When I first was diagnosed with Alopecia 6 years ago besides crying every time i looked at myself in the mirror, I shut everyone out of my life. I stopped going out because i was self conscious and stopped talking to my friends and family because I felt they wouldn't understand. When I was diagnosed there weren't really any support groups that I was aware of so I felt like I had to go through it alone. I didn't even tell my family until much later.

Having a conversation with one of my…

So....my 11 year old daughter lost ALL of her hair in the last month and a half or so. We only have a half wig now (a flash) b/c everything else takes so long to order. She has been wearing that to school since after Thanksgiving and hasn't had any major issues. When she originally got it, she had hair on the back of her head to blend w/the hair on the flash piece. Now, she doesn't. So if the hair moves at all you can see the bald spots on her scalp. So....today at school a kid asked if they…

On the NAAF feed on Facebook this morning there is a fantastic picture of the Disney princesses sans hair. It made me smile and got me thinking...

I was watching Shrek the other night with my kids. It was the movie with the princesses (Sleeping Beauty, Snow White, Cinderella...Shrek II perhaps?) The main villainess turns out to be Rapunzel coupled with that Nasty Prince Charming. As Shrek and Fiona conquer all things evil including the dubious Rapunzel and Charming, what should happen…

Hello all! It's been a while since I've been on last. I recently went to a dermatologist. Didn't go to well but I asked the doctor if there were any support groups in our area. There are some but an hour or 2 away. The doctor suggested I start one in our community. I would appreciate some advice here please. What do I do? How do I do this?
Please and Thank you :D

I just wanted to start off by saying I wish everyone a very Merry Christmas.

Looking back on the year pass, I amaze myself by how genuinely happy I have been. Yes I still have bad days but dont we all? And yes I still have hair memories. But how can you not when you see commercial after commercial with hair flipping all over the place. We definitely need to see some fabulous bald ladies in commercials. But during those moments I just rub my smooth head and I feel better.…

My 16 month old has been diagnosed with Alopecia, so I am talking to everyone who knows anything about this problem. Someone mentioned if this could be related to Radon Gas, and If I ever have tested my house for Radon. So I went first thing today morning and got a Radon Test Kit which takes about 2 weeks to get results, and I am growing impatient to figure out if it could be related. Has anyone who suffering from Alopecia looked into Radon gas in their house or work place?

Well I decided I wanted to dye my ‘human hair’ wig yesterday, for a Christmas boost. I had done it before and it has become a bit of an addiction, why buy a new colour when I can boost this one just a little more… I always worry though. Just before I start thinking, what if all the hair falls off, and then what? But I do it anyhow.

Now I have read a number of times, always go for a shade lighter then you want, and never leave it in for the full time.

The first time I dyed my hair…

Does anyone know if Rogaine works for Alopecia?

I thought i was coping with this ok... i thought i was accepting it... but today was bad, we are going out to the bar tomorrow, and its the first time since i shaved my head. i barely wear my wig now because i hate the feeling of it so much, so i figured i could find something to wear to make it look amazing without hair.. but everything looks ten times better when i put my wig on... i picked out a dress, and then put the wig on and my friends said, and i also agreed, that it looks way…

People never cease to amaze me. So this woman at church came up to me last Wednesday,and asked me if I was wearing a wig. I was shocked and I started stuttering, and then I finally told her "yes", with a smile. She then asked me "why, because Indian woman have beautiful hair"? and I noticed that I was about to tear up so just then I took my mind somewhere else as I answered " I have a form of Alopecia". She then asked what that was, so I told her. It's surprising to me sometimes that some…

Still searching for a group close enough to get together with or at least a friend for Kira. She is up to 80% Hair loss and considering shaving her head. She is alternating between feeling special, and heart breaking sobs because she is different. I wish I could fix it all for her... Friday is her 12th birthday, would that I could make it all better for her as the ultimate gift...

When I was a young girl I had long, thick, wavy brunette hair. It was so thick my mom used to ask hairdressers to "thin it out". Then at age 21 people began to point out a little thin spot in the center of my head near the front which grew progressively worse and worse. Of all the things I could have inherited from my dad, male pattern baldness would not have been my first choice.

Ten years before Rogaine was ever approved by the FDA for the treatment of hair loss I was already well…

I have only been diagnosed for oh 3 months now with AGA/TE, but one thing that I am finding a bit annoying is the sheer amount of hair loss shenanigans on the internet.

Try doing a search on YouTube for alopecia. I am looking for genuine people telling their stories. I personally find them helpful and inspiring. However what I mostly find are a lot of videos promoting a product or some dermatologist telling the usual treatment options for alopecia.

My favorite…

Love her with every thread of your being.

Love her with every thread of your being. Love her with every emotion that is intertwined within every thread of your makeup. Love her from the heart. Love her from your mind, your body, your soul. Love her spiritually. For not doing these things encumber the armour she will need to protect her from the…

Somethin’ new is growin’ in my garden…

Watching change take place in our lives can at times be confusing and even terrifying. Even at times when change is supposed to be good. This is because of the unexpected outcome of the situation you might find yourself facing.

Having alopecia can present itself in the very same way. It’s full of…

I'm a 14 year old freshman and I don't wear a wig at all.. I don't like it. So i just wear a scarf. Everyday I end up in the bathroom crying because of the mean people. I have other issues in my life and I'm becoming very depressed. I finally got a therapist but I'm thinking about being home schooled for a while just so I can get back on my feet. I just don't want to disappoint my friends. Any suggestions? Homeschool? Or not?

It's been a while since I've been on here. I have profiles on at least four social networking sites and I sometimes lose track.

I thought I'd post some thoughts about eyebrows. I know there are discussion forums, but I get overwhelmed by those because one person says one thing and gets so many replies that it's hard to get back to the original question. I also figured that if anyone cares about what I have to say, they'll take a vested interest in my blog, instead of trying to search…

Hello, I am sure who ever stumbles across my blog will be nice. I don’t know how often I will post, more than likely as and when I am having an ‘alopecia moment’ I think this will be a good place to express my feelings without worrying people will judge…

I more or less have fully hair loss, I have at least 90-95% I guess, well maybe more like 95-99% lol I guess it is a little bit of me not fully accepting its more gone then I like think off. I have lost 99.5% of the hair on my head,…

Anthony's story update:

We went through all the blood testing for thyroid and allergies and anything else that we could think of. End result: he's perfectly healthy, but bald. We saw a pediatric dermatologist at the Children's Hospital and the only treatment we considered was SADBE (a chemical applied to the scalp that would create an allergy in hopes that it would divert the immune system from the hair follicles). We did the test spot and he had no reaction whatsoever. In a follow up…

So my dermatologist says it's okay for me to dye my hair.

Earlier this year i acted on this advice, however i found that a lot of my new regrowth fell out when i was drying my hair (obviously after i had washed the dye out).

Actually, it didn't really fall out, it was more that i found the small hair on my towel after drying my hair. Like i had rubbed them off.

That was the first and only time i dyed my hair (it was a wash out dye, didn't have bleach in it).

What are…