All Blog Posts (5,825)

I got questions

I got lots of questions ?? but not any answeres.I ve heard some Drs. somewhere found a genetic link between naturally bald mice and victims of alopecia areata turns out there might be a ressesive gene we share. within victims of aloepecia this gene when activated due to trauma excessive stress illnes will triger that dormant gene activating it and, wolla! presto magic alopecia areata of the worse kind, the real trick in that case is how to put it back to sleep. Ive also heard it could be… Continue

Added by George Ortiz on May 6, 2009 at 10:09pm — No Comments

ANYONE ELSE ALLERGIC TO SYNTHETIC WIGS?

HELLO IM PEGGY, NOT ONLY HAVE I HAD TRAUMA DEALING WITH BEING DIAGNOSED WITH AA, I WENT TWO WEEKS TRYING TO DEAL WITH IT AND THEN AS MY HAIR FELL OUT TO MUCH TO COVER UP I BUZZED IT. AND DELT WITH THAT FOR AWHILE AND THEN RAN AROUND CRAZY HUNTING WIGS TO HAVE WHEN I HAD TO GO BACK TO WORK. THE TWO I BOUGHT WERE LIKE 500 BUCKS TOGETHER WERE TOO BIG WHEN I GOT HOME. THEY WOULDNT TAKE THEM BACK AND I CANT GET THEM TAKEN UP ENOUGH WITHOUT HAVING A BIG LUMP ON THE TOP OF THE WIGS. WELL I DELT WITH… Continue

Added by peggy thompson on May 6, 2009 at 10:01pm — No Comments

my 8 year old little girl is losing hair

HELP...I noticed my 8 year olds hair thinning about 8 months ago. I took her to the dermatologist. She ran some tests-thyroid- and it all came back normal. Two weeks ago, I noticed significant hair loss again. She has very little hair on the top of her scalp, her eyebrows have thinned out, and the hairs on her leg has disappeared. I have noticed she has short thin hair-white in color- growing. On her scalp, it looks like fuzz-spring like- very little waves and has no color. On her arms and… Continue

Added by Tammy on May 6, 2009 at 8:53pm — 1 Comment

New Hairpiece...new feelings...

Well today I got my very first hairpiece. I LOOOOVVVVEEE it!!! I feel beautiful!!! I felt confident in my buffs and bandanas but it wasn't quite me. But today I feel awesome. The first time in a long time. My hubby LOOOVVVES it as well. He has been such a crutch in this whole continuing journey. My hairpiece is longer than I wear my hair but almost an exact match in terms of color. Giselle, my hairpiece sensai, said it well "I guarantee you can go shorter, but length...not going to happen" I… Continue

Added by Jennifer Krahn on May 6, 2009 at 7:37pm — 12 Comments

Grieving a loss of what could have been

My sweet 13 mo old started losing her hair. She was always very small, failure to thrive in fact. Her ped just continued to say she was fine, just a slow grower. I knew otherwise, but few listened. I guess they thought I was a paranoid mom, even though I never had these fears with my son who is almost 4. So when she started losing her hair I tried to look the other way. This worked for about a month, until her grandmother said something. That gave me the kick in the butt to take her to the ped,… Continue

Added by Angie, Gracie's mom on May 6, 2009 at 6:23pm — 3 Comments

"THAT MAN HAS ALOPECIA TOO MAMA" She yells

So when we moved into our appartment there was carpet in the kitchen....yeah not really feezable with two kids right. So we got it replaced with lanolium, well the men were finishing yup doing it and headed down to their van. (were second floor) She runs to the belconey and says mama he has alopecia too!!! All excited! Then I explained to her that men lots of time loose their hair with age. It was so cute!

Added by Tasha Dingler on May 6, 2009 at 1:26pm — 3 Comments

RE: Question for anyone that has had shots!!!!

Hi there all,

I was diagnosed back in August of 2008 and probably started hair loss back in March-April 2008. I did receive 3 treatments, shots on my scalp and the big shot in the butt. My last Big shot was back in October and the ones in the scalp were in November 2008 I was doing great until very recently. I lost a tiny bit if eyelashes, really small area and now I felt like I was shedding again more on one side. It's not really terrible shedding, but still I am so aware of when I loose… Continue

Added by Melissa Harris on May 5, 2009 at 9:10pm — 5 Comments

Bio Matrix wig is in!

Destiny just got her bio matrix wig on Friday. She loves it. She has been swimming in it twice already, and is going again tomorrow. It looks wonderful, and she says it is not hot at all. I am so thankful to HCK...we love it!

Added by Destiny on May 5, 2009 at 5:57pm — 3 Comments

Distracted

I was at a conference last week and found myself quite distracted during most sessions because I couldn't help but examine everyone's hair. Not one person(98% of people in attendence were female) had hair as thin as mine. Everyone else's was thick and 80% of the women had beautifully styled hair. I wondered if any of them were wearing wigs! I was so self-conscious most of the time.

We went out for dinner and shopping one evening and it started to rain while we were walking outside. Ugh!… Continue

Added by Tawny on May 5, 2009 at 10:22am — 10 Comments

What Am I Doing?

I thought I was progressing with this Alopecia thing. I started growing my hair back after my little girl was born but 3 months into it I shaved it because it had started to fall out again. I started wearing my wigs again. And I just am so unhappy with it! Its been 10 years and my hair has never fully come back and I am sick of it and dont know what to do, I really want it back. I see all these people on here happy and their beautiful pictures and they have excepted this! and then I look at… Continue

Added by Casey on May 4, 2009 at 10:20pm — 2 Comments

Androgenetic Alopecia

Androgenetic Alopecia is what the doctor said. She said to start using mens 5% Rogaine. Takes 6 mnths to take effect. Genetics. Wasnt quite what I had in mind when I heard the word Inheritance.

So now, I guess I hop on here and google and figure out more about this condition. At least I know now, right? Thats a good thing. And... My stiches are out of my head. Good thing #2.

I was hoping it was something easily fixed. Blah.

Added by Joy on May 4, 2009 at 12:10pm — 1 Comment

Update

Monday 4th May 2009


Just thought I'd let today out, hope no one minds.
I've had one of "those days" I'm afraid, getting pretty tired of hearing "Oh my god...her hair... must be chemo" or "Eer, freak" being whispered where ever I am.

I was meeting a friend in the local park this afternoon, and a mum actually came a moved her kid away from the park, just staring at me, honestly!

Liz x

Added by Lizzie on May 4, 2009 at 11:30am — 4 Comments

In Need of a Confidence Boost (and Advice!)

Hey guys!

Today is one of those tough days when my confidence and acceptance of my hair loss is slipping. I'm not burst-into-tears-so-unhappy miserable or anything, but I'm more like "eh." I'm thinking my head shave will be taking place sooner rather than later. When I comb my hair after my shower I keep losing clumps. There are only so many months I can keep losing clumps before my hair is too thin to be pretty! So I'm a little shaken by that. I'm thinking it'll be an experience that's… Continue

Added by Alexandra on May 4, 2009 at 12:44am — 3 Comments

I'M JUST TIRED

i am so tired of trying to fix my eyebrows every day, i think that i can make it alright without my eyelashes, i use a liquid liner a nice eyeshadow, but my eyebrows are so hard to try and make. i know there are alot of products out there but at this time the really good wigs and tattoo eyebrows are not affordable to me. i'm so stressed and tired of doing this every day and so sad, this disease has affected my life in so many ways, i'm just tired. i've distanced myself from most people, they… Continue

Added by ronda on May 3, 2009 at 4:19pm — No Comments

It's been a while!

I know it's been a while. I've been on quite a journey while I was away! In November, I decided to stop taking the birth control (yaz) that I started taking a few months before my AA began. Since then, my hair has been coming back nonstop! All is back with the exception of a small patch in the front. This is stemming from 75% loss of scalp hair and 95% loss of body hair. I never lost my eyebrows or eyelashes. I know that it may not be permanent, but I wanted to share this with you… Continue

Added by Melody on May 3, 2009 at 8:44am — 3 Comments

OMG TEXAS HERE I DON'T COME

I can't go to Texas cause my immune system is really low right now. so sorry all that was looking foward to meet me.

Added by Aja Eliazar on May 3, 2009 at 5:30am — 4 Comments

Kudos MTV

Did anyone catch the episode of MTV True Life: I'm losing my hair

Added by baldmatt55 on May 2, 2009 at 8:23pm — 2 Comments

carrots, eggs, and coffee

You will never look at a cup of coffee the same way again.



A young woman went to her mother and told her about her life and how

things were so hard for her. She did not know how she was going to make it

and wanted to give up. She was tired of fighting and struggling. It seemed

as when one problem was solved, a new one arose.



Her mother took her to the kitchen. She filled three pots with water

and placed each on a high fire. Soon the pots came to boil.… Continue

Added by Kristen Ridenhour on May 2, 2009 at 3:54pm — 2 Comments

Alopecia Overload!

All of a sudden it just seems like I've got so much on the go with alopecia! My next support group meeting is in June and I'm looking forward to seeing everyone again as we celebrate our one year anniversary!!

Thanks to Mary, I suppose?, I will be doing something for National Bald Out Day in my Canadian community but I haven't decided what I'm going to do yet. I'm thinking along the lines of a head shaving or people can sign their names on an alopecian's head with henna and that way we'll… Continue

Added by Carol on April 30, 2009 at 9:04am — 5 Comments

Something's Happening

I'm pleased to say I've had some regrowth in last few months. My eyelashes grew back in my right eye and I have some eyelashes in the left eye. My eyebrows are starting to come in too! The white hairs are gaining pigment. I have several black patches on my head. It doesn't seem like much, but I'll take it. My family and friends are telling me its a good sign, but I don't want to get my hopes high and then nothing happens or it falls out again. It would be nice to talk to someone thats had… Continue

Added by Marisol on April 29, 2009 at 11:00pm — 4 Comments

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