May 2009 Blog Posts (109)

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Being Honest

Hello, this is very strange to me first of all. I am not one who socializes at all, especially on the internet. Today is my birthday. I am 27 years old. Alopecia has been running my life for the last 20 years. Yesterday, I took some time to think about everything I have missed out on because I was afraid. I have always felt that I wasn't good enough period. I think it comes from all of the teasing and hurtful comments over the years. I have never had a real relationship with anyone. I have… Continue

Added by Anastasia on May 16, 2009 at 4:00pm — 8 Comments

The Alopecian Closet...Are you in or out?

Hello Alopecia World,



I wish there was a poll section on this site for such a question.



I am writing tonight in support of National Bald (now called International Alopecia Day).

This is an event for women with alopecia. The objective is to raise awareness and acceptance for bald women in society. What is asked of you is to organize, join or support a group of local alopecians…

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Added by JeffreySF on May 16, 2009 at 1:30am — 12 Comments

wats happened so far!!!!!!

well hello, i am 27 and ive only just lost my hair, it all started a few wks bak wen i first took an allergic reaction to the sun, i was covered in blisters but after a few days of usin strong cream i was gettin better, then less than a week later i noticed a bald patch on my head the size of a 50p piece, wat a fright i got, but there on after it was fallen out rapidly, i would be sittin still and my hair was just comin away from me, i now only have strands left which i might now just shave off… Continue

Added by lynne on May 15, 2009 at 11:54am — 3 Comments

me

well i am new too this but here i go. I have alopecia universalis and i have had it since i was 12 years old. i am 29 years old now and i cant seem to make it out outside without my wig. I really cant afford them and my friend that i am close to on here is trying to get me to go with out my wig but i still cant seem to do it. since all this has happend i have all kinds of health problems now. with all the stress i am under i now have panic attacks cause i am afraid of what people think of me.… Continue

Added by clair on May 15, 2009 at 10:38am — 3 Comments

Stressing about the weekend.

So to everyone else ths sounds weird. But I know you all will understand. Like mentoned in my last post I am pregnant and lke my past pregnancies my hair has been growing back more and more as time goes on. It has been coming in so nicely that about a month ago I decideed to stop shaving it and let it grow back. Which is very exciting because so far it looks like I might actually have enough to cover my head! The only issue is obviously I can no longer wear my vaccum wig. The problem now is we… Continue

Added by Bigmama on May 14, 2009 at 8:18pm — No Comments

Wearing It

I found some t-shirts on cafepress I think I'm going to order and wear to the gym since that seems to be where I get the most looks. Usually as I enter or exit the ladies room. I guess the make up and breasts aren't enough to prove my femaleness. *shrug* I am fighting the temptation to always wear a head scarf when I go out. I don't want to hide it. It's part of who I am whether I like it or not. The majority of the time I'm fine with it so why does it matter that other people have an issue… Continue

Added by Jess on May 14, 2009 at 12:00am — 1 Comment

And the stress keeps coming

So since the last time i wrote on here i was starting to deal with all my insecurities of my alopecia. Since then I have met a wonderful guy named John and we started dating each other. I still have not showed him my shaved head and i sleep with my wig on which can be annoying at some times. He knows about my condition and said when i am ready to show him he will be there for me. I just need some more time.



About 2 weeks into our relationship he started complaining about back pains.… Continue

Added by Danielle on May 13, 2009 at 11:16pm — No Comments

My First Blog Post

Funny thing, I have an adorable Pomeranian, now 9 years old, who also has alopecia. Poor thing was almost completely bare except for his head, legs and spine (called him Spike for awhile), but his hair grew back. He just has a little bit left to fill in on his butt (his longish fur covers it up; talk about comb overs) It was probably due to changing his diet a bit. No more wet dog food for dinner, he usually got a scrambled egg (lots of vitamins & protein) on most days (with his dry… Continue

Added by Brandy Snap on May 13, 2009 at 9:30pm — 3 Comments

There is hope!

I thought I would give everyone an update on the AA progress....

Since I stopped using the clobetasol cream...my hair has started to grow back. I started out with 16 patches...and am now left with 2 - one of which is very small on the back of my head, and the other is the very first patch that started. It grew to a lovely 4 inches...and is now about the size of a canadian nickel. I have had complete hair regrowth in all other patches. I have hair growing in the last two patches - some of… Continue

Added by Christie on May 13, 2009 at 5:42pm — 1 Comment

Still Worried

You'd think after all these years of living with alopecia, I'd be used to it by now. In a lot of ways, I actually am. I've come to accept that I'll never know what it's like to have long hair blowing in the wind, never understand the literal meaning of a "bad hair day", nor will I ever feel like I'm completely normal (whatever that is). I'm just glad that I've found this place. Now, at least, I can feel like I belong somewhere.



I've chosen to live without wearing wigs for my entire… Continue

Added by Kathie Nietenhoefer on May 13, 2009 at 12:58pm — 4 Comments

Follow-Up Visit

I had a follow-up visit with my doctor today. She's just great and I am always encouraged after seeing her. I noticed the first signs of regrowth in March (I'm talking microscopic here), by April it was a wee bit more visible though I was really quite bald. Had about 20% of my hair still hanging on for dear life. Throughout April it really came in and now I have a good bit of coverage. Still a little sparse on top but I am hopeful that if it continues at this rate it will fill in… Continue

Added by Paula on May 12, 2009 at 10:00pm — 2 Comments

One Day at a Time

It's only almost been 3 weeks since I decided to shave and I can tell I've lost more since then. At first I was just going to shave it with a HeadBlade but 'my' girl talked me into the guide. To be honest there was a sense of relief in being able to use a guide. I was still able to have visible red hair and it masked the thinning fairly well. It's not masking as well anymore. I'm guessing by the end of the summer I will be either shaving guide free or shaving with a razor.

While I found… Continue

Added by Jess on May 12, 2009 at 9:43pm — No Comments

do i have alopecia

my hair is thick and long in the back and half top. i dont have hair around the temple. its to where i mostly wear wigs. so do i have alopecia?

Added by margaret smith on May 12, 2009 at 5:23pm — 2 Comments

What do you think about hats?

When I first started loosing my hair, I was a typical 14 year old California boy from the suburbs of Los Angeles. I was a HUGE sports fan. We have so many teams out here. The Angels, the Ducks, the Kings, the Lakers, the Clippers, the Dodgers, Chivas USA, LA Galaxy, the LA Avengers, the USC Trojans, the UCLA Bruins (Strangely enough still no NFL team though). I must've had a couple dozen hats. When I started loosing my hair, the hat was a sense of comfort. It was a way I masked my flaw, my… Continue

Added by baldmatt55 on May 12, 2009 at 1:03pm — 9 Comments

Parent with a 9 year old girl with AT

Hello my name is Mary Alice and I have a daughter who has been recently diagnosed with AT /AU maybe. Doctors are not to sure yet. She has lost all of her hair on her head, she no longer has any eyelashes or eyebrows. She used to feel comfortable around us without her wig on but now she wants to wear the wig all the time. I don't really know what to say to her. I tell her she is beautiful and I love her no matter what. She does not like to talk about what is going on with her. She hasn't told… Continue

Added by Brianna and Mary (mother) on May 12, 2009 at 11:12am — 9 Comments

How to get your eyebrows and eyelashes back?

I have alopecia universalis for 5 monthes now ,i've had totalis a few years and it didnt realy bother me i accepted who i am but with universalis losing my eyebrows was aful because im realy into sports and sweat from my scalp drips into my eyes and i cant see anithing.Does any body now how i can get them back?

Added by Moisuc Alexandru on May 12, 2009 at 7:22am — 3 Comments

what hasn't worked and what has

after a particularly devastating and painful period of my life, i was diagnosed with alopecia areata - almost a year ago. at the time of diagnosis, i only had two small quarter size patches. i immediately began getting injections, and continued to do so until two months ago. although i was confident in the course of treatment, i found that the injections did not seem to help me. altho some hair would grow in the center, the spots were still growing larger. and others one would start forming… Continue

Added by claudine on May 11, 2009 at 7:41pm — 4 Comments

A Good Day at the Barn with only a bandana!

Its funny to me that I used to go to school only wearing a baseball cap and play soccer with only a bandana on and that I later felt completely uncomfortable wearing just those things. Maybe it was all those teenage hormones that made me feel like I had to wear a wig 24/7, but thankfully I just don't care anymore!



On Sunday I went to the barn where I keep my horse, and generally I use my "barn hair" that is generally the oldest wig that I own that I wouldn't use for school anymore,… Continue

Added by Dielle on May 11, 2009 at 2:47pm — 1 Comment

Update on treatments so far..

My friend Brittney asked how I was doing so I thought I'd share my progress to date. Well the injections of the Kenalog Cortisone seem to be wroking nicely. I have a full brow line on the left side and a bit more blotchy brow coming in on the right.



I'd say it will be a success in about another month to 6 weeks. The hairs coming in are thick and dark just like my pre- fall out hairs were. I am feeling much more confident about my overall look and would be very grateful if I could… Continue

Added by Craig S on May 11, 2009 at 2:09pm — 1 Comment

Frustration ...

I developed Alopecia while I was pregnant with my son 17 years ago. I was 19 and had no idea why my hair was falling out. I kept telling myself that it was just from the stress of an unexpected pregnancy. I was a pre-school teacher at the time and thank God for children and their compassion and understanding. It did not seem to phase them at all that their teacher was loosing her hair. I didnt buy my first wig until my son was a couple months old and looking back, it wasnt a very good one. LOL… Continue

Added by Cara Jakobitz on May 11, 2009 at 12:14pm — 2 Comments

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