usually when I read something on alopecia or hair loss, my first reaction isn't to laugh, but to frown. Anyway, the quote was: "I'm too sexy for my hair, that's why it isn't there"

Isn't that such a positive way of thinking? I want that quote on a shirt. I googled it, and I think it's supposed to be for older men who are experiencing hair loss. But I'm…


Added by Jackie on August 21, 2013 at 11:30pm — 1 Comment

Alopecia World makes top of the list of alopecia resources!

According to the Josephfleischer.com Blog:

"Dealing with alopecia can be an isolating experience, even when you have a strong support system of family and friends around. It’s hard for people to commiserate when they aren’t sharing the same types of personal experiences that you are.

Luckily, we live in an age where information, advice and…


Added by Cheryl, Co-founder on August 20, 2013 at 4:30pm — 1 Comment


So I've had a conversation, and was asked why I don't take any treatment. And to be honest, I never really thought of having treatment of any kind. To put it simple, I just don't think it's necessary. I mean, I've had alopecia for so long, without any signs of it ever going away. Maybe I just don't want to get my hopes up to have it knocked down when the treatment doesn't work. I don't know. I'm happy where I am right now. Happy with how I'm dealing with it. And by taking treatment, it makes…


Added by Jackie on August 20, 2013 at 2:49pm — No Comments

My friends

So my best friend Maria recently learned that I wore a hairpiece. Of course she already knew I had alopecia but she didn't know to what extent. Anyway, I told her and my other friend Yadira. We were at a park and it seemed like a good moment. Maria even felt the underside of my hairpiece to make sure, since she thought I was lying. They both took it extremely well to my surprise. They didn't ask too many questions but they didn't seem uncomfortable to ask simple ones. Like when I first got…


Added by Jackie on August 20, 2013 at 1:45pm — 1 Comment

Wig success! And then a huge FAIL... Back to the hat

So I finally made the decision to get a wig. After a year and a half of alopecia areata out breaks, resulting in a patch that looks as though it might never regrow. I decided to invest in a nice wig thanks to the help of my grandma and boyfriend. It was a big decision:

1. During the summer it is really hot in DC and I did not want…


Added by HilEspi on August 20, 2013 at 12:00pm — 10 Comments

So...my hair has started to grow back after 16+ years with no hair growth

I am 42 years old. Since last October I have been gluten free. I have decided to also try to go organic and no fast foods, no artificial this or that (for the most part). I have also decided to make a choice to just eat healthy. As a side effect or perhaps result of my efforts and food choices...my hair has started to grow everywhere. Its been a month since i had also started the Probiotics in my diet. I noticed fine little hairs all over my head and in my eyebrows, about 1/8" long. My…


Added by Robin on August 18, 2013 at 12:30pm — 6 Comments

(Un)Supportive hubby at it again

I have my Dr appt and hubby says steroid cream may help too, and I said then I'm cutting off all of my hair (so I can see all of the spots. He proceeds to say I will look "stupid." Well he's a dork and there's no way I can get lotion through my hair now. Maybe a really short cut and slowly go shorter. He does need a lesson in empathy though.

Added by Amelia33 on August 13, 2013 at 2:00pm — 5 Comments

How long?

I'm wondering... how long does it take to go from Areata to Universalis?
The bald spots on my head keep growing and now I've discovered small ones under my armpits and on my eyebrows. It also feels like my eyelashes are thinning out.
Any experiences/stories you want to share? Isn't it a bit unusual to skip the Totalis?

Greetz from Germany!


Added by Ulli on August 12, 2013 at 7:32pm — No Comments

Full circle

Two years ago, March, 2011 to be exact, I incurred my first bald spot. 5 months later I was completely bald. I had never heard of Alopecia…now Alopecia was controlling my emotions, actions and my entire life. I did not want to venture out in public with my condition and taking pictures was a no-no. And when I did leave my home, I did so in complete fear of people staring at me and whispering under their breath about me. I tried to smile but I didn’t mean it… I was too heartbroken. I was…


Added by Theresa on August 12, 2013 at 4:30pm — 7 Comments

Time to make a difference

I am so beyond sitting back and watching my life go by. I am so beyond not achieving my goals and not living my dreams. It is time to make a change, time to give birth to a difference. A different way of living. Living a more healthy life, a balanced life. We all have challenges that we feel are boulders in our path but these challenges are opportunities to build strength. It is time to pick up the boulder, walk around the boulder or climb over the boulder. It is time to make a difference in…


Added by Ra NetchemUahment on August 9, 2013 at 5:46pm — 1 Comment

Just started with hair loss

HI there.I am a 26 year old and have been losing massive chunks of hair since the last six months.I feel so terrible about it and am having low self esteem issues.I also have this constant fear of my hubby not fining me attractive enough for him.It just consumes all my thoughts with negativity,leaving me grumpy ,moody and pissed all the time.

I just hate going out,am always worried about my scalp showing(through my carefully maneuvered hairdos)and just hate having my pictures taken.I…


Added by sup on August 8, 2013 at 4:21am — 5 Comments

What are your quips?

I am just starting to get to the point where I'm wearing caps in public, and I'm not ruling out shaving my head in the future. One person said that I should have some quips ready for "comments" strangers will say or ask. I was wondering what your guys' examples were? :)

Added by Amelia33 on August 5, 2013 at 12:58pm — 1 Comment

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