Featured Blog Posts – November 2011 Archive (52)

Finally a place to talk about "this"

I love the fact that there is a blog for me on this site. Although I know I may loose interest in it eventually since that's how I am.

Today is not a good day. It is the first bad one I have had in 3 weeks since my last panic attack. Up until that point I was having panic attacks every day for almost a month. I had a slight feeling of panic this morning. I am not sure what brought it on. Then I stupidly looked at my hair in the mirror while still a bit wet and unstyled and went into…

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Added by Figarosmom on November 30, 2011 at 2:20pm — 1 Comment

Need help w/ American Girl

Hello,

My 4 yr old grand daughter w/alopecia areata wants an American Girl Doll that looks like her. We've contacted the manufacturer who claims it's impossible to make/ ship a doll without hair. I am shocked at the insensitivity, and am only interested in how to help my grand daughter's Christmas wish come true. Any help would be appreciated.

Thanks

Toni…

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Added by Antoinette Bowe Brush on November 29, 2011 at 7:32pm — No Comments

Today I graduate

Hey AW Friends,

It's been awhile since I've really posted anything about life but today feels like the perfect day to share with all of you. Three and a half years ago I began my journey through night school and weekends to become a Speech Language Pathologist. It's also when I began my journey with my second round of alopecia.

Today I graduate and have found myself I looking back on all of the things I was able to accomplish. It's not easy working full time as a teacher and…

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Added by Jocelyn on November 29, 2011 at 8:30am — 8 Comments

Going downhill

I suffer from AA.

I've had it for almost the past 9 years of my life.

It's been hard, but I've always managed to handle it.

Well, most of the time.

Like with everything in life, me and AA have our ups and downs.

2 years ago, i started going up again. My patches (a total of 4 at the time) were regrowing and slowly disappearing. It got to the point where i was able to stop getting my regular 6-weeks shots and using my cream.

To be honest, i got cocky. I…

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Added by Tiasha on November 29, 2011 at 6:00am — 5 Comments

Why me, Lord!

I asked the question why me Lord?
This Alopecia has caused me to fall and have no reason to live!!!! My hair is growing and falling out! I have been to several doctors and so many treatments. I'm so tried of people looking at me and having to pay money for hair that sometimes does not look rt! It's not a good feeling at all!!!! I hate the way I look now and finding it hard everyday do look myself in the face or even leave the house!!!!

Added by Pamela McGruder on November 24, 2011 at 5:00pm — 13 Comments

Bless you alopecia, bless you for being in my life?

My husband has been working on material for a class on character that he is teaching at a prison. He found himself researching Aleksandr Solzhenitsyn, who spent 8 years in an unfathomable labor camp for writing a derogatory comment about their country's leader in a letter to a friend. Solzhenitsyn later went on to write the classic book - The Gulag Archipelago: 1918-1956 -…

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Added by Cheryl, Co-founder on November 23, 2011 at 8:00pm — 15 Comments

Attaining freedom

I feel as if I've reached the beginning of a sense of freedom. When I talk of freedom I mean freedom from self, inner relief, freedom from restrictions.

I don't want to get into this sad tragedy of my hair loss at 13. It happened, I struggled, I got bullied, and I went through a long stage of hiding behind wigs and generally hatting myself.

I wanted to say, however, for all those loosing their hair right now, it doesn't have to be that way. When I was 13 growing up in a smaller…

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Added by SilkHead on November 23, 2011 at 6:30pm — 2 Comments

Safety and privacy guidelines for ALL members of Alopecia World

Please note that all suspicious and offensive behavior and other "issues" should be reported using the form located at http://www.alopeciaworld.com/main/index/report

(There is also a permanent and easily accessible link to this report form under the "Members" tab on the navigation menu that appears on every page of Alopecia World.)

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Added by Alopecia World on November 23, 2011 at 1:00pm — No Comments

Blaming baldness, but what if?

I noticed today a new self- talk pattern that puts in question my self- worth. I have said this inside:"What if retail security followed me because if my mohawk? What if my hairloss did not happen; would she have put me down so often? What if my baldness angered him to rape me?"

Added by Kycie on November 22, 2011 at 9:00pm — 12 Comments

So happy!

It's been almost 1 year since my hair started falling out, almost 10 months since I found my first stop and was diagnosed with Alopecia, and 6 months since I had my last shots on the spots. Since then my hair has been thinning but not as bad and its not really that noticeable. All my spots are now growing new hair, some longer than others. I'm just so happy that its coming back, its been a slow process but at least there's progress :) Just wanted to share my exciting progress with yall.

Added by Zayuri Sams on November 21, 2011 at 1:30pm — 2 Comments

Do no harm

Today in church, the speaker discussed kids who have dreams of negative actions on themselves, but who time and again were just found to be having such dreams when faced with a fear or developmental stage they didn't think they could overcome. Being me, of course, I took notes as how this might manifest itself with distraught people on AW. Here is what I came up with as he talked:

What a person really wants to escape is the emotional pain, fear, assumptions or embarrassment associated…

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Added by Tallgirl on November 20, 2011 at 9:30pm — 2 Comments

Out in the world as an alopecian; the job interview and further steps

While I am a musician (Singer/Songwriter), I don't exist off the air I breathe. It would be nice. When I was signed to a label in the mid-90s I toured, made very good money. Long story short, my contract with my label was not renewed. It meant "start over". Back to a day job. I burned the candle at both ends, working to support myself, pursuing my musical endeavors, writing performing.

Like millions of other Americans I was laid off in 2008. I work as a temp whenever afforded the…

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Added by Lili Añel (aka Eulalia) on November 19, 2011 at 9:30pm — 14 Comments

Female Pattern Baldness- too young for this!

So, it seems like there's this huge stigma with a lot of us who have it... we feel less feminine and I feel like I'm aging prematurely (no wrinkles yet though!). I think that's what really freaks me out about it and makes me feel terrible about myself... when this first started happening to me, I felt like my body was falling apart and there was something wrong with me. I've read a lot of discussions on this site and there were some people with AA angry that more research isn't being done…

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Added by Lili on November 19, 2011 at 12:56pm — 17 Comments

Random thought on my journey with alopecia

Most of you know that I am from Canada and rj is American. So when we married we started a whirlwind of immigration processes. I had to file yet another form and get another set of biometric done. One of the steps was another photo session at the immigration office.

I filled out the form and clicked “bald” as my hair color. For a second I wondered if I should have clicked black, since it was an official government form and being AA my black hair does show if I don't shave daily. I…

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Added by Cheryl, Co-founder on November 19, 2011 at 11:48am — 2 Comments

Tired of walking this road alone

i am reaching outto anyone out there with alopecia[ESPECIALLY ALOPECIA UNIVERALIS,iam 57 years old and have this terrible condition for 38 years now, is thereanyone out there who would like to get in touch with by way of email, i do feel so al alone, god bless you all.

Added by janetparsons on November 17, 2011 at 10:00pm — 9 Comments

Wig-a-holic

Let's face it, I'm addicted to wigs.

Before I shaved my head, I had hair of all colors and have used different methods of extensions (don't do clip in, they put too much stress on the hair and eventually leave bald spots) and anything to morph my hair into art.

I've been feeling like I bought all the wigs I like in my area, and was wondering if anyone had specific brands or sites they've had luck with. I'm going to include a wig site I love, and it's full of…

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Added by Tiffany Marie on November 17, 2011 at 8:30am — 7 Comments

Stress-related. Really?

Just curious...what, in your opinion, was the cause of the beginning of your hair loss?

For me...I was under a tremendous amount of stress. One thing came after the other for a number of years (including a strenuous marriage and owning a hair salon/spa...a whole other story). Towards the end, things became quietly unbearable for me...from getting a divorce to buying a house and moving into the house on the same weekend as switching jobs.

I met my boyfriend…

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Added by Deana on November 16, 2011 at 11:00pm — 18 Comments

I have never been outside without a wig :/ Nobody knows the real me

So I have had Alopecia Universalis since I was 14 and I have been wearing a wig since I was 14 dealing with the torture of others and being the laughter of all the other kids at school. People always thought I had cancer that's why I wore a wig some girls even tried to pull it off of my head.I am currently 18 and college student. Nobody has seen me without a wig except my mom my sister & my boyfriend. I am finally beginning to accept myself and love myself without the hair. I want to go…

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Added by Angela Francisco on November 16, 2011 at 3:00pm — 15 Comments

The new me

So about 3 weeks ago I received my new Freedom wig. I was really scared at first because I didn't want to get my hopes up about it. I didn't want to get it, put it on, and hate it! I didn't want to find out that after all the time, effort and money that went into getting it, it wasn't for me.

Well my fears were quickly put aside...I LOVE IT!! It is so comfortable and realistic. I have found that it makes me more satisfied with me. What I mean is that having been bald for as long as I…

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Added by Kris Fenchel on November 16, 2011 at 6:30am — 18 Comments

If only I had my hair

Every day i think if only???? If only i had hair

If only, would my life be different

If only, i would be treated different in this society

If only, I could have normal relationships

This constant thought of if only..... brings this aching pain that i am unable to shake

I have felt over the past few months out of it, i wish i had my hair.... i ask my mum why wont my hair grow, i ask my mum in a playful yet sad way.... and considering i am now 24..... i understand why…

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Added by Natalie Martin on November 16, 2011 at 3:00am — 7 Comments

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