Featured Blog Posts – December 2011 Archive (42)

Any advice on losing nose hair?

Any advice on losing nose hair?

Added by pauline vargas on December 31, 2011 at 6:00pm — 1 Comment

Nice scarf-tying tips on a website

I saw a newspaper article about this organization for cancer patients called Look Good...Feel Better. (I think that's a good motto for us, too!)

They have some very nice explanations about tying scarves on this page. Just click on the various "scarf" topics:


Added by Mary on December 31, 2011 at 5:39pm — No Comments

In The Hands Of The Angels Now.

So much pain
So much tears
even after 4 days
im still in shock.
Why him? Why now?
I remember his bright huge smile
Those big warm teddy hugs
That big old laugh.
I hope your looking over me
as I write this poem
As I type.
I hope your healthy now.
I hope your safe & warm now.
Wait for us , you hear?
I love you.
I love you uncle Terrall.
Rest In Peace.

Added by x3Awesome'TTx3 on December 30, 2011 at 1:24am — 2 Comments


hi hope everybody had a good Christmas.im posting this blog to see if anyone has any good ideas.i love tattoos and i was wanting to have another done but i like them to represent things in my life,i was trying to think of something to represent alopecia as it has been a struggle and had a big impact in my life...in a way iv learnt a lot about myself through losing my hair. any ideas anyone has would be greatly appreciated thanx x

Added by laura on December 29, 2011 at 11:30am — 1 Comment

Speaking to students about alopecia

I am asking any of you who have decided to give speeches to schools or classes...what questions usually come up? What information do you include in your presentations? I am thinking of doing this, as an alopecian since 1963 and as a teacher now...I think I can help.

Added by Tallgirl on December 28, 2011 at 6:00pm — 3 Comments

Best thing ever

I was in town today, hitting the post-chrissie sales with my dad. I wore one of my pretty triangle scarves. We stopped for coffee and sat outside. Amoung the many people walking past was a family with a little girl in a pink dress who kept staring at me. Little Girl said the best thing ever. "Is that a pirate?".
Then she walked into a post. Which was only funny because she wasn't hurt.

But I love that, the kid logic. Scarf = Pirate. Completely awesome.

Added by Georgia Gardner on December 27, 2011 at 11:30pm — 7 Comments


As of now I know that I have spots of hair loss, around my ear, and on my side burns and have medication for it, but unsure of what else could happen and why this happened to me. Ive had this for 2 months now. I don't go out anymore, I find it extremely hard to keep this off my mind and very insecure about myself. I only wish I knew how i got this and how I can resolve this.

Added by Navee on December 27, 2011 at 11:23am — 12 Comments

For those of you who don't like the word bald ...

I discovered a new word today: Calvous — lacking all or most of the hair on the head; bald!

Added by Dominique Cleopatra on December 23, 2011 at 3:42am — 3 Comments


A small moan: Anyone who read/reads my last blog post would see I dyed my wig a much darker colour then it was previously.

Out of everyone in work, only one person has noticed and commented on it, and she only works in the canteen, not really I spend a lot of time with.

I don’t know if they all know it’s a wig and don’t know what to say, or if they just do not take half as much notice to hair as I thought they might.

It’s in some ways upsetting, making me more…


Added by KFlame on December 21, 2011 at 6:18pm — 9 Comments

It's not just about you

When I first was diagnosed with Alopecia 6 years ago besides crying every time i looked at myself in the mirror, I shut everyone out of my life. I stopped going out because i was self conscious and stopped talking to my friends and family because I felt they wouldn't understand. When I was diagnosed there weren't really any support groups that I was aware of so I felt like I had to go through it alone. I didn't even tell my family until much later.

Having a conversation with one of my…


Added by Marieca on December 21, 2011 at 3:30am — 10 Comments

School issues

So....my 11 year old daughter lost ALL of her hair in the last month and a half or so. We only have a half wig now (a flash) b/c everything else takes so long to order. She has been wearing that to school since after Thanksgiving and hasn't had any major issues. When she originally got it, she had hair on the back of her head to blend w/the hair on the flash piece. Now, she doesn't. So if the hair moves at all you can see the bald spots on her scalp. So....today at school a kid asked if they…


Added by Jenn on December 20, 2011 at 10:30pm — 8 Comments

There's no shame in alopecia

On the NAAF feed on Facebook this morning there is a fantastic picture of the Disney princesses sans hair. It made me smile and got me thinking...

I was watching Shrek the other night with my kids. It was the movie with the princesses (Sleeping Beauty, Snow White, Cinderella...Shrek II perhaps?) The main villainess turns out to be Rapunzel coupled with that Nasty Prince Charming. As Shrek and Fiona conquer all things evil including the dubious Rapunzel and Charming, what should happen…


Added by Jennifer Krahn on December 20, 2011 at 11:30am — 3 Comments

Radon testing?

My 16 month old has been diagnosed with Alopecia, so I am talking to everyone who knows anything about this problem. Someone mentioned if this could be related to Radon Gas, and If I ever have tested my house for Radon. So I went first thing today morning and got a Radon Test Kit which takes about 2 weeks to get results, and I am growing impatient to figure out if it could be related. Has anyone who suffering from Alopecia looked into Radon gas in their house or work place?

Added by Gaurav Batra on December 18, 2011 at 1:00pm — 4 Comments

Dyeing for a change

Well I decided I wanted to dye my ‘human hair’ wig yesterday, for a Christmas boost. I had done it before and it has become a bit of an addiction, why buy a new colour when I can boost this one just a little more… I always worry though. Just before I start thinking, what if all the hair falls off, and then what? But I do it anyhow.

Now I have read a number of times, always go for a shade lighter then you want, and never leave it in for the full time.

The first time I dyed my hair…


Added by KFlame on December 18, 2011 at 6:00am — 1 Comment


Does anyone know if Rogaine works for Alopecia?

Added by Eileen Simpson on December 15, 2011 at 10:41pm — No Comments

Not fair

I thought i was coping with this ok... i thought i was accepting it... but today was bad, we are going out to the bar tomorrow, and its the first time since i shaved my head. i barely wear my wig now because i hate the feeling of it so much, so i figured i could find something to wear to make it look amazing without hair.. but everything looks ten times better when i put my wig on... i picked out a dress, and then put the wig on and my friends said, and i also agreed, that it looks way…


Added by Erika on December 15, 2011 at 9:00pm — 18 Comments


People never cease to amaze me. So this woman at church came up to me last Wednesday,and asked me if I was wearing a wig. I was shocked and I started stuttering, and then I finally told her "yes", with a smile. She then asked me "why, because Indian woman have beautiful hair"? and I noticed that I was about to tear up so just then I took my mind somewhere else as I answered " I have a form of Alopecia". She then asked what that was, so I told her. It's surprising to me sometimes that some…


Added by Elizabeth on December 14, 2011 at 4:13pm — 37 Comments

Still searching

Still searching for a group close enough to get together with or at least a friend for Kira. She is up to 80% Hair loss and considering shaving her head. She is alternating between feeling special, and heart breaking sobs because she is different. I wish I could fix it all for her... Friday is her 12th birthday, would that I could make it all better for her as the ultimate gift...

Added by Kirsty L. Fry on December 13, 2011 at 9:00pm — 5 Comments

A lot of shenanigans

I have only been diagnosed for oh 3 months now with AGA/TE, but one thing that I am finding a bit annoying is the sheer amount of hair loss shenanigans on the internet.

Try doing a search on YouTube for alopecia. I am looking for genuine people telling their stories. I personally find them helpful and inspiring. However what I mostly find are a lot of videos promoting a product or some dermatologist telling the usual treatment options for alopecia.

My favorite…


Added by Figarosmom on December 13, 2011 at 10:30am — 6 Comments


I'm a 14 year old freshman and I don't wear a wig at all.. I don't like it. So i just wear a scarf. Everyday I end up in the bathroom crying because of the mean people. I have other issues in my life and I'm becoming very depressed. I finally got a therapist but I'm thinking about being home schooled for a while just so I can get back on my feet. I just don't want to disappoint my friends. Any suggestions? Homeschool? Or not?

Added by Jasmine on December 12, 2011 at 6:30pm — 4 Comments

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