September 2011 Blog Posts (77)

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So sick of it!

Its been a long time since ive posted but im really feeling sick of alopecia right now. I try to forget about it but it just keeps coming back and destroying me from inside. Im nothing like i used to be when i didnt have this fucking stupid condition. I used to be so happy but now i cant even enjoy anything. Im currently in south america and everyday im depressed. Before i left most of my hair was growing back from injections then boom as soon as i stop them alopecia comes back again and fucks… Continue

Added by tim on September 9, 2011 at 1:00am — 3 Comments

A step in the right direction

Wow so much has happened this summer. My first annual alopecia event that I put to together in my city was a wonderful success. I met many people within my city that also have alopecia. Adults and children. Many of which knew nothing of this wonderful site and all you wonderful people here. It was nerve racking to step out in front of the audience at the baseball game and tell everyone why I was here. And it happened all so fast. My plan was to walk out and tell everyone why I was here and then… Continue

Added by Bald and Fabulous AKA Terri on September 8, 2011 at 8:00pm — 11 Comments

My visit from my son!

I had a wonderful visit from my eldest son, Trent this past weekend! Labor Day weekend. Trent was diagnosed with alopecia areata when he was 3 years old. His hair fell out completely when he was 8. He is now going on 24 years old! I have watched him deal with alopecia over the years. Of course, the beginning was the hardest. I made sure to become involved with NAAF as soon as I was aware of the foundation. Through alot of help from NAAF and our community we dealt with Trent's diagnosis the best… Continue

Added by Anna Seagle Craft on September 7, 2011 at 4:17pm — No Comments

Everyday is a new beginning

I've read just a few of the blogs this morning and it warms my heart. Shaved my head for the first time last night. So little hair left, felt I had to let it go. I've been mourning the loss and yet feeling great relief. I am me, with or without hair. I'm in a 12 Step program that has taught me so much about love and support and now with Alopeica World I have that same support to deal with this disease. I attend my first Alopecia support group this month and I'm very excited about that. This is… Continue

Added by Rose on September 7, 2011 at 11:00am — 4 Comments

Any positive stories here?

Hi,

I discovered I have alopecia about a month back. I have 4-5 patches on my scalp. 2-3 of them pretty big (1-1.5 inches diameter). I've had one steroid shot 3 weeks back and due another one tomorrow.

I'm new to this, can anyone share their experiences who've been cured? How long does it generally take? Do I have any hope at all?

Added by Nachiketa Sanyal on September 7, 2011 at 10:37am — 5 Comments

Sometimes I wonder...

What difference the internet and a site like this one would have made on my Alopecia journey in '95. I know there was internet by then, but it was only in its infancy. The term "blog" hadn't even been coined in 1995 I don't think. I was so alone. I am just so glad we have this resource now, and ironic that it is sponsored by wig ads. lol, just sayin'...

Added by Laura Adams on September 7, 2011 at 1:53am — No Comments

Senior year

This is my senior year and i wear a wig. alot of people know because i dont let people get me i will walk into a store with out my wigg and watch people stare at me. I live in a small town so everyone talks. In Vermont Alopecia is not comon at all because we will do anything for one another in a time of need but everyone talks so if you have it you dont talk about it or if u dont have it you dont take the time to concider the people who have it. i wish i knew someone who lived near me who had… Continue

Added by Katelyn Mariie on September 6, 2011 at 5:00pm — 4 Comments

The holiday

Last week I went on holiday. A week in the sun with old friends seemed perfect, and thousands of miles from home I felt truly relaxed for the first time in ages.

On the way to the airport I'd made a decision - that I wasn't going to look at my bald patch at all during the holiday. Since my alopecia started, a few months ago, I have been obsessively checking it in the mirror almost every evening, watching the borders of the patch spread across the back of my head, and photographing it to… Continue

Added by AJ on September 6, 2011 at 2:42pm — 2 Comments

Spreading Awareness One Step At A Time

I'm thrilled that the courier Post a New Jersey newspaper has run a feature in their health/wellness section in today's newspaper about Alopecia.



I contacted them in the hopes they'd do a piece talking about alopecia and the Musician's Alopecia Project Benefit I organized raising funds for the Children's Alopecia Project taking place September 16, 2011 at World Cafe Live! in Philadelphia.



I'm very excited they did such a great job on the piece. As well, the Honorable Mayor… Continue

Added by Lili Añel (aka Eulalia) on September 5, 2011 at 12:30pm — No Comments

Winter coming

Can't gloss it over, the dreaded cold weather is coming and it can't come slow enough. I have aches and pains and the cold makes my asthma worse and just grrrr...I am a wimp. lol. True Floridian - below fifty AIN'T so nifty. Ha I crack me up. I do wear hats, wigs, etc. merely for warmth during Dec-March. Thank goodness that's when it begins warming up again.

Maybe because it was winter when my hair fell out...Jan 10-March 30 approx. Maybe that's made winter worse. Add in Sciatica plus bad… Continue

Added by Laura Adams on September 5, 2011 at 5:17am — 2 Comments

Help?

I'm honestly tired of people around me saying "you're still pretty" The point is I don't feel that way. I don't even feel like me anymore. I feel so lonely. Just a few years ago i was 80lbs lighter, working out in the gym and had a full head of hair. Now i'm overweight, depressed and have to wear wigs to leave the house. I can't stand to look at myself in the mirror anymore. If i don't like myself how can anyone else? I had a boyfriend a few months ago but he didn't understand what i was going… Continue

Added by Jennybnkr on September 4, 2011 at 4:00pm — 2 Comments

Scalp Injections/HELP!

Hello!



Here is my alopecia story...



My hair started falling out in April... at first I thought it was from stress ( my dad had a stroke) but, we now found out it is alopecia. It is now September and my hair is still falling out. I got my first steriod injections 2 1/2 weeks ago and I am rubbing a liguid perscription on my spots at least twice a day. I am in my senior year of high school and this is really upsetting me. How long until I can expect some progress? In some… Continue

Added by Devon on September 3, 2011 at 10:55pm — 23 Comments

The end or the beginning?

Dear all,



It appears that 24 will be the most memorable birthday of my life. I have been growing out my hair since February and finally decided to "take the plunge" with a pixie cut. Truthfully, had my long term best friend not been in town, I probably never would have gotten myself into the salon in the first place.



Something amazing happened. Even now, I look back astonished at my actions. As my stylist (who has been with me through two wigs) came out into the waiting… Continue

Added by Jennifer on September 3, 2011 at 8:30pm — 2 Comments

Treatment Progress

I have been documenting my experiences with cortisone shots/prednisone treatments on my blog. I started them in May and have had some surprising results. Visit AmbersInnerMind.blogspot.com to read how it has been going.

Added by Amber W. on September 2, 2011 at 11:58am — 1 Comment

9/02/10 - 9/02/11

Today is exactley a year since I shaved my head. A year ago today I took control over something that I was letting control me and depress me. This year has been full of a LOT of downs...breaking my foot, vertigo, missing 3 months of work, and doctor bills coming out of everywhere, and losing my boyfriend of 3 years because he wasn't attracted to me without my hair. But out of all the bad I do have good...a loving family that is ALWAYS there for me and supports me, and a new amazing boyfriend… Continue

Added by Tamara on September 2, 2011 at 9:00am — 3 Comments

Now completely bald

A few months ago I posted pics of my hair growing back. Ha ha ha. It all fell out and now for the first time I am completely bald. Smooth as a baby's butt. Went to a new Derm and she told me that I could get shots (NO I HAD THEM AND THEY HURT AND THEY DID NOT WORK). Next she told me there was this pill that I forgot the name, but it had side effects like it could affect my liver, give me diabetes, affect my bones, and so on (NO THANK YOU VERY MUCH). So I am bald and bald I will be until the God… Continue

Added by zeida on September 1, 2011 at 4:46pm — 2 Comments

September is Alopecia Awareness Month!

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. We also welcome you to make suggestions and discuss your plans in the comments section below.

Wishing you great joy and good success,

Cheryl Carvery-Jones & rj jones
Founders, Alopecia World

Added by Cheryl, Co-founder on September 1, 2011 at 12:00pm — 19 Comments

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